Nonprofit · EIN 36-2916466
LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION
Tax-exempt · SKOKIE, IL 60077
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $4,524,784 | $3,333,281 | $1,191,503 | $4,414,309 | $1,731,071 | $2,683,238 |
| December 31, 2023 | 990 | $2,682,408 | $3,355,940 | -$673,532 | $3,286,760 | $1,795,025 | $1,491,735 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $5,107,087
- of which government grants
- $120,024
- Program service revenue
- $0
- Investment income
- $107,409
- Net gain from sales of assets
- $1,219
- Net income from fundraising events
- -$689,712
- Other revenue
- -$689,712
Expenses
- Grants and similar amounts paid
- $1,126,959
- Compensation of officers, directors and key employees
- $239,077
- Other salaries and wages
- $1,058,920
- Salaries, compensation and benefits (total)
- $1,457,602
- Professional fundraising fees
- $0
- Accounting fees
- $23,038
- Occupancy
- $67,645
- Travel
- $25,379
- Depreciation
- $50,863
- Program services (functional)
- $2,651,091
- Management and general (functional)
- $260,771
- Fundraising (functional)
- $421,419
Balance sheet and other
- Total assets, start of year
- $3,286,760
- Total assets, end of year
- $4,414,309
- Total liabilities, end of year
- $1,731,071
- Net assets, end of year
- $2,683,238
- Land, buildings and equipment
- $18,164
- Net assets without donor restrictions
- $1,797,147
- Net assets with donor restrictions
- $886,091
- Gross receipts
- $5,474,152
- Employees
- 19
- Volunteers
- 35
- Year formed
- 1977
- State of legal domicile
- IL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| LAURA FREVELETTI | CHIEF EXECUTIVE OFFICER Officer | 40 | $191,209 | $47,868 |
| LAUREN WEBB | CHIEF ADVOCACY AND OUTREACH OFFICER Highest-paid employee | 40 | $120,634 | $27,548 |
| MARK HEIDEN | DIRECTOR OF COMMUNICATIONS Highest-paid employee | 40 | $127,500 | $4,972 |
| CONSTANCE PAESEL | CHIEF OPERATIONS OFFICER Highest-paid employee | 40 | $113,500 | $4,483 |
| ERIN REARDON COHN | BOARD CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| HARVEY GAFFEN | CHAIR EMERITUS Trustee or director, Officer | 2 | $0 | $0 |
| THOMAS F BOLEKY | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| JOEL A SCHECHTER | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| JOHN COLEMAN III MD | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| ROBIN FERN | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| DEBORAH CROCKETT | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| TINA CASCIO | DIRECTOR Trustee or director | 2 | $0 | $0 |
| AALOK DAVE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SEAN FALLON | DIRECTOR Trustee or director | 2 | $0 | $0 |
| BONNY GAFFEN | DIRECTOR Trustee or director | 2 | $0 | $0 |
8 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| FRANK GRANATA | DIRECTOR Trustee or director | 2 | $0 |
| JODI M HARRIS | DIRECTOR Trustee or director | 2 | $0 |
| KEN HOFFMAN | DIRECTOR Trustee or director | 2 | $0 |
| JANENE JONAS | DIRECTOR Trustee or director | 2 | $0 |
| JOSHUA NEWSOME | DIRECTOR Trustee or director | 2 | $0 |
| MARY LOU PISONE | DIRECTOR Trustee or director | 2 | $0 |
| DIANA PISONE | DIRECTOR Trustee or director | 2 | $0 |
| SARVESH SOI | DIRECTOR Trustee or director | 2 | $0 |
990 for the year ended December 31, 2023: 24 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| LAURA FREVELETTI | CHIEF EXECUTIVE OFFICER Officer | 40 | $148,059 | $3,597 |
| LAUREN WEBB | DIR. OF SUPPORT SERVICES Highest-paid employee | 40 | $115,407 | $18,387 |
| STEVE SCHAPIRO | DIRECTOR OF DEVELOPMENT Highest-paid employee | 40 | $123,000 | $4,810 |
| ANDREA PAULS BACKMAN | CEO (THRU JUNE 2023) Officer | 40 | $85,518 | $11,825 |
| ERIN REARDON COHN | BOARD CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| HARVEY GAFFEN | CHAIR EMERITUS Trustee or director, Officer | 2 | $0 | $0 |
| THOMAS F BOLEKY | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| JOEL A SCHECHTER | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| JOHN COLEMAN III MD | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| ROBIN FERN | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| JODI M HARRIS | VICE CHAIR Trustee or director, Officer | 2 | $0 | $0 |
| KEN HOFFMAN | TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| RICH ASHLIN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| TINA CASCIO | DIRECTOR Trustee or director | 2 | $0 | $0 |
| DEBORAH CROCKETT | DIRECTOR Trustee or director | 2 | $0 | $0 |
| AALOK DAVE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SEAN FALLON | DIRECTOR Trustee or director | 2 | $0 | $0 |
| BONNY GAFFEN | DIRECTOR Trustee or director | 2 | $0 | $0 |
| FRANK GRANATA | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JANENE JONAS | DIRECTOR Trustee or director | 2 | $0 | $0 |
| JOSHUA NEWSOME | DIRECTOR Trustee or director | 2 | $0 | $0 |
| MARY LOU PISONE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| DIANA PISONE | DIRECTOR Trustee or director | 2 | $0 | $0 |
| SARVESH SOI | DIRECTOR Trustee or director | 2 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 5550 TOUHY AVE STE 302, SKOKIE, IL 60077-3254
- Principal officer (990 for 2024)
- LAURA FREVELETTI, 5550 WEST TOUHY AVE 302, SKOKIE, IL 600773254
- Signed the 990
- LAURA FREVELETTI, CEO
- Phone
- (847) 679-3311
- Website
- WWW.LESTURNERALS.ORG
- Return prepared by
- WIPFLI LLP
Mission
TO PROVIDE THE MOST COMPREHENSIVE CARE AND SUPPORT TO PEOPLE LIVING WITH ALS AND THEIR FAMILIES IN CHICAGOLAND, SO THEY CAN CONFIDENTLY NAVIGATE THE DISEASE, AND ADVANCE SCIENTIFIC RESEARCH FOR THE PREVENTION, TREATMENT AND CURE OF ALS.
Program accomplishments
- THE FOUNDATION CURRENTLY MAKES GRANTS TO THE LES TURNER ALS CENTER AT NORTHWESTERN MEDICINE FOR ALS RESEARCH, THE LOIS INSOLIA ALS CLINIC AND OTHER ALS EDUCATIONAL AND SCIENTIFIC ACTIVITIES.IN ADDITION, THE FOUNDATION PROVIDES PERSONALIZED SUPPORT VISITS, SUPPORT GROUPS, ACCESS TO EQUIPMENT AND OTHER PROGRAM SERVICES TO PEOPLE WITH ALS AND THEIR FAMILIES. THE FOUNDATION OFFERS EXTENSIVE EDUCATIONAL RESOURCES TO PEOPLE WITH ALS AND THEIR FAMILIES ACROSS THE COUNTRY AND INCREASES PUBLIC AWARENESS OF THE DISEASE THROUGH EDUCATIONAL PROGRAMS AND INITIATIVES.Expenses $2,651,091 · grants $1,126,959
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 36-2916466
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1977
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $4,414,309
- Income (IRS master file)
- $5,474,152
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $4,524,784 | $3,333,281 | $4,414,309 | XML |
| 990 | December 2023 | $2,682,408 | $3,355,940 | $3,286,760 | XML |
| 990 | December 2022 | $2,660,033 | $2,786,124 | $3,764,134 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 36-2916466).
Questions about LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION
- What is the EIN of LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION?
- The employer identification number (EIN) of LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION is 36-2916466.
- Is LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1977.
- Are donations to LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION?
- The 990 for the year ended December 31, 2024 names LAURA FREVELETTI.
- Who are the officers and directors of LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 23 people; 4 received compensation from the organization, the highest $191,209 (LAURA FREVELETTI, CHIEF EXECUTIVE OFFICER).
- How much revenue does LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $4,524,784, expenses of $3,333,281 and total assets of $4,414,309 at year end.
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