Nonprofit · EIN 31-1031092
THE SPINA BIFIDA COALITION INC
Tax-exempt · CINCINNATI, OH 45209
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $183,729 | $145,965 | $37,764 | $102,899 | – | $102,899 |
| December 31, 2024 | 990-EZ | $122,555 | $164,138 | -$41,583 | $63,645 | – | $63,645 |
| December 31, 2023 | 990-EZ | $128,595 | $153,741 | -$25,146 | $102,304 | – | $102,304 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $181,643
- Investment income
- $2,086
Expenses
- Compensation of officers, directors and key employees
- $64,721
- Salaries, compensation and benefits (total)
- $71,629
- Professional fees and payments to contractors
- $546
- Occupancy
- $4,802
- Printing, publications and postage
- $591
- Other expenses
- $68,397
- Program services (functional)
- $111,015
Balance sheet and other
- Total assets, start of year
- $63,645
- Total assets, end of year
- $102,899
- Total liabilities, end of year
- –
- Net assets, end of year
- $102,899
- Cash, savings and investments
- $102,899
- Gross receipts
- $183,729
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Rhonda Horick | Executive Director | 32 | $56,412 |
| Kevin Grosskoph | Program Manager AAD | 4 | $3,276 |
| Diane Burns | Research Coordinator | 2 | $1,716 |
| Lisa Schmidt | Program Manager Youth | 2 | $1,600 |
| Holly James | Transition Coach | 2 | $1,220 |
| Margaret Shiekh | Transition Coach | 2 | $385 |
| Elizabeth Hansford | Administrative Asst | 2 | $112 |
| Kim Slocombe | Vice Chair | 2 | $0 |
| Anthony Giangrande | Board Chair | 5 | $0 |
| Angel Burton | Treasurer | 2 | $0 |
| Amy Wix | Secretary | 2 | $0 |
| Judy Albert | Director | 2 | $0 |
| Joshua Kayes | Director | 2 | $0 |
| Sherri Davis | Director | 2 | $0 |
| Irene Dietz MD | Director | 2 | $0 |
6 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jake Brodbeck | Director | 2 | $0 |
| D'Asia Clendenning | Director | 2 | $0 |
| Melanie Dresch Esq | Director | 2 | $0 |
| Hillary Mettler | Director | 2 | $0 |
| Ta-Lisa MilesLSW | Director | 2 | $0 |
| Noel Pristas MD | Director | 2 | $0 |
990-EZ for the year ended December 31, 2024: 20 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Rhonda Horick | Executive Director | 32 | $56,412 |
| Diane Burns | Program Manager | 17 | $3,700 |
| Kevin Grosskoph | Program Manager AAD | 8 | $3,562 |
| Lisa Schmidt | Program Manager Youth | 8 | $3,255 |
| Alexis Allen | Communications Assistant | 3 | $1,537 |
| Elizabeth Hansford | Administrative Asst | 8 | $943 |
| Diane Burns | Research Coordinator | 2 | $785 |
| Emily Jones | Program Assistant | 8 | $404 |
| Kim Slocombe | Vice Chair | 2 | $0 |
| Anthony Giangrande | Board Chair | 2 | $0 |
| Angel Burton | Treasurer | 2 | $0 |
| Amy Wix | Secretary | 2 | $0 |
| Judy Albert | Director | 2 | $0 |
| Kelly Johnson | Director | 2 | $0 |
| Joshua Kayes | Director | 2 | $0 |
| Melanie Dresch | Director | 2 | $0 |
| Jenetta Thomas | Director | 2 | $0 |
| Sherri Davis | Director | 2 | $0 |
| Irene Dietz MD | Director | 2 | $0 |
| Greg Savilla | Director | 2 | $0 |
990-EZ for the year ended December 31, 2023: 20 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Rhonda Horick | Executive Director | 32 | $52,000 |
| Diane Burns | Program Manager | 17 | $20,377 |
| Alexis Allen | Communications Assistant | 3 | $2,840 |
| Emily Jones | Program Assistant | 8 | $2,176 |
| Elizabeth Hansford | Administrative Asst | 8 | $1,517 |
| Sarah Jones | EO/WV Coordinator | 2 | $342 |
| Jimmi Byington | Board Chair | 2 | $0 |
| Sherri Davis | Vice Chair | 2 | $0 |
| Anthony Giangrande | Secretary | 2 | $0 |
| Angel Burton | Treasurer | 2 | $0 |
| Greg Savilla | Director | 2 | $0 |
| Amy Wix | Director | 2 | $0 |
| Judy Albert | Director | 2 | $0 |
| Kelly Johnson | Director | 2 | $0 |
| Joshua Kayes | Director | 2 | $0 |
| Ashley Mitchell | Director | 2 | $0 |
| Lori Stewart | Director | 2 | $0 |
| Jenetta Thomas | Director | 2 | $0 |
| Kim Slocombe | Director | 2 | $0 |
| Irene Dietz MD | Director | 2 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 9852, CINCINNATI, OH 45209-0852
- In care of
- % RHONDA HORICK
- Signed the 990-EZ
- Rhonda Horick, Executive Director
- Phone
- (513) 923-1378
- Website
- sb-coalition.org
Mission
To promote and enhance the lives of all affected by SB.
Program accomplishments
- GENERAL PROGRAM-This categaory captures costs associated with keeping our doors open.These expenses include payroll, rent, web hosting utilities. Our service area encompasses 105 counties in OH, KY, IN, WV.Expenses $64,906
- SCHOLARSHIPS-We provided 31 scholarships to our stakeholders and their families. These included 20 direct aid for financial assistance, 4 SNAP, 4 camp/recreation, 2 auto modification and 2 post-secondary.Expenses $7,068
- WALK ROLL PROGRAMMING-The Walk Roll is an annual event held in NE Ohio and the Greater Cincinnati area. Over 900 individuals came together in both locations. Costs include software, rental, equipment, entertainment, photographExpenses $20,892
- TOUCHPOINTS-is a series of informational links that target issues that occur at developmental milestones. These resources address challenges that occur in lifestyle education at each transitional stage partnering with CCHMC.Expenses $100
- SOCIAL EVENTS-In 2025 we held 2 in-person Walk Rolls at 2 of our regions. In addition we hosted 3 holiday parties in each of our regions as well as other community events for our families.Expenses $4,420
- CLINIC PROGRAMS- Our stakeholders require hospitalizations so to make their days brighter we provide latex free balloons to inpatients meal tickets to parents. Clinic bags including snacks, activities beverage were also given.Expenses $1,319
- COLLABORATIVE PROGRAMS/COMMUNITY PARTNERSHIPS-This category encompasses programs that are cross-disability as well as partnerships with other organizations and foundations. We continue to participate in CCTST with CCHMC.Expenses $1,000
- ADULT/TEEN PROGRAMMING-We provide various programming both inperson virtual for adults and teens. Our aduts have a bi-monthly lunch, quarterly virtual craft hour virtual monthly adult hangout. Teens participate in SB sync.Expenses $2,902
- ADVOCACY-This category captures expenses related to advocacy efforts on behalf of the organization. This includes mileage for attending monthly meetings and workshops related to advocacy efforts related to spina bifida.Expenses $1,380
- Research-Since 2018 we have been working with thd Childrens Hospital sb clinic on a research project related to Transition for our AYA. in 2025 we began steps to pilot this intervention by hiring a Transition coach.Expenses $7,028
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 31-1031092
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1973
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $102,899
- Income (IRS master file)
- $183,729
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $183,729 | $145,965 | $102,899 | IRS |
| 990-EZ | December 2024 | $122,555 | $164,138 | $63,645 | XML |
| 990-EZ | December 2023 | $128,595 | $153,741 | $102,304 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 31-1031092).
Questions about THE SPINA BIFIDA COALITION INC
- What is the EIN of THE SPINA BIFIDA COALITION INC?
- The employer identification number (EIN) of THE SPINA BIFIDA COALITION INC is 31-1031092.
- Is THE SPINA BIFIDA COALITION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1973.
- Are donations to THE SPINA BIFIDA COALITION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does THE SPINA BIFIDA COALITION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of THE SPINA BIFIDA COALITION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did THE SPINA BIFIDA COALITION INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who are the officers and directors of THE SPINA BIFIDA COALITION INC?
- The 990-EZ for the year ended December 31, 2025 lists 21 people; 7 received compensation from the organization, the highest $56,412 (Rhonda Horick, Executive Director).
- How much revenue does THE SPINA BIFIDA COALITION INC have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $183,729, expenses of $145,965 and total assets of $102,899 at year end.
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