2024-07-15T08:20:20-00:00 2023-12-31 990EZ 2023-01-01 311031092 The Spina Bifida Coalition Inc SPIN 5139231378 PO Box 9852 Cincinnati OH 45209 Rhonda Horick Executive Director 5139231378 2024-07-13 false Rhonda Horick false X 3 AAL1 IAL1 2023 2023-04-26 12:10:37Z X sb-coalition.org X X 128595 X 116377 8866 3352 128595 87379 3148 1522 61692 153741 -25146 121682 5768 102304 121682 102304 121682 102304 121682 102304 X To promote and enhance the lives of all affected by SB. GENERAL PROGRAM-This categaory captures costs associated with keeping our doors open.These expenses include payroll, rent, web hosting utilities As of September 2022 our service area encompasses 105 counties in OH, KY, IN, WV. 84779 SCHOLARSHIPS-We provided 27 scholarships to our stakeholders and their families. These included 20 direct aid for financial assistance, 5 camp/recreation, 1 auto modification and 1 post-secondary. 8683 WALK ROLL PROGRAMMING-The Walk Roll is an annual event held in NE Ohio and the Greater Cincinnati area. 7131 TOUCHPOINTS-is a series of informational links that target issues that occur at developmental milestones. These resources address challenges that occur in lifestyle education at each transitional stage partnering with CCHMC. 1134 SOCIAL EVENTS-In 2023 we held 2 in-person Walk Rolls a virtual 5K. In addition we hosted 3 holiday parties in each of our regions and picnics fishing for our West Virginia families. 3172 CLINIC PROGRAMS- Our stakeholders require hospitalizations so to make their days brighter we provide latex free balloons to inpatients meal tickets to parents. Clinic bags including snacks, activities beverage were also given. 1846 Outreach-This category encompasses marketing materials for events that our organization attends or for presentations that are requested for education regarding SB. 10 COLLABORATIVE PROGRAMS/COMMUNITY PARTNERSHIPS-This category encompasses programs that are cross-disability as well as partnerships with other organizations and foundations. We continue to participate in CCTST with CCHMC. 2082 ADULT/TEEN PROGRAMMING-We provide various programming both inperson virtual for adults and teens. Our aduts have a bi-monthly lunch, bi-weekly virtual craft hour virtual monthly adult hangout. Teens participate in SB sync. 1728 REGIONAL CONFERENCE-We held a regional conference in November which provided a unique opportunity to learn about issues related to SB from regional experts while having fun with family freinds. More expenses to follow in 2024. 1739 LEARN LUNCH LAUGH-This series provided educational opportunities for parents/caregivers while their children attended an activity during this time. A light lunch was provided with time for families to connect. 1443 RESEARCH ORGANIZATIONS-In partnership with CCHMC we are conducting research activities relevant to transition for our teens and young adults. Information generated impacts our programming needs for our stakeholders of all ages. 2237 115984 Rhonda Horick Executive Director 032.00 52000 Diane Burns Program Manager 017.00 20377 Alexis Allen Communications Assistant 003.00 2840 Jimmi Byington Board Chair 002.00 0 Sherri Davis Vice Chair 002.00 0 Anthony Giangrande Secretary 002.00 0 Angel Burton Treasurer 002.00 0 Greg Savilla Director 002.00 0 Amy Wix Director 002.00 0 Judy Albert Director 002.00 0 Kelly Johnson Director 002.00 0 Joshua Kayes Director 002.00 0 Ashley Mitchell Director 002.00 0 Lori Stewart Director 002.00 0 Jenetta Thomas Director 002.00 0 Kim Slocombe Director 002.00 0 Irene Dietz MD Director 002.00 0 Elizabeth Hansford Administrative Asst 008.00 1517 Emily Jones Program Assistant 008.00 2176 Sarah Jones EO/WV Coordinator 002.00 342 false false false false false false false false 0 0 0 false false OH Rhonda Horick PO Box 9852 Cincinnati OH 45209 5139231378 false false false false false false false false false false false false false NONE NONE true X 111678 102108 159952 102971 125243 601952 111678 102108 159952 102971 125243 601952 601952 2482 2322 4958 3609 3352 16723 618675 0.97300 0.97170 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part III, Line 31 TOUCHPOINTS-is a series of informational links that target issues that occur at developmental milestones. These resources address challenges that occur in lifestyle education at each transitional stage partnering with CCHMC. Grants and allocations 0, Program service expenses 1,134 Form 990-EZ, Part III, Line 31 SOCIAL EVENTS-In 2023 we held 2 in-person Walk Rolls a virtual 5K. In addition we hosted 3 holiday parties in each of our regions and picnics fishing for our West Virginia families. Grants and allocations 0, Program service expenses 3,172 Form 990-EZ, Part III, Line 31 CLINIC PROGRAMS- Our stakeholders require hospitalizations so to make their days brighter we provide latex free balloons to inpatients meal tickets to parents. Clinic bags including snacks, activities beverage were also given. Grants and allocations 0, Program service expenses 1,846 Form 990-EZ, Part III, Line 31 Outreach-This category encompasses marketing materials for events that our organization attends or for presentations that are requested for education regarding SB. Grants and allocations 0, Program service expenses 10 Form 990-EZ, Part III, Line 31 COLLABORATIVE PROGRAMS/COMMUNITY PARTNERSHIPS-This category encompasses programs that are cross-disability as well as partnerships with other organizations and foundations. We continue to participate in CCTST with CCHMC. Grants and allocations 0, Program service expenses 2,082 Form 990-EZ, Part III, Line 31 ADULT/TEEN PROGRAMMING-We provide various programming both inperson virtual for adults and teens. Our aduts have a bi-monthly lunch, bi-weekly virtual craft hour virtual monthly adult hangout. Teens participate in SB sync. Grants and allocations 0, Program service expenses 1,728 Form 990-EZ, Part III, Line 31 REGIONAL CONFERENCE-We held a regional conference in November which provided a unique opportunity to learn about issues related to SB from regional experts while having fun with family freinds. More expenses to follow in 2024. Grants and allocations 0, Program service expenses 1,739 Form 990-EZ, Part III, Line 31 LEARN LUNCH LAUGH-This series provided educational opportunities for parents/caregivers while their children attended an activity during this time. A light lunch was provided with time for families to connect. Grants and allocations 0, Program service expenses 1,443 Form 990-EZ, Part III, Line 31 RESEARCH ORGANIZATIONS-In partnership with CCHMC we are conducting research activities relevant to transition for our teens and young adults. Information generated impacts our programming needs for our stakeholders of all ages. Grants and allocations 0, Program service expenses 2,237 Form 990-EZ, Part I, Line 16, Other Expenses Travel 7,106 Form 990-EZ, Part I, Line 16, Other Expenses Meals and entertainment 367 Form 990-EZ, Part I, Line 16, Other Expenses Conferences, conventions, and meetings 777 Form 990-EZ, Part I, Line 16, Other Expenses Bank Fees 4,232 Form 990-EZ, Part I, Line 16, Other Expenses Dues Subscriptions 421 Form 990-EZ, Part I, Line 16, Other Expenses Employee Training 265 Form 990-EZ, Part I, Line 16, Other Expenses Insurance-General Liability 1,082 Form 990-EZ, Part I, Line 16, Other Expenses DO Insurance 976 Form 990-EZ, Part I, Line 16, Other Expenses Programs Events 10,381 Form 990-EZ, Part I, Line 16, Other Expenses License Fees 194 Form 990-EZ, Part I, Line 16, Other Expenses Walk Expenses 10,021 Form 990-EZ, Part I, Line 16, Other Expenses Program Resource Materials 2,676 Form 990-EZ, Part I, Line 16, Other Expenses Scholarships Awards 8,665 Form 990-EZ, Part I, Line 16, Other Expenses Organizational Support 1,120 Form 990-EZ, Part I, Line 16, Other Expenses Telephone Internet 338 Form 990-EZ, Part I, Line 16, Other Expenses Software Subscriptions 5,529 Form 990-EZ, Part I, Line 16, Other Expenses Website 4,239 Form 990-EZ, Part I, Line 16, Other Expenses Workers Compensation 134 Form 990-EZ, Part I, Line 16, Other Expenses Technology Subscriptions 889 Form 990-EZ, Part I, Line 16, Other Expenses Board Development 256 Form 990-EZ, Part I, Line 16, Other Expenses Marketing Materials 1,397 Form 990-EZ, Part I, Line 16, Other Expenses Office Supplies 327 Form 990-EZ, Part I, Line 16, Other Expenses Office Equipment 300 Form 990-EZ, Part I, Line 20, Net Assets Unrealized Loss on Investments 5,768