2025-07-13T06:15:08-00:00 2024-12-31 990EZ 2024-01-01 311031092 The Spina Bifida Coalition Inc SPIN 5139231378 PO Box 9852 Cincinnati OH 45209 Rhonda Horick Executive Director 5139231378 2025-07-12 false 2024 2025-03-06 01:10:19Z X sb-coalition.org X X 122555 X 120254 2301 122555 77726 559 4011 1084 80758 164138 -41583 102304 2924 63645 102304 63645 102304 63645 102304 63645 X To promote and enhance the lives of all affected by SB. GENERAL PROGRAM-This categaory captures costs associated with keeping our doors open.These expenses include payroll, rent, web hosting utilities. Our service area encompasses 105 counties in OH, KY, IN, WV. 75586 SCHOLARSHIPS-We provided 29 scholarships to our stakeholders and their families. These included 20 direct aid for financial assistance, 6 camp/recreation, 1 auto modification and 2 post-secondary. 9692 WALK ROLL PROGRAMMING-The Walk Roll is an annual event held in NE Ohio and the Greater Cincinnati area. 16943 TOUCHPOINTS-is a series of informational links that target issues that occur at developmental milestones. These resources address challenges that occur in lifestyle education at each transitional stage partnering with CCHMC. 150 SOCIAL EVENTS-In 2024 we held 2 in-person Walk Rolls but due to weather our Cinti.walk was virtual. In addition we hosted 3 holiday parties in each of our regions and picnics fishing for our West Virginia families. 4699 CLINIC PROGRAMS- Our stakeholders require hospitalizations so to make their days brighter we provide latex free balloons to inpatients meal tickets to parents. Clinic bags including snacks, activities beverage were also given. 2022 COLLABORATIVE PROGRAMS/COMMUNITY PARTNERSHIPS-This category encompasses programs that are cross-disability as well as partnerships with other organizations and foundations. We continue to participate in CCTST with CCHMC. 1098 ADULT/TEEN PROGRAMMING-We provide various programming both inperson virtual for adults and teens. Our aduts have a bi-monthly lunch, quarterly virtual craft hour virtual monthly adult hangout. Teens participate in SB sync. 2058 REGIONAL CONFERENCE-We held a regional conference in November 2023 which provided a unique opportunity to learn about issues related to SB from regional experts while having fun with family freinds. 19481 TEXTING PROGRAM-Allows our organization to share upcoming events and programming with our community. Texts are sent a maximum of 4 times per month. This program has increased our program attendance by 92. 166 ADVOCACY-This category captures expenses related to advocacy efforts on behalf of the organization. This includes mileage for attending monthly meetings and workshops related to advocacy efforts related to spina bifida. 1238 133133 Rhonda Horick Executive Director 032.00 56412 Diane Burns Program Manager 017.00 3700 Alexis Allen Communications Assistant 003.00 1537 Kim Slocombe Vice Chair 002.00 0 Anthony Giangrande Board Chair 002.00 0 Angel Burton Treasurer 002.00 0 Amy Wix Secretary 002.00 0 Judy Albert Director 002.00 0 Kelly Johnson Director 002.00 0 Joshua Kayes Director 002.00 0 Melanie Dresch Director 002.00 0 Jenetta Thomas Director 002.00 0 Sherri Davis Director 002.00 0 Irene Dietz MD Director 002.00 0 Elizabeth Hansford Administrative Asst 008.00 943 Emily Jones Program Assistant 008.00 404 Diane Burns Research Coordinator 002.00 785 Kevin Grosskoph Program Manager AAD 008.00 3562 Lisa Schmidt Program Manager Youth 008.00 3255 Greg Savilla Director 002.00 0 false false false false false false false 0 0 0 false false OH Rhonda Horick PO Box 9852 Cincinnati OH 45209 5139231378 false false false false false false false false false false false NONE NONE true X 102108 159952 102971 125243 120254 610528 102108 159952 102971 125243 120254 610528 610528 2322 4958 3609 3352 2301 16542 627070 0.97360 0.97300 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part III, Line 31 TOUCHPOINTS-is a series of informational links that target issues that occur at developmental milestones. These resources address challenges that occur in lifestyle education at each transitional stage partnering with CCHMC. Grants and allocations 0, Program service expenses 150 Form 990-EZ, Part III, Line 31 SOCIAL EVENTS-In 2024 we held 2 in-person Walk Rolls but due to weather our Cinti.walk was virtual. In addition we hosted 3 holiday parties in each of our regions and picnics fishing for our West Virginia families. Grants and allocations 0, Program service expenses 4,699 Form 990-EZ, Part III, Line 31 CLINIC PROGRAMS- Our stakeholders require hospitalizations so to make their days brighter we provide latex free balloons to inpatients meal tickets to parents. Clinic bags including snacks, activities beverage were also given. Grants and allocations 0, Program service expenses 2,022 Form 990-EZ, Part III, Line 31 COLLABORATIVE PROGRAMS/COMMUNITY PARTNERSHIPS-This category encompasses programs that are cross-disability as well as partnerships with other organizations and foundations. We continue to participate in CCTST with CCHMC. Grants and allocations 0, Program service expenses 1,098 Form 990-EZ, Part III, Line 31 ADULT/TEEN PROGRAMMING-We provide various programming both inperson virtual for adults and teens. Our aduts have a bi-monthly lunch, quarterly virtual craft hour virtual monthly adult hangout. Teens participate in SB sync. Grants and allocations 0, Program service expenses 2,058 Form 990-EZ, Part III, Line 31 REGIONAL CONFERENCE-We held a regional conference in November 2023 which provided a unique opportunity to learn about issues related to SB from regional experts while having fun with family freinds. Grants and allocations 0, Program service expenses 19,481 Form 990-EZ, Part III, Line 31 TEXTING PROGRAM-Allows our organization to share upcoming events and programming with our community. Texts are sent a maximum of 4 times per month. This program has increased our program attendance by 92. Grants and allocations 0, Program service expenses 166 Form 990-EZ, Part III, Line 31 ADVOCACY-This category captures expenses related to advocacy efforts on behalf of the organization. This includes mileage for attending monthly meetings and workshops related to advocacy efforts related to spina bifida. Grants and allocations 0, Program service expenses 1,238 Form 990-EZ, Part I, Line 16, Other Expenses Travel 6,721 Form 990-EZ, Part I, Line 16, Other Expenses Meals and entertainment 331 Form 990-EZ, Part I, Line 16, Other Expenses Bank Fees 3,102 Form 990-EZ, Part I, Line 16, Other Expenses Dues Subscriptions 477 Form 990-EZ, Part I, Line 16, Other Expenses Insurance-General Liability 1,082 Form 990-EZ, Part I, Line 16, Other Expenses DO Insurance 1,024 Form 990-EZ, Part I, Line 16, Other Expenses License Fees 125 Form 990-EZ, Part I, Line 16, Other Expenses Walk Expenses 15,075 Form 990-EZ, Part I, Line 16, Other Expenses Program Resource Materials 2,317 Form 990-EZ, Part I, Line 16, Other Expenses Scholarships Awards 9,692 Form 990-EZ, Part I, Line 16, Other Expenses Organizational Support 925 Form 990-EZ, Part I, Line 16, Other Expenses Telephone Internet 452 Form 990-EZ, Part I, Line 16, Other Expenses Software Subscriptions 5,412 Form 990-EZ, Part I, Line 16, Other Expenses Website 4,312 Form 990-EZ, Part I, Line 16, Other Expenses Workers Compensation 124 Form 990-EZ, Part I, Line 16, Other Expenses Technology Subscriptions 1,155 Form 990-EZ, Part I, Line 16, Other Expenses Board Development 509 Form 990-EZ, Part I, Line 16, Other Expenses Programs and Events 27,544 Form 990-EZ, Part I, Line 16, Other Expenses Marketing Materials 225 Form 990-EZ, Part I, Line 16, Other Expenses Office Supplies 154 Form 990-EZ, Part I, Line 20, Net Assets Unrealized Gain on Investments 2,924