Nonprofit · EIN 26-4619055
SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION
Also known as SOFT BONES
Tax-exempt · BOONTON, NJ 07005
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $526,669 | $512,217 | $14,452 | $581,577 | $39,798 | $541,779 |
| December 31, 2023 | 990 | $585,208 | $774,511 | -$189,303 | $534,980 | $7,653 | $527,327 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $437,138
- of which government grants
- $13,558
- Program service revenue
- $0
- Investment income
- $25,565
- Net gain from sales of assets
- $3,427
- Net income from fundraising events
- $63,966
- Other revenue
- $63,966
Expenses
- Grants and similar amounts paid
- $30,300
- Compensation of officers, directors and key employees
- $125,000
- Other salaries and wages
- $144,550
- Salaries, compensation and benefits (total)
- $294,295
- Professional fundraising fees
- $0
- Legal fees
- $1,625
- Accounting fees
- $4,435
- Travel
- $11,554
- Program services (functional)
- $437,499
- Management and general (functional)
- $53,796
- Fundraising (functional)
- $20,922
Balance sheet and other
- Total assets, start of year
- $534,980
- Total assets, end of year
- $581,577
- Total liabilities, end of year
- $39,798
- Net assets, end of year
- $541,779
- Net assets without donor restrictions
- $541,779
- Gross receipts
- $589,084
- Employees
- 5
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DENISE M GOODBAR | EXECUTIVE DI Trustee or director | 40 | $125,000 |
| DEBORAH FOWLER | PRESIDENT Officer | 1 | $0 |
| KAREN CAROLONZA | VICE PRESIDE Officer | 1 | $0 |
| MICHELLE LABRUNO | TREASURER Officer | 1 | $0 |
| HEIDI FLOYD | SECRETARY Officer | 1 | $0 |
| ADAM GRENKER ESQ | DIRECTOR Trustee or director | 1 | $0 |
| SCOTT NETTUNE | DIRECTOR Trustee or director | 1 | $0 |
| DR BRENDA ZIEGLER | DIRECTOR Trustee or director | 1 | $0 |
| ROB MOSKOW | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DENISE M GOODBAR | EXECUTIVE DI Trustee or director | 40 | $125,000 |
| DEBORAH FOWLER | PRESIDENT Officer | 1 | $0 |
| KAREN CAROLONZA | VICE PRESIDE Officer | 1 | $0 |
| MICHELLE LABRUNO | TREASURER Officer | 1 | $0 |
| HEIDI FLOYD | SECRETARY Officer | 1 | $0 |
| ADAM GRENKER ESQ | DIRECTOR Trustee or director | 1 | $0 |
| SCOTT NETTUNE | DIRECTOR Trustee or director | 1 | $0 |
| DR BRENDA ZIEGLER | DIRECTOR Trustee or director | 1 | $0 |
| ROB MOSKOW | DIRECTOR Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 121 HAWKINS PLACE SUITE 267, BOONTON, NJ 07005-1127
- In care of
- % DEBORAH SITTIG
- Principal officer (990 for 2024)
- DEBORAH FOWLER
- Signed the 990
- DEBORAH FOWLER, PRESIDENT
- Phone
- (908) 377-8700
- Website
- SOFTBONES.ORG
- Return prepared by
- ODELL & CRITCHLEY PC
Mission
TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS.
Program accomplishments
- EDUCATION & RESOURCE PROGRAM - THE ORGANIZATION PROVIDES FREE EDUCATION & RESOURCES TO THOSE AFFECTED BY THE DISEASE.Expenses $437,499 · grants $30,300
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 26-4619055
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2010
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H50)
- Assets (IRS master file)
- $581,577
- Income (IRS master file)
- $589,084
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $526,669 | $512,217 | $581,577 | XML |
| 990 | December 2023 | $585,208 | $774,511 | $534,980 | XML |
| 990 | December 2022 | $577,885 | $571,864 | $718,813 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-4619055).
Questions about SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION
- What is the EIN of SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION?
- The employer identification number (EIN) of SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION is 26-4619055.
- Is SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2010.
- Are donations to SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION?
- The 990 for the year ended December 31, 2024 names DEBORAH FOWLER.
- Who are the officers and directors of SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 9 people; 1 received compensation from the organization, the highest $125,000 (DENISE M GOODBAR, EXECUTIVE DI).
- How much revenue does SOFT BONES INC THE US HYPOPHOSPHATASIA FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $526,669, expenses of $512,217 and total assets of $581,577 at year end.
Other nonprofits in BOONTON
- THE LAND CONSERVANCY OF NEW JERSEY EIN 22-2378868 · last filed 990 for 2025
- LG ACADEMY A NJ NONPROFIT CORPORATION EIN 84-4750322 · last filed 990 for 2025
- NEW JERSEY HIGHLANDS COALITION EIN 68-0636424 · last filed 990 for 2025
- DEER LAKE CLUB EIN 22-0855390 · last filed 990 for 2025
- BOONTON CONGREGATION OF THE ORATORY OF THE SOCIETY OF ST PHILIP NERI EIN 84-4064161 · last filed 990 for 2025
- UNITED RAILROAD HISTORICAL SOCIETY OF NEW JERSEY INC EIN 22-2867670 · last filed 990 for 2025
- NORTH STARS ASSOCIATION FOR COMPETITIVE GYMNASTICS INC EIN 22-3237957 · last filed 990 for 2025
- BOONTON MAIN STREET EIN 06-1639961 · last filed 990-EZ for 2025