2025-09-09T09:10:00-04:00 2024-12-31 223838551 ODELL & CRITCHLEY PC 127 MAIN STREET CHATHAM NJ 07928 990 2024-01-01 264619055 SOFT BONES INCTHE US SOFT 9083778700 141 HAWKINS PLACE 267 BOONTON NJ 07005 DEBORAH FOWLER PRESIDENT 9734533093 2025-09-08 true true E MICHAEL ODELL CPA P00450038 9733770805 2025-09-08 2024 2025-03-06 01:10:19Z DEBORAH FOWLER 589084 false X SOFTBONES.ORG X TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS. 8 7 5 0 489663 437138 0 24807 25565 70738 63966 585208 526669 52257 30300 0 235458 294295 0 20922 486796 187622 774511 512217 -189303 14452 534980 581577 7653 39798 527327 541779 X TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS. false false 437499 30300 EDUCATION & RESOURCE PROGRAM - THE ORGANIZATION PROVIDES FREE EDUCATION & RESOURCES TO THOSE AFFECTED BY THE DISEASE. 437499 true true false false false false false false false false false false false false true false false false false false false false false false true false false true true false false false false false false false false false false false false false false false false false false true 10 0 5 true false false false false false false false false X 8 7 false false false false false false false true true false false false true true true true true true false false NJ X AMY WAGNER 9083778700 141 HAWKINS PLACE 267 BOONTON NJ 07005 DEBORAH FOWLER PRESIDENT 1.00 X 0 0 0 KAREN CAROLONZA VICE PRESIDE 1.00 X 0 0 0 MICHELLE LABRUNO TREASURER 1.00 X 0 0 0 HEIDI FLOYD SECRETARY 1.00 X 0 0 0 ADAM GRENKER ESQ DIRECTOR 1.00 X 0 0 0 SCOTT NETTUNE DIRECTOR 1.00 X 0 0 0 DR BRENDA ZIEGLER DIRECTOR 1.00 X 0 0 0 ROB MOSKOW DIRECTOR 1.00 X 0 0 0 DENISE M GOODBAR EXECUTIVE DI 40.00 X 125000 0 0 125000 1 false false false 67271 13558 356309 437138 22138 22138 5667 2240 3427 3427 3427 124141 67271 60175 63966 63966 526669 89531 25000 25000 5300 5300 125000 106250 12500 6250 144550 122868 14455 7227 24745 21033 2475 1237 1625 1625 4435 4435 33333 33333 3109 3109 13730 13730 2414 2414 11554 11554 4388 4388 PATIENT ADVOCACY MEETINGS 80390 80390 DUES & SUBSCRIPTIONS 21189 21189 MISCELLANEOUS 6208 6208 PATIENT GIFTS 2245 2245 3002 2814 188 512217 437499 53796 20922 62729 155159 463829 426418 6333 2089 534980 581577 2693 2828 25000 4960 11970 7653 39798 X 527327 541779 527327 541779 534980 581577 14452 X false false false X 441067 490511 505212 489663 437138 2363591 441067 490511 505212 489663 437138 2363591 2363591 175 93 4573 24807 22138 51786 45457 45457 2460834 647042 0.96050 0.91870 X PART II, LINE 10 SEE SUPPLEMENTAL INFORMATION 0 SUPPLEMENTAL INFORMATION CAPITAL GAINS 3,427 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED CREDIT CARDS PAYABLE 11970 11970 ANNUAL GOLF OUT 176567 65496 111071 51727 DENIM & DIAMOND 14845 1775 13070 8448 191412 67271 124141 60175 60175 63966 true SANFORD BURNHAM PREBYS MEDICAL DISCOVERY INSTITUTE 10901 NORTH TORREY PINES RD LA JOLLA CA 92037 510197108 25000 RESEARCH TRAVEL ASSIST TO PATIENTS 17 5300 SCHEDULE I, PAGE 1, PART I, LINE 2 APPLICATIONS ARE RECEIVED BY THE ORGANIZATION IN RESPONSE TO GRANTS MADE AVAILABLE TO OTHER ORGANIZATIONS. THE APPLICATION IS REVIEWED BY DENISE GOODBAR TO AUTHORIZE THE ONE TIME GRANT WITHOUT GRANT MONITORING. GRANT FUNDS ARE PAID DIRECTLY TO THE GRANT AWARDEE. FORM 990 - ORGANIZATION'S MISSION TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS. FORM 990, PAGE 6, PART VI, LINE 11B FORM 990 IS PREPARED BY AN OUTSIDE ACCOUNTING FIRM AND GIVEN TO THE EXECUTIVE DIRECTOR, PRESIDENT, AND TREASURER FOR REVIEW AND APPROVAL BEFORE IT IS FILED WITH THE IRS. FORM 990, PAGE 6, PART VI, LINE 12C THE ORGANIZATION ENFORCES ITS CONFLICTS OF INTEREST POLICY BY REQUIRING ALL BOARD MEMBERS, OFFICERS, AND EMPLOYEES TO DISCLOSE ANY FINANCIAL INTEREST THEY OR THEIR FAMILY MEMBERS HAVE IN ANY COMPANY THAT DOES BUSINESS WITH THE ORGANIZATION. THIS IS A CONTINUING OBLIGATION AND IS RENEWED ANNUALLY FOR COMPLIANCE. FORM 990, PAGE 6, PART VI, LINE 15A COMPENSATION OF THE ORGANIZATION'S EXECUTIVE DIRECTOR IS DETERMINED BY THE BOARD OF DIRECTORS, WHICH CONSIDERS INDIVIDUAL ACCOMPLISHMENTS, ORGANIZATIONAL PERFORMANCE, AND COMPARABLE COMPENSATION DATA. YEARLY COMPENSATION IS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS THROUGH A VOTE. FORM 990, PAGE 6, PART VI, LINE 19 CONSISTENT WITH ITS OBLIGATIONS UNDER STATUTORY LAW, RULES AND REGULATIONS, AS APPLICABLE, THE ORGANIZATION MAKES ITS DOCUMENTS, SUCH AS ITS APPLICATION FOR TAX EXEMPTION, ANNUAL INFORMATION RETURNS, CONFLICT OF INTEREST POLICY, AND GOVERNING DOCUMENTS, AVAILABLE THROUGH PUBLIC FILINGS AND/OR ON WRITTEN REQUEST, EITHER BY PROVIDING COPIES OR MAKING THEM AVAILABLE FOR INSPECTION AT THE OFFICES OF THE ORGANIZATION.