Nonprofit · EIN 26-3531031
FAMILIAL DYSAUTONOMIA NOW FOUNDATION
Also known as FD NOW
Tax-exempt · SKOKIE, IL 60077
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| July 31, 2025 | 990 | $289,025 | $233,939 | $55,086 | $1,146,133 | $0 | $1,146,133 |
| July 31, 2024 | 990 | $298,955 | $235,102 | $63,853 | $1,084,316 | $0 | $1,084,316 |
| July 31, 2023 | 990 | $363,863 | $226,852 | $137,011 | $1,031,053 | $0 | $1,031,053 |
Financial details: 990 for the year ended July 31, 2025
Revenue
- Contributions, gifts and grants
- $244,764
- Program service revenue
- $0
- Investment income
- $44,207
- Net gain from sales of assets
- $41
- Other revenue
- $54
Expenses
- Grants and similar amounts paid
- $176,400
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Travel
- $2,252
- Program services (functional)
- $217,915
- Management and general (functional)
- $16,024
Balance sheet and other
- Total assets, start of year
- $1,084,316
- Total assets, end of year
- $1,146,133
- Total liabilities, end of year
- $0
- Net assets, end of year
- $1,146,133
- Publicly traded securities
- $1,126,050
- Net assets without donor restrictions
- $1,146,133
- Gross receipts
- $328,184
- Employees
- 0
- Volunteers
- 8
- Year formed
- 2009
- State of legal domicile
- IL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended July 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ANN SLAW JD | PRESIDENT Trustee or director, Officer | 40 | $0 |
| KEN SLAW PHD | VICE PRESIDENT Trustee or director, Officer | 4 | $0 |
| ANDREA GREENFIELD | TREASURER Trustee or director, Officer | 4 | $0 |
| RUTH WOODRUFF JD | ADVISORY BOARD Trustee or director | 1 | $0 |
| TARA D SCHIMMEL MS ED | NY REGIONAL REPRESENTATIVE Trustee or director | 1 | $0 |
| CAROL ALTERMAN RN | fl regional representative Trustee or director | 1 | $0 |
| pat white | advisory board Trustee or director | 1 | $0 |
| Terry finesmith horwich jd | aDVISORY BOARD Trustee or director | 1 | $0 |
990 for the year ended July 31, 2024: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ANN SLAW JD | PRESIDENT Trustee or director, Officer | 40 | $0 |
| KEN SLAW PHD | VICE PRESIDENT Trustee or director, Officer | 4 | $0 |
| ANDREA GREENFIELD | TREASURER Trustee or director, Officer | 4 | $0 |
| RUTH WOODRUFF JD | ADVISORY BOARD Trustee or director | 1 | $0 |
| TARA D SCHIMMEL MS ED | NY REGIONAL REPRESENTATIVE Trustee or director | 1 | $0 |
| CAROL ALTERMAN RN | fl regional representative Trustee or director | 1 | $0 |
| pat white | advisory board Trustee or director | 1 | $0 |
| Terry finesmith horwich jd | aDVISORY BOARD Trustee or director | 1 | $0 |
990 for the year ended July 31, 2023: 8 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ANN SLAW JD | PRESIDENT Trustee or director, Officer | 40 | $0 |
| KEN SLAW PHD | VICE PRESIDENT Trustee or director, Officer | 4 | $0 |
| ANDREA GREENFIELD | TREASURER Trustee or director, Officer | 4 | $0 |
| RUTH WOODRUFF JD | ADVISORY BOARD Trustee or director | 1 | $0 |
| TARA D SCHIMMEL MS ED | NY REGIONAL REPRESENTATIVE Trustee or director | 1 | $0 |
| CAROL ALTERMAN RN | fl regional representative Trustee or director | 1 | $0 |
| pat white | advisory board Trustee or director | 1 | $0 |
| Terry finesmith horwich jd | aDVISORY BOARD Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 9655 WOODS DR UNIT 1910, SKOKIE, IL 60077-4435
- In care of
- % ANN SLAW
- Principal officer (990 for 2024)
- ANN SLAW, 1170 Green Knolls Drive, Buffalo Grove, IL 60089
- Signed the 990
- ANN SLAW, PRESIDENT
- Phone
- (847) 913-0455
- Website
- www.fdnow.org
- Return prepared by
- DESMOND & AHERN LTD
Mission
TO DISCOVER NEW TREATMENTS AND CURES FOR PATIENTS WITH FAMILIAL DYSAUTONOMIA, A RARE, FATAL, GENETIC NEUROLOGICAL DISEASE PRESENT AT BIRTH
Program accomplishments
- TO DISCOVER NEW TREATMENTS AND CURES FOR PATIENTS WITH FAMILIAL DYSAUTONOMIA, A RARE, FATAL, GENETIC NEUROLOGICAL DISEASE PRESENT AT BIRTHExpenses $217,915 · grants $176,400 · revenue $54
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in July, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | July 31, 2026 | December 15, 2026 | Not due yet |
| 2024 | July 31, 2025 | December 15, 2025 | 990 on file |
| 2023 | July 31, 2024 | December 16, 2024 | 990 on file |
IRS record
- EIN
- 26-3531031
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2009
- Accounting year ends
- July
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H110)
- Assets (IRS master file)
- $1,146,133
- Income (IRS master file)
- $328,184
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | July 2025 | $289,025 | $233,939 | $1,146,133 | XML |
| 990 | July 2024 | $298,955 | $235,102 | $1,084,316 | XML |
| 990 | July 2023 | $363,863 | $226,852 | $1,031,053 | XML |
| 990 | July 2022 | $293,462 | $226,342 | $882,138 | IRS |
| 990 | July 2021 | – | – | – | IRS |
| 990 | July 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 26-3531031).
Questions about FAMILIAL DYSAUTONOMIA NOW FOUNDATION
- What is the EIN of FAMILIAL DYSAUTONOMIA NOW FOUNDATION?
- The employer identification number (EIN) of FAMILIAL DYSAUTONOMIA NOW FOUNDATION is 26-3531031.
- Is FAMILIAL DYSAUTONOMIA NOW FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2009.
- Are donations to FAMILIAL DYSAUTONOMIA NOW FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FAMILIAL DYSAUTONOMIA NOW FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FAMILIAL DYSAUTONOMIA NOW FOUNDATION due?
- The return for tax year 2025 (the year ending July 31, 2026) is due December 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FAMILIAL DYSAUTONOMIA NOW FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended July 2025.
- Who is the principal officer of FAMILIAL DYSAUTONOMIA NOW FOUNDATION?
- The 990 for the year ended July 31, 2025 names ANN SLAW.
- Who are the officers and directors of FAMILIAL DYSAUTONOMIA NOW FOUNDATION?
- The 990 for the year ended July 31, 2025 lists 8 people; 0 received compensation from the organization.
- How much revenue does FAMILIAL DYSAUTONOMIA NOW FOUNDATION have?
- On its 990 for the year ended July 31, 2025 it reported revenue of $289,025, expenses of $233,939 and total assets of $1,146,133 at year end.
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