Nonprofit · EIN 22-3115041
HHT FOUNDATION INTERNATIONAL INC
Also known as HEREDITARY HEMORRHAGIC TELANGIECTAS
Tax-exempt · COCKEYSVILLE, MD 21030
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| June 30, 2025 | 990 | $9,841,516 | $7,129,175 | $2,712,341 | $8,133,180 | $962,042 | $7,171,138 |
| June 30, 2024 | 990 | $6,790,311 | $5,251,461 | $1,538,850 | $5,213,609 | $809,199 | $4,404,410 |
| June 30, 2023 | 990 | $3,740,865 | $4,069,058 | -$328,193 | $3,515,746 | $680,335 | $2,835,411 |
Financial details: 990 for the year ended June 30, 2025
Revenue
- Contributions, gifts and grants
- $9,245,580
- of which government grants
- $4,416,977
- Program service revenue
- $470,997
- Investment income
- $134,970
- Net gain from sales of assets
- $24,469
- Net income from fundraising events
- -$17,862
- Other revenue
- -$10,031
Expenses
- Grants and similar amounts paid
- $2,385,005
- Compensation of officers, directors and key employees
- $420,856
- Other salaries and wages
- $758,456
- Salaries, compensation and benefits (total)
- $1,354,761
- Professional fundraising fees
- $134,000
- Occupancy
- $14,171
- Travel
- $91,656
- Depreciation
- $1,864
- Program services (functional)
- $6,146,108
- Management and general (functional)
- $612,535
- Fundraising (functional)
- $370,532
Balance sheet and other
- Total assets, start of year
- $5,213,609
- Total assets, end of year
- $8,133,180
- Total liabilities, end of year
- $962,042
- Net assets, end of year
- $7,171,138
- Land, buildings and equipment
- $1,703
- Publicly traded securities
- $3,430,897
- Net assets without donor restrictions
- $3,347,720
- Net assets with donor restrictions
- $3,823,418
- Gross receipts
- $10,713,422
- Employees
- 19
- Volunteers
- 13
- Year formed
- 1990
- State of legal domicile
- MD
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended June 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARIANNE CLANCY | EXECUTIVE DIRECTOR Officer | 40 | $199,190 | $35,561 |
| MELISSA DICKEY | DIRECTOR, NAT'L HHT COORDINATING CENTER Highest-paid employee | 40 | $145,845 | $13,525 |
| STEFANIE-NICOLE SCHAEFER | CHIEF OPERATING OFFICER Officer | 40 | $114,106 | $22,165 |
| JOHN DUNN | PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| GABRIELLA CHOI | VICE PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| MARC TOPAZ ESQ | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| KAREN SILBER WEISSEL PHD | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| ANTHONY ANZELL PHD | MEMBER Trustee or director | 1 | $0 | $0 |
| SCOTT BOATWRIGHT | MEMBER Trustee or director | 1 | $0 | $0 |
| HOWARD LICHTIG | MEMBER Trustee or director | 1 | $0 | $0 |
| MARIJO MCCUNE | MEMBER Trustee or director | 1 | $0 | $0 |
| MIKE NOLAN | MEMBER Trustee or director | 1 | $0 | $0 |
| BRANDON PROBST PHD | MEMBER Trustee or director | 1 | $0 | $0 |
| DENNIS SPRECHER MD | MEMBER Trustee or director | 1 | $0 | $0 |
| TERRY THOMPSON JR | MEMBER Trustee or director | 1 | $0 | $0 |
1 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DENNIS ROUTLEDGE | MEMBER EMERITUS Trustee or director | 1 | $0 |
990 for the year ended June 30, 2024: 20 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARIANNE CLANCY | EXECUTIVE DIRECTOR Officer | 40 | $183,462 | $32,974 |
| MELISSA DICKEY | DIRECTOR, NAT'L HHT COORDINATING CENTER Highest-paid employee | 40 | $141,292 | $9,410 |
| STEFANIE-NICOLE SCHAEFER | CHIEF OPERATING OFFICER Officer | 40 | $114,154 | $19,789 |
| JOHN DUNN | PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| BENJAMIN HOLT ESQ | VICE-PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| MARC TOPAZ ESQ | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| SAVANAH BENHART | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| ANTHONY ANZELL PHD | MEMBER Trustee or director | 1 | $0 | $0 |
| SCOTT BOATWRIGHT | MEMBER Trustee or director | 1 | $0 | $0 |
| GABRIELLA CHOI | MEMBER Trustee or director | 1 | $0 | $0 |
| JIM LAPIDES | MEMBER Trustee or director | 1 | $0 | $0 |
| HOWARD LICHTIG | MEMBER Trustee or director | 1 | $0 | $0 |
| MARIJO MCCUNE | MEMBER Trustee or director | 1 | $0 | $0 |
| SCOTT OLITSKY MD | MEMBER Trustee or director | 1 | $0 | $0 |
| BRANDON PROBST PHD | MEMBER Trustee or director | 1 | $0 | $0 |
| DENNIS SPRECHER MD | MEMBER Trustee or director | 1 | $0 | $0 |
| KAREN SILBER WEISSEL PHD | MEMBER Trustee or director | 1 | $0 | $0 |
| ANN TRUSSELL | MEMBER Trustee or director | 1 | $0 | $0 |
| ROBERT BERKMAN | MEMBER EMERITUS Trustee or director | 1 | $0 | $0 |
| DENNIS ROUTLEDGE | MEMBER EMERITUS Trustee or director | 1 | $0 | $0 |
990 for the year ended June 30, 2023: 21 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| MARIANNE CLANCY | EXECUTIVE DIRECTOR Officer | 40 | $167,703 | $12,762 |
| STEFANIE-NICOLE SCHAEFER | CHIEF OPERATING OFFICER Officer | 40 | $103,340 | $5,736 |
| GARY SAUM | FORMER DIRECTOR Highest-paid employee | 40 | $108,746 | $0 |
| ANN TRUSSELL | MEMBER Trustee or director | 1 | $0 | $0 |
| ANTHONY ANZELL PHD | MEMBER Trustee or director | 1 | $0 | $0 |
| BENJAMIN HOLT ESQ | VICE PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| BRANDON PROBST PHD | MEMBER Trustee or director | 1 | $0 | $0 |
| DENNIS ROUTLEDGE | MEMBER EMERITUS Trustee or director | 1 | $0 | $0 |
| DENNIS SPRECHER MD | MEMBER Trustee or director | 1 | $0 | $0 |
| GABRIELLA CHOI | MEMBER Trustee or director | 1 | $0 | $0 |
| HOWARD LICHTIG | MEMBER Trustee or director | 1 | $0 | $0 |
| JIM LAPIDES | MEMBER Trustee or director | 1 | $0 | $0 |
| JOHN DUNN | PRESIDENT Trustee or director, Officer | 1 | $0 | $0 |
| KAREN SILBER WEISSEL PHD | MEMBER Trustee or director | 1 | $0 | $0 |
| MARC TOPAZ ESQ | TREASURER Trustee or director, Officer | 1 | $0 | $0 |
| MARIJO MCCUNE | MEMBER Trustee or director | 1 | $0 | $0 |
| ROBERT BERKMAN | MEMBER EMERITUS Trustee or director | 1 | $0 | $0 |
| SARA PALMER PHD | PAST PRESIDENT Trustee or director | 1 | $0 | $0 |
| SAVANAH SCHOTT | SECRETARY Trustee or director, Officer | 1 | $0 | $0 |
| SCOTT BOATWRIGHT | MEMBER Trustee or director | 1 | $0 | $0 |
| SCOTT OLITSKY MD | MEMBER Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 12 GALLOWAY AVENUE, COCKEYSVILLE, MD 21030-4931
- In care of
- % MARIANNE CLANCY
- Principal officer (990 for 2024)
- MARIANNE CLANCY, PO BOX 329, MONKTON, MD 21111
- Signed the 990
- MARIANNE CLANCY, CEO AND MANAGING DIRECTOR
- Phone
- (410) 357-9932
- Website
- WWW.CUREHHT.ORG
- Return prepared by
- UHY ADVISORS MID-ATLANTIC INC
Mission
HHT FOUNDATION INTERNATIONAL, INC. IS A NOT-FOR-PROFIT ORGANIZATION DEDICATED TO SERVING INDIVIDUALS AFFECTED BY HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT). THE ORGANIZATION PROVIDES INFORMATION TO PATIENTS, FAMILY MEMBERS, AND HEALTHCARE PROFESSIONALS; OFFERS SUPPORT AND COMMUNITY FOR PATIENTS AND THEIR FAMILIES; RAISES FUNDS TO ADVANCE BASIC AND CLINICAL RESEARCH; AND SPONSORS RESEARCH GRANTS TO PROMOTE SCIENTIFIC STUDIES FOCUSED ON HHT.
Program accomplishments
- RESEARCH - THE RESEARCH PROGRAM SUPPORTS FUNDING FOR STUDIES THAT ADVANCE UNDERSTANDING OF THE UNDERLYING MECHANISMS OF HHT, FOSTERS THE DEVELOPMENT OF NOVEL THERAPEUTIC APPROACHES FOR TREATMENT AND DISEASE MANAGEMENT, AND PROMOTES TRANSLATIONAL RESEARCH THAT LEADS TO MULTI-CENTER CLINICAL TRIALS. IN ADDITION, THE HHT INTERNATIONAL SCIENTIFIC CONFERENCE IS HELD BIENNIALLY TO FACILITATE COLLABORATION AND THE EXCHANGE OF SCIENTIFIC KNOWLEDGE AMONG RESEARCHERS AND CLINICIANS.Expenses $5,435,882 · grants $2,385,005
- EDUCATION - THE GOAL OF THE EDUCATION PROGRAM IS TO ADVANCE AWARENESS, ACCURATE DIAGNOSIS, AND BEST-PRACTICE TREATMENT OF HHT BY SUPPORTING PATIENT EDUCATION AND OUTREACH, SPONSORING EDUCATIONAL CONFERENCES AND PROFESSIONAL MEETINGS, AND STRENGTHENING A NETWORK OF COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE.Expenses $390,312 · revenue $470,997
- PUBLIC INFORMATION - THE GOAL OF THE PUBLIC INFORMATION PROGRAM IS TO INCREASE AWARENESS OF HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) AMONG THE GENERAL PUBLIC, PRIVATE SECTOR, AND GOVERNMENTAL AUDIENCES THROUGH STRATEGIC ENGAGEMENT WITH THE PRESS AND OTHER MEDIA CHANNELS.Expenses $290,891
- ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO REPRESENT AND SUPPORT INDIVIDUALS AFFECTED BY HHT BY ADVANCING RECOGNITION OF THE DISORDER AND SECURING FUNDING TO EXPAND AWARENESS EFFORTS, IMPROVE ACCESS TO EXPERT CARE, AND PROMOTE PARTICIPATION IN CLINICAL TRIALS.Expenses $29,023
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | June 30, 2026 | November 16, 2026 | Not due yet |
| 2024 | June 30, 2025 | November 17, 2025 | 990 on file |
| 2023 | June 30, 2024 | November 15, 2024 | 990 on file |
IRS record
- EIN
- 22-3115041
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1991
- Accounting year ends
- June
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Community improvement and capacity building (S41Z)
- Assets (IRS master file)
- $8,133,180
- Income (IRS master file)
- $10,713,422
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | June 2025 | $9,841,516 | $7,129,175 | $8,133,180 | XML |
| 990 | June 2024 | $6,790,311 | $5,251,461 | $5,213,609 | XML |
| 990 | June 2023 | $3,740,865 | $4,069,058 | $3,515,746 | XML |
| 990 | June 2022 | $2,377,085 | $1,884,387 | $3,323,287 | IRS |
| 990 | June 2021 | – | – | – | IRS |
| 990 | June 2019 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 22-3115041).
Questions about HHT FOUNDATION INTERNATIONAL INC
- What is the EIN of HHT FOUNDATION INTERNATIONAL INC?
- The employer identification number (EIN) of HHT FOUNDATION INTERNATIONAL INC is 22-3115041.
- Is HHT FOUNDATION INTERNATIONAL INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1991.
- Are donations to HHT FOUNDATION INTERNATIONAL INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does HHT FOUNDATION INTERNATIONAL INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of HHT FOUNDATION INTERNATIONAL INC due?
- The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did HHT FOUNDATION INTERNATIONAL INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended June 2025.
- Who is the principal officer of HHT FOUNDATION INTERNATIONAL INC?
- The 990 for the year ended June 30, 2025 names MARIANNE CLANCY.
- Who are the officers and directors of HHT FOUNDATION INTERNATIONAL INC?
- The 990 for the year ended June 30, 2025 lists 16 people; 3 received compensation from the organization, the highest $199,190 (MARIANNE CLANCY, EXECUTIVE DIRECTOR).
- How much revenue does HHT FOUNDATION INTERNATIONAL INC have?
- On its 990 for the year ended June 30, 2025 it reported revenue of $9,841,516, expenses of $7,129,175 and total assets of $8,133,180 at year end.
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