2024-05-01T14:15:01-05:00 2023-06-30 260794367 UHY ADVISORS MID-ATLANTIC INC 8601 ROBERT FULTON DRIVE SUITE 210 COLUMBIA MD 21046 990 2022-07-01 223115041 HHT FOUNDATION HHTF 4103579932 PO BOX 329 MONKTON MD 21111 MARIANNE CLANCY EXECUTIVE DIRECTOR 4103579932 2024-04-23 1 MARIANNE CLANCY 999009999 0 KATSIARYNA VASILIEV P02167272 4107205220 2024-04-23 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z CURE HHT MARIANNE CLANCY PO BOX 329 MONKTON MD 21111 4440678 0 X WWW.CUREHHT.ORG X 1990 MD HHT INTERNATIONAL, INC IS A NOT-FOR-PROFIT ORGANIZATION ORGANIZED TO PROVIDE INFORMATION ABOUT HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) TO PATIENTS, FAMILY MEMBERS AND PHYSICIANS, OPERATE AS A SUPPORT GROUP FOR PATIENTS AND FAMILY MEMBERS, RAISE FUNDS FOR BASIC AND CLINICAL RESEARCH, AND SPONSOR RESEARCH GRANTS FOR STUDIES RELATING TO HHT. 18 18 18 0 0 0 2356154 3263861 23936 410107 15516 69101 -18521 -2204 2377085 3740865 29900 1702745 0 0 741258 1089364 0 0 77272 1113229 1276949 1884387 4069058 492698 -328193 3323287 3515746 178682 680335 3144605 2835411 X HHT INTERNATIONAL, INC IS A NOT-FOR-PROFIT ORGANIZATION ORGANIZED TO PROVIDE INFORMATION ABOUT HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) TO PATIENTS, FAMILY MEMBERS AND PHYSICIANS, OPERATE AS A SUPPORT GROUP FOR PATIENTS AND FAMILY MEMBERS, RAISE FUNDS FOR BASIC AND CLINICAL RESEARCH, AND SPONSOR RESEARCH GRANTS FOR STUDIES RELATING TO HHT. 0 0 2443402 1702745 RESEARCH - THE RESEARCH PROGRAM IS SUPPORTIVE IN FUNDING RESEARCH FOR THE UNDERSTANDING OF THE MECHANISM OF HHT DISEASE, NOVEL THERAPEUTIC APPROACHES TO TREATMENT AND MANAGEMENT, AND TRANSLATIONAL RESEARCH LEADING TO MULTI-CENTER TRIALS. THE HHT INTERNATIONAL SCIENTIFIC CONFERENCE IS HELD EVERY OTHER YEAR. 860601 410109 EDUCATION - THE GOAL OF THE EDUCATION PROGRAM IS TO PROMOTE EDUCATION, DIAGNOSIS, AND BEST PRACTICE TREATMENTS RELATED TO HHT THROUGH PATIENT SUPPORT, SUPPORT OF CONFERENCES, MEETINGS, AND COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE. 145663 PUBLIC INFORMATION - THE GOAL OF THE PUBLIC INFORMATION PROGRAM IS TO INCREASE PUBLIC, PRIVATE, AND GOVERNMENTAL AWARENESS OF THE HHT DISORDER THROUGH THE PRESS AND THE MEDIA. 11223 ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO ADVOCATE FOR AND SUPPORT THOSE WITH HHT BY PURSUING RECOGNITION AND FUNDING FOR AWARENESS, ACCESS TO EXPERT CARE AND CLINICAL TRIALS. 11223 3460889 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 24 0 18 1 0 0 0 0 0 0 0 0 0 0 0 0 X 18 18 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AL AK CA CO CT DC FL GA IL KS LA ME MD MA MN MI NH NJ NM NY NC OH OK OR PA RI SC TN UT VA WA WV AZ IA KY MS MO TX WI X X AMY LAMP 4103579932 PO BOX 329 MONKTON MD 21111 ANN TRUSSELL MEMBER 1.00 X 0 0 0 ANTHONY ANZELL PHD MEMBER 1.00 X 0 0 0 BENJAMIN HOLT ESQ VICE PRESIDENT 1.00 X X 0 0 0 BRANDON PROBST PHD MEMBER 1.00 X 0 0 0 DENNIS ROUTLEDGE MEMBER EMERITUS 1.00 X 0 0 0 DENNIS SPRECHER MD MEMBER 1.00 X 0 0 0 GABRIELLA CHOI MEMBER 1.00 X 0 0 0 HOWARD LICHTIG MEMBER 1.00 X 0 0 0 JIM LAPIDES MEMBER 1.00 X 0 0 0 JOHN DUNN PRESIDENT 1.00 X X 0 0 0 KAREN SILBER WEISSEL PHD MEMBER 1.00 X 0 0 0 MARC TOPAZ ESQ TREASURER 1.00 X X 0 0 0 MARIJO MCCUNE MEMBER 1.00 X 0 0 0 ROBERT BERKMAN MEMBER EMERITUS 1.00 X 0 0 0 SARA PALMER PHD PAST PRESIDENT 1.00 X 0 0 0 SAVANAH SCHOTT SECRETARY 1.00 X X 0 0 0 SCOTT BOATWRIGHT MEMBER 1.00 X 0 0 0 SCOTT OLITSKY MD MEMBER 1.00 X 0 0 0 MARIANNE CLANCY EXECUTIVE DIRECTOR 40.00 X 167703 0 12762 STEFANIE-NICOLE SCHAEFER CHIEF OPERATING OFFICER 40.00 X 103340 0 5736 GARY SAUM FORMER DIRECTOR 40.00 X 108746 0 0 379789 0 18498 3 0 1 0 BIORASI LLC 18851 NE 29TH AVE SUITE 800 MIAMI FL 33180 CLINICAL TRIALS AND RESEARCH 392862 1 53787 2096118 1113956 3263861 CONFERENCE FEES 900099 410107 410107 410107 55714 55714 701989 688602 13387 13387 13387 3244 53787 11211 -7967 -7967 OTHER INCOME 900099 5763 5763 5763 3740865 429257 0 47747 1702745 1702745 289541 229654 51376 8511 621347 492829 110253 18265 6966 5508 1250 208 104079 82385 18611 3083 67431 53389 12046 1996 1602 1602 159214 65524 92703 987 36000 36000 2562 2562 202856 142816 59324 716 40064 40887 -823 134799 54460 55756 24583 68180 61983 5430 767 14218 7302 6916 83346 53469 27798 2079 417048 413913 3135 3100 2454 554 92 MISCELLANEOUS AND CREDI 93020 5127 85146 2747 SUBSCRIPTIONS AND DUES 11123 900 120 10103 PAZOPANIB 9544 9544 OTHER GRANTS AND AWARDS 273 273 4069058 3460889 530897 77272 583916 411022 451242 703055 21429 21876 200618 193901 7801 6717 2157352 2271426 101547 101650 3323287 3515746 178682 680335 178682 680335 X 1254191 1375518 1890414 1459893 3144605 2835411 3323287 3515746 -328193 18999 0 X X 0 1 X 1 0 X 1524998 1722402 2144594 2356154 3267105 11015253 1524998 1722402 2144594 2356154 3267105 11015253 1137669 9877584 13802 -26574 7772 13736 55714 64450 391 77333 48958 -22807 -11211 92664 11172367 450632 0.88410 0.82330 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 1 36000 36000 0 PART II-B, LINE 1: THE FOUNDATION CONTRACTED WITH A COMPANY TO ASSIST THE FOUNDATION WITH ITS EFFORTS TO RAISE GREATER AWARENESS OF HHT WITH THE FEDERAL GOVERNMENT, SECURE NEW PARTNERSHIPS WITH KEY DECISION MAKERS IN WASHINGTON, AND INCREASE FUNDING FOR RESEARCH INTO A CURE FOR HHT. 285033 42126 327159 307864 7308 -30139 285033 226950 2500 78414 307864 218808 642 7500 226950 218870 0 -62 218808 0.62549 0.37451 0 0 6050 3777 2273 67139 62695 4444 127429 127429 0 6717 X 3757302 18999 18999 3738303 2562 2562 3740865 4066496 0 4066496 2562 2562 4069058 PART X, LINE 2: THE INCOME TAX POSITIONS TAKEN BY CURE HHT FOR ANY YEAR OPEN UNDER THE VARIOUS STATUTES OF LIMITATIONS ARE THAT THE ORGANIZATION CONTINUES TO BE EXEMPT FROM INCOME TAXES AND THAT THE ORGANIZATION HAS PROPERLY REPORTED UNRELATED BUSINESS INCOME THAT IS SUBJECT TO INCOME TAXES. CURE HHT BELIEVES THAT THERE ARE NO TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD SIGNIFICANTLY INCREASE UNRECOGNIZED TAX BENEFITS WITHIN 12 MONTHS OF THE REPORTING DATE. NONE OF THE CURE HHT'S INCOME TAX RETURNS ARE CURRENTLY UNDER EXAMINATION. PART V, LINE 4 NET ASSETS PERMANENTLY RESTRICTED RESULT FROM CONTRIBUTIONS TO BE USED TO GENERATE INCOME TO PROVIDE FOR MEDICAL RESEARCH AND/OR EDUCATION. INCOME EARNED FROM THESE NET ASSETS MUST BE USED FOR MEDICAL RESEARCH AND/OR EDUCATIONAL PROJECTS AS DETERMINED BY THE FOUNDATION'S MANAGEMENT AND BOARD OF DIRECTORS. STONER GOLF 13162 13162 3107 THIRD PARTY 31622 31622 4471 3 9003 9003 3633 53787 53787 11211 11211 -11211 1 AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC PO BOX 945552 ATLANTA GA 303945552 581418202 64656 0 DOD GRANT REIMBURSABLE COLUMBIA UNIVERSITY PO BOX 29789 NEW YORK CITY NY 10087 135598093 48006 0 DOD GRANT REIMBURSABLE JOHNS HOPKINS CENTRAL 12529 COLLECTIONS CENTER DRIVE CHICAGO IL 60693 520595110 6550 0 DOD GRANT R MAYO CLINIC 200 1ST STREET SOUTHWEST ROCHESTER MN 55905 416011702 23553 0 HRSA HHT CENTERS OREGON HEALTH SCIENCE UNIVERSITY - OFFICE OF PROPOSAL & AWARD MANAGEMENT PO BOX 3003 PORTLAND OR 97208 931176109 25150 0 HRSA HHT CENTERS THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL OFFICE OF SPONSORED PROGRAM PO BOX 402420 ATLANTA GA 30384 566001393 39901 0 HRSA HHT CENTERS TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST 5TH FLOOR FRANKLIN BUILDING PHILADELPHIA PA 191046205 231352685 17636 0 HRSA HHT CENTERS UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS 12700 E 19TH AVE C272 AURORA CO 80045 846000555 49097 0 HRSA HHT CENTERS UNIVERSITY OF UTAH 201 S 1460 EAST RM 406 SALT LAKE CITY UT 84112 876000525 7028 0 DOD GRANT REIMBURSABLE WASHINGTON UNIVERSITY IN ST LOUIS-SCHOOL OF MEDICINE ADMINISTRATION 7425 FORSYTH BOULEVARD ST LOUIS MT 63105 430653611 33440 0 HRSA HHT CENTERS 9 1 PART I, LINE 2: CURE HHT MONITORS THE USE OF GRANT FUNDS THROUGH REGULAR COMMUNICATIONS WITH THE ORGANIZATION AND PERFORMANCE REPORTS ON THE RESEARCH. X 0 0 0 0 0 0 0 0 0 MARIANNE CLANCY EXECUTIVE DIRECTOR 167703 0 0 0 0 0 2700 0 10062 0 180465 0 0 0 MARIANNE CLANCY EXECUTIVE DIRECTOR 12100 LEASE OF OFFICE SPACE 0 FORM 990, PART VI, SECTION B, LINE 11B THE EXECUTIVE DIRECTOR REVIEWS THE 990 BEFORE FILING. THE FORM 990 IS DISTRIBUTED AND REVIEWED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 12C HHT FOUNDATION INTERNATIONAL, INC HAS A CONFLICT OF INTEREST POLICY AND MANAGEMENT ANNUALLY DISCUSSES THIS IMPORTANT DOCUMENT WITH THE BOARD OF DIRECTORS AND HAS THEM SIGN THE AGREEMENT TO ENSURE IT IS CURRENT. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE DIRECTOR'S SALARY IS APPROVED BY THE EXECUTIVE COMMITTEE OR ITS DESIGNEES EACH YEAR WHEN APPROVING THE BUDGET. THE EXECUTIVE COMMITTEE, OR ITS DESIGNEES, PERFORM A SEMI-ANNUAL REVIEW OF THE EXECUTIVE DIRECTOR'S PERFORMANCE DURING THE PRIOR SIX MONTHS. BASED ON THIS PERFORMANCE REVIEW, AS WELL AS ADDITIONAL ANALYSIS INCLUDING BUT NOT LIMITED TO A COMPARISON OF THE CASH AMOUNTS RECEIVED BY THE EXECUTIVE DIRECTOR TO COMPENSATION OF INDIVIDUALS IN SIMILAR POSITIONS WITHIN THE INDUSTRY, THE EXECUTIVE COMMITTEE, OR ITS DESIGNEES, DETERMINES ANY APPLICABLE BONUSES AND ADJUSTMENTS TO THE SUBSEQUENT YEAR'S BASE SALARY. ONCE AMOUNTS ARE APPROVED, A MEMBER OF THE EXECUTIVE COMMITTEE PROVIDES THE APPROVAL TO THE FINANCIAL ADMINISTRATOR. THE FINANCIAL ADMINISTRATOR MAINTAINS DOCUMENTATION SUPPORTING THE EXECUTIVE COMMITTEE'S DECISION AND PROCESSES THE INFORMATION WITHIN THE PAYROLL SYSTEM. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST ONLY. FORM 990, PART XII, LINE 2C THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.