2025-04-24T15:17:12-05:00 2024-06-30 260794367 UHY ADVISORS MID-ATLANTIC INC 8601 ROBERT FULTON DRIVE SUITE 210 COLUMBIA MD 21046 990 2023-07-01 223115041 HHT FOUNDATION HHTF 4103579932 PO BOX 329 MONKTON MD 21111 MARIANNE CLANCY EXECUTIVE DIRECTOR 4103579932 2025-04-24 1 0 YI SHRESTHA P00837980 4107205220 2025-04-21 2023 2025-03-06 01:10:19Z CURE HHT MARIANNE CLANCY PO BOX 329 MONKTON MD 21111 7502661 0 X WWW.CUREHHT.ORG X 1990 MD FIND A CURE FOR HHT WHILE SAVING THE LIVES AND IMPROVING THE WELL-BEING OF INDIVIDUALS AND FAMILIES AFFECTED BY HHT. 17 17 15 0 0 0 3263861 6587947 410107 104766 69101 134583 -2204 -36985 3740865 6790311 1702745 2930944 0 0 1089364 1209237 0 0 439115 1276949 1111280 4069058 5251461 -328193 1538850 3515746 5213609 680335 809199 2835411 4404410 X HHT INTERNATIONAL, INC IS A NOT-FOR-PROFIT ORGANIZATION ORGANIZED TO PROVIDE INFORMATION ABOUT HEREDITARY HEMORRHAGIC TELANGIECTASIA (HHT) TO PATIENTS, FAMILY MEMBERS AND PHYSICIANS, OPERATE AS A SUPPORT GROUP FOR PATIENTS AND FAMILY MEMBERS, RAISE FUNDS FOR BASIC AND CLINICAL RESEARCH, AND SPONSOR RESEARCH GRANTS FOR STUDIES RELATING TO HHT. 0 0 3768928 2900571 RESEARCH - THE RESEARCH PROGRAM IS SUPPORTIVE IN FUNDING RESEARCH FOR THE UNDERSTANDING OF THE MECHANISM OF HHT DISEASE, NOVEL THERAPEUTIC APPROACHES TO TREATMENT AND MANAGEMENT, AND TRANSLATIONAL RESEARCH LEADING TO MULTI-CENTER TRIALS. THE HHT INTERNATIONAL SCIENTIFIC CONFERENCE IS HELD EVERY OTHER YEAR. 460292 30373 104766 EDUCATION - THE GOAL OF THE EDUCATION PROGRAM IS TO PROMOTE EDUCATION, DIAGNOSIS, AND BEST PRACTICE TREATMENTS RELATED TO HHT THROUGH PATIENT SUPPORT, SUPPORT OF CONFERENCES, MEETINGS, AND COMPREHENSIVE HHT CLINICAL CENTERS OF EXCELLENCE. 224818 0 PUBLIC INFORMATION - THE GOAL OF THE PUBLIC INFORMATION PROGRAM IS TO INCREASE PUBLIC, PRIVATE, AND GOVERNMENTAL AWARENESS OF THE HHT DISORDER THROUGH THE PRESS AND THE MEDIA. 36959 ADVOCACY - THE GOAL OF THE ADVOCACY PROGRAM IS TO ADVOCATE FOR AND SUPPORT THOSE WITH HHT BY PURSUING RECOGNITION AND FUNDING FOR AWARENESS, ACCESS TO EXPERT CARE AND CLINICAL TRIALS. 36959 4490997 1 1 0 1 0 0 0 0 0 1 1 0 0 0 0 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 23 0 15 1 0 0 0 0 0 0 0 0 0 0 0 0 X 17 17 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AK AR CA CO CT DC FL GA IL KS LA ME MD MA MN MI NH NJ NM NY NC OH OK OR PA RI SC TN UT VA WA WV AZ IA KY MS MO TX WI X X HILLEARY ABBRUZZESE 4103579932 PO BOX 329 MONKTON MD 21111 JOHN DUNN PRESIDENT 1.00 X X 0 0 0 BENJAMIN HOLT ESQ VICE-PRESIDENT 1.00 X X 0 0 0 MARC TOPAZ ESQ TREASURER 1.00 X X 0 0 0 SAVANAH BENHART SECRETARY 1.00 X X 0 0 0 ANTHONY ANZELL PHD MEMBER 1.00 X 0 0 0 SCOTT BOATWRIGHT MEMBER 1.00 X 0 0 0 GABRIELLA CHOI MEMBER 1.00 X 0 0 0 JIM LAPIDES MEMBER 1.00 X 0 0 0 HOWARD LICHTIG MEMBER 1.00 X 0 0 0 MARIJO MCCUNE MEMBER 1.00 X 0 0 0 SCOTT OLITSKY MD MEMBER 1.00 X 0 0 0 BRANDON PROBST PHD MEMBER 1.00 X 0 0 0 DENNIS SPRECHER MD MEMBER 1.00 X 0 0 0 KAREN SILBER WEISSEL PHD MEMBER 1.00 X 0 0 0 ANN TRUSSELL MEMBER 1.00 X 0 0 0 ROBERT BERKMAN MEMBER EMERITUS 1.00 X 0 0 0 DENNIS ROUTLEDGE MEMBER EMERITUS 1.00 X 0 0 0 MARIANNE CLANCY EXECUTIVE DIRECTOR 40.00 X 183462 0 32974 STEFANIE-NICOLE SCHAEFER CHIEF OPERATING OFFICER 40.00 X 114154 0 19789 MELISSA DICKEY DIRECTOR, NAT'L HHT COORDINATING CENTER 40.00 X 141292 0 9410 438908 0 62173 3 0 1 0 BIORASI LLC 18851 NE 29TH AVE SUITE 800 MIAMI FL 33180 CLINICAL TRIALS AND RESEARCH 725403 1 116642 3580110 2891195 6587947 CONFERENCE FEES 900099 104766 104766 104766 104940 104940 698388 668745 29643 29643 29643 0 116642 43605 -43605 -43605 OTHER INCOME 900099 6620 6620 6620 6790311 104766 0 97598 2930944 2930944 358827 259102 62841 36884 695038 576008 34990 84040 7576 6449 183 944 70624 57796 4387 8441 77172 62097 6167 8908 37944 37944 2925 2925 438248 178307 119089 140852 73054 44102 1545 27407 146017 66070 42135 37812 159642 141301 16142 2199 13577 13577 71235 47567 8735 14933 59312 59312 3151 3151 OTHER GRANTS AND AWARDS 51397 1686 49711 MISCELLANEOUS AND CREDI 33330 12969 3796 16565 SUBSCRIPTIONS AND DUES 11469 1050 10419 PAZOPANIB 9979 9979 5251461 4490997 321349 439115 411022 501341 703055 2030724 21876 158211 200618 197051 6717 3567 2271426 2420226 101650 99540 3515746 5213609 680335 658420 150779 680335 809199 X 1375518 1934700 1459893 2469710 2835411 4404410 3515746 5213609 1538850 30149 0 X X 0 1 X 1 1 1 X 1722402 2144594 2356154 3267105 6587947 16078202 1722402 2144594 2356154 3267105 6587947 16078202 812884 15265318 -26574 7772 13736 55714 104940 155588 77333 48958 -22807 -11211 -36985 55288 16289078 559624 0.93720 0.88410 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 0 0 1 37944 37944 0 PART II-B, LINE 1: THE FOUNDATION CONTRACTED WITH A COMPANY TO ASSIST THE FOUNDATION WITH ITS EFFORTS TO RAISE GREATER AWARENESS OF HHT WITH THE FEDERAL GOVERNMENT, SECURE NEW PARTNERSHIPS WITH KEY DECISION MAKERS IN WASHINGTON, AND INCREASE FUNDING FOR RESEARCH INTO A CURE FOR HHT. 327159 63228 390387 285033 42126 327159 307864 7308 -30139 285033 226950 2500 78414 307864 218808 642 7500 226950 0.52420 0.47580 0 0 6050 4986 1064 67139 64636 2503 127429 127429 0 3567 X 6817535 30149 30149 6787386 2925 2925 6790311 5248536 0 5248536 2925 2925 5251461 PART X, LINE 2: THE INCOME TAX POSITIONS TAKEN BY CURE HHT FOR ANY YEAR OPEN UNDER THE VARIOUS STATUTES OF LIMITATIONS ARE THAT THE ORGANIZATION CONTINUES TO BE EXEMPT FROM INCOME TAXES AND THAT THE ORGANIZATION HAS PROPERLY REPORTED UNRELATED BUSINESS INCOME THAT IS SUBJECT TO INCOME TAXES. CURE HHT BELIEVES THAT THERE ARE NO TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD SIGNIFICANTLY INCREASE UNRECOGNIZED TAX BENEFITS WITHIN 12 MONTHS OF THE REPORTING DATE. NONE OF THE CURE HHT'S INCOME TAX RETURNS ARE CURRENTLY UNDER EXAMINATION. PART XII, LINE 2D - OTHER ADJUSTMENTS: DIRECT FUNDRAISING EXPENSE PART V, LINE 4 NET ASSETS PERMANENTLY RESTRICTED RESULT FROM CONTRIBUTIONS TO BE USED TO GENERATE INCOME TO PROVIDE FOR MEDICAL RESEARCH AND/OR EDUCATION. INCOME EARNED FROM THESE NET ASSETS MUST BE USED FOR MEDICAL RESEARCH AND/OR EDUCATIONAL PROJECTS AS DETERMINED BY THE FOUNDATION'S MANAGEMENT AND BOARD OF DIRECTORS. NIGHT OF HOPE 56803 56803 15169 STONER GOLF 36679 36679 19158 1 23160 23160 9278 116642 116642 43605 43605 -43605 1 MAYO CLINIC 200 1ST STREET SOUTHWEST ROCHESTER MN 55905 416011702 501(C)(3) 194348 0 HRSA HHT CENTERS, DOD GRANTS REIMBURSABLE MASSACHUSETTS GENERAL HOSPITAL 125 NASHUA STREET SUITE 540 BOSTON MA 02114 041564655 501(C)(3) 192184 0 HRSA HHT CENTERS AUGUSTA UNIVERSITY RESEARCH INSTITUTE INC PO BOX 945552 ATLANTA GA 303945552 581418202 501(C)(3) 166982 0 HRSA HHT CENTERS, DOD GRANTS REIMBURSABLE YALE UNIVERSITY OFFICE OF SPONSORED PROJECTS PO BOX 208239 NEW HAVEN CT 065208239 060646973 501(C)(3) 136752 0 HRSA HHT CENTERS UCSF REGENTS OF THE UNIVERSITY OF CALIFORNIA 220 MONTGOMERY ST FL 5 SAN FRANCISCO CA 94104 946036493 135184 0 HRSA HHT CENTERS UNIVERSITY OF UTAH 201 S 1460 EAST RM 406 SALT LAKE CITY UT 84112 876000525 131483 0 HRSA HHT CENTERS, DOD GRANT REIMBURSABLE THE UNIVERSITY OF NORTH CAROLINA AT CHAPEL HILL OFFICE OF SPONSORED PROGRAM 104 AIRPORT DRIVE SUITE 2200 CAMPUS BOX 1350 CHAPEL HILL NC 275991350 566001393 140087 0 HRSA HHT CENTERS, DOD GRANT REIMBURSABLE OREGON HEALTH SCIENCE UNIVERSITY - OFFICE OF PROPOSAL & AWARD MANAGEMENT PO BOX 3003 PORTLAND OR 97208 931176109 109709 0 HRSA HHT CENTERS, DOD GRANTS REIMBURSABLE UT SOUTHWESTERN MEDICAL CENTER 5323 HARRY HINES BLVD DALLAS TX 75390 756002868 101906 0 HRSA HHT CENTERS COLUMBIA UNIVERSITY PO BOX 29789 NEW YORK CITY NY 10087 135598093 501(C)(3) 97302 0 HRSA HHT CENTERS, CALLED TO CURE CAMPAIGN TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3451 WALNUT ST 5TH FLOOR FRANKLIN BUILDING PHILADELPHIA PA 191046205 231352685 501(C)(3) 95721 0 HRSA HHT CENTERS CLEVELAND CLINIC FOUNDATION 6801 BRECKVILLE RD RK1-85 INDEPENDENCE OH 44131 340714585 501(C)(3) 76292 0 HRSA HHT CENTERS, DOD GRANTS REIMBURSABLE WASHINGTON UNIVERSITY IN ST LOUIS-SCHOOL OF MEDICINE ADMINISTRATION 7425 FORSYTH BOULEVARD ST LOUIS MT 63105 430653611 501(C)(3) 123973 0 HRSA HHT CENTERS, DOD GRANTS REIMBURSABLE UNIVERSITY OF CALIFORNIA LOS ANGELES EXTRAMURAL FUND MANAGEMENT 10889 WILSHIRE BOULEVARD SUITE 700 LOS ANGELES CA 900951406 956006143 64246 0 HRSA HHT CENTERS, CALLED TO CURE CAMPAIGN, DOD GRANTS REIMBURSABLE UNIVERSITY OF COLORADO ANSCHUTZ MEDICAL CAMPUS 12700 E 19TH AVE C272 AURORA CO 80045 846000555 38233 0 HRSA HHT CENTERS UPLIFTING ATHLETES INC 8 ATKINSON DRIVE PO BOX 574 DOYLESTOWN PA 18901 341986485 501(C)(3) 10000 0 RESEARCH 9 7 PART I, LINE 2: CURE HHT MONITORS THE USE OF GRANT FUNDS THROUGH REGULAR COMMUNICATIONS WITH THE ORGANIZATION AND PERFORMANCE REPORTS ON THE RESEARCH. X 0 0 0 0 0 0 0 0 0 MARIANNE CLANCY EXECUTIVE DIRECTOR 183462 0 0 0 0 0 5504 0 27470 0 216436 0 0 0 MELISSA DICKEY DIRECTOR, NAT'L HHT COORDINATING CEN 141292 0 0 0 0 0 1170 0 8240 0 150702 0 0 0 MARIANNE CLANCY EXECUTIVE DIRECTOR 13200 LEASE OF OFFICE SPACE 0 FORM 990, PART VI, SECTION B, LINE 11B THE EXECUTIVE DIRECTOR REVIEWS THE 990 BEFORE FILING. THE FORM 990 IS DISTRIBUTED AND REVIEWED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION B, LINE 12C HHT FOUNDATION INTERNATIONAL, INC HAS A CONFLICT OF INTEREST POLICY AND MANAGEMENT ANNUALLY DISCUSSES THIS IMPORTANT DOCUMENT WITH THE BOARD OF DIRECTORS AND HAS THEM SIGN THE AGREEMENT TO ENSURE IT IS CURRENT. FORM 990, PART VI, SECTION B, LINE 15A THE EXECUTIVE DIRECTOR'S SALARY IS APPROVED BY THE EXECUTIVE COMMITTEE OR ITS DESIGNEES EACH YEAR WHEN APPROVING THE BUDGET. THE EXECUTIVE COMMITTEE, OR ITS DESIGNEES, PERFORM A SEMI-ANNUAL REVIEW OF THE EXECUTIVE DIRECTOR'S PERFORMANCE DURING THE PRIOR SIX MONTHS. BASED ON THIS PERFORMANCE REVIEW, AS WELL AS ADDITIONAL ANALYSIS INCLUDING BUT NOT LIMITED TO A COMPARISON OF THE CASH AMOUNTS RECEIVED BY THE EXECUTIVE DIRECTOR TO COMPENSATION OF INDIVIDUALS IN SIMILAR POSITIONS WITHIN THE INDUSTRY, THE EXECUTIVE COMMITTEE, OR ITS DESIGNEES, DETERMINES ANY APPLICABLE BONUSES AND ADJUSTMENTS TO THE SUBSEQUENT YEAR'S BASE SALARY. ONCE AMOUNTS ARE APPROVED, A MEMBER OF THE EXECUTIVE COMMITTEE PROVIDES THE APPROVAL TO THE FINANCIAL ADMINISTRATOR. THE FINANCIAL ADMINISTRATOR MAINTAINS DOCUMENTATION SUPPORTING THE EXECUTIVE COMMITTEE'S DECISION AND PROCESSES THE INFORMATION WITHIN THE PAYROLL SYSTEM. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS ARE AVAILABLE TO THE PUBLIC UPON REQUEST ONLY. FORM 990, PART XII, LINE 2C THE PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.