Nonprofit · EIN 22-2474769
GBS CIDP FOUNDATION INTERNATIONAL
Tax-exempt · CONSHOHOCKEN, PA 19428
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $7,799,708 | $7,412,920 | $386,788 | $20,008,529 | $3,171,159 | $16,837,370 |
| December 31, 2024 | 990 | $4,995,163 | $4,634,095 | $361,068 | $16,714,766 | $1,569,094 | $15,145,672 |
| December 31, 2023 | 990 | $6,141,343 | $4,435,340 | $1,706,003 | $15,123,436 | $1,722,069 | $13,401,367 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $7,154,451
- Program service revenue
- $0
- Investment income
- $717,060
- Net gain from sales of assets
- $356,787
- Net income from fundraising events
- -$71,803
- Other revenue
- -$71,803
Expenses
- Grants and similar amounts paid
- $2,173,767
- Compensation of officers, directors and key employees
- $647,179
- Other salaries and wages
- $1,635,644
- Salaries, compensation and benefits (total)
- $2,612,663
- Professional fundraising fees
- $0
- Legal fees
- $6,960
- Accounting fees
- $24,700
- Occupancy
- $187,445
- Travel
- $1,418,100
- Depreciation
- $16,139
- Program services (functional)
- $6,549,689
- Management and general (functional)
- $419,195
- Fundraising (functional)
- $444,036
Balance sheet and other
- Total assets, start of year
- $16,714,766
- Total assets, end of year
- $20,008,529
- Total liabilities, end of year
- $3,171,159
- Net assets, end of year
- $16,837,370
- Land, buildings and equipment
- $70,552
- Publicly traded securities
- $16,096,010
- Net assets without donor restrictions
- $16,610,320
- Net assets with donor restrictions
- $227,050
- Gross receipts
- $9,768,331
- Employees
- 22
- Volunteers
- 220
- Year formed
- 1980
- State of legal domicile
- PA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ELIZABETH BUTLER | PRESIDENT &CEO Officer | 40 | $372,435 | $45,801 |
| MAUREEN NEVILLE | CHIEF OF PROGRAMS & MKTG Key employee | 40 | $208,000 | $34,399 |
| LAURA BLAIR | CFO Officer | 40 | $204,700 | $24,243 |
| RICHARD SPERRY | CHIEF STRATEGY OFFICER Key employee | 40 | $213,558 | $11,745 |
| KELLY MCCOY | DIR OF PATIENT RELATIONS & EVENTS Highest-paid employee | 40 | $103,650 | $17,740 |
| CORBIN WHITTINGTON | PRESIDENT Trustee or director, Officer | 10 | $0 | $0 |
| PETER DONOFRIO MD | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| RUSSELL WALTER | SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| JIM YADLON | TREASURER Trustee or director, Officer | 5 | $0 | $0 |
| JEFF ALLEN MD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BETSY BLAKE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DIANA CASTRO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MICHELE DEARING | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CHRISSIE JENKINS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BRENDA PERALES | DIRECTOR Trustee or director | 1 | $0 | $0 |
3 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DAVE ROSSNER | DIRECTOR Trustee or director | 1 | $0 |
| SHANE SUMLIN | DIRECTOR Trustee or director | 1 | $0 |
| VALENTINA TREVINO | DIRECTOR Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 17 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ELIZABETH BUTLER | EXECUTIVE DIRECTOR Officer | 40 | $329,280 | $47,390 |
| MAUREEN NEVILLE | DIR OF MKTG & COMMUNICATIO Highest-paid employee | 40 | $200,000 | $34,726 |
| LAURA BLAIR | CFO Officer | 40 | $200,000 | $22,727 |
| CORBIN WHITTINGTON | PRESIDENT Trustee or director, Officer | 10 | $0 | $0 |
| PETER DONOFRIO MD | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| RUSSELL WALTER | SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| JIM YADLON | TREASURER Trustee or director, Officer | 5 | $0 | $0 |
| JEFF ALLEN MD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BETSY BLAKE | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DIANA CASTRO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MICHELE DEARING | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CHRISSIE JENKINS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BRENDA PERALES | DIRECTOR Trustee or director | 1 | $0 | $0 |
| CLIVE PHILLIPS | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVE ROSSNER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SHANE SUMLIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| VALENTINA TREVINO | DIRECTOR Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 15 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| ELIZABETH BUTLER | EXECUTIVE DIRECTOR Officer | 40 | $285,450 | $50,065 |
| MAUREEN NEVILLE | DIR OF MKTG & COMMUNICATIO Highest-paid employee | 40 | $156,900 | $32,934 |
| LAURA BLAIR | CFO Officer | 40 | $156,500 | $20,173 |
| CORBIN WHITTINGTON | PRESIDENT Trustee or director, Officer | 10 | $0 | $0 |
| PETER DONOFRIO MD | VICE PRESIDENT Trustee or director, Officer | 5 | $0 | $0 |
| NANCY IGNAZIA DISALVO | VP, INTERNATIONAL AFFAIRS Trustee or director, Officer | 5 | $0 | $0 |
| RUSSELL WALTER | SECRETARY Trustee or director, Officer | 5 | $0 | $0 |
| JIM YADLON | TREASURER Trustee or director, Officer | 5 | $0 | $0 |
| JEFF ALLEN MD | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DIANA CASTRO | DIRECTOR Trustee or director | 1 | $0 | $0 |
| MICHELE DEARING | DIRECTOR Trustee or director | 1 | $0 | $0 |
| BRENDA PERALES | DIRECTOR Trustee or director | 1 | $0 | $0 |
| DAVE ROSSNER | DIRECTOR Trustee or director | 1 | $0 | $0 |
| SHANE SUMLIN | DIRECTOR Trustee or director | 1 | $0 | $0 |
| VALENTINA TREVINO | DIRECTOR Trustee or director | 1 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 375 E ELM ST STE 101, CONSHOHOCKEN, PA 19428-1973
- Principal officer (990 for 2025)
- ELIZABETH BUTLER, 375 EAST ELM STREET SUITE 101, CONSHOHOCKEN, PA 19428
- Signed the 990
- ELIZABETH BUTLER, PRESIDENT & CEO
- Phone
- (610) 667-0131
- Website
- WWW.GBS-CIDP.ORG
- Return prepared by
- APRIO ADVISORY GROUP LLC
Mission
TO IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS AND FAMILIES WORLDWIDE AFFECTED BY GBS, CIDP AND VARIANTS BY 1) PROVIDING A NETWORK FOR ALL PATIENTS, THEIR CAREGIVERS AND FAMILIES 2) PROVIDING PUBLIC AND PROFESSIONAL EDUCATION PROGRAMS WORLDWIDE DESIGNED TO HEIGHTEN AWARENESS AND IMPROVE THE UNDERSTANDING AND TREATMENT OF GBS, CIDP AND VARIANTS. 3) EXPANDING THE FOUNDATION'S ROLE IN SPONSORING RESEARCH AND ENGAGING IN PATIENT ADVOCACY.
Program accomplishments
- DISTRIBUTION OF INFORMATION AND LITERATURE TO MEMBERS, HOSPITALS, DOCTORS, AND INDIVIDUALS UPON REQUEST; ORGANIZE AND SPONSOR SYMPOSIUM OR REGIONAL MEETING AND OTHER EDUCATIONAL AND RESEARCH PROGRAMS FOR MEDICAL PROFESSIONAL AND LAYPEOPLE; PROVIDE RESEARCH GRANTS TO FURTHER THE STUDY OF GUILLAIN-BARRE, CIDP AND VARIANTS.Expenses $6,549,689 · grants $2,173,767
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 22-2474769
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1986
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G99Z)
- Assets (IRS master file)
- $20,008,529
- Income (IRS master file)
- $9,768,331
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $7,799,708 | $7,412,920 | $20,008,529 | XML |
| 990 | December 2024 | $4,995,163 | $4,634,095 | $16,714,766 | XML |
| 990 | December 2023 | $6,141,343 | $4,435,340 | $15,123,436 | XML |
| 990 | December 2022 | $4,567,397 | $3,888,472 | $11,708,926 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 22-2474769).
Questions about GBS CIDP FOUNDATION INTERNATIONAL
- What is the EIN of GBS CIDP FOUNDATION INTERNATIONAL?
- The employer identification number (EIN) of GBS CIDP FOUNDATION INTERNATIONAL is 22-2474769.
- Is GBS CIDP FOUNDATION INTERNATIONAL tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1986.
- Are donations to GBS CIDP FOUNDATION INTERNATIONAL tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does GBS CIDP FOUNDATION INTERNATIONAL file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of GBS CIDP FOUNDATION INTERNATIONAL due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did GBS CIDP FOUNDATION INTERNATIONAL last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of GBS CIDP FOUNDATION INTERNATIONAL?
- The 990 for the year ended December 31, 2025 names ELIZABETH BUTLER.
- Who are the officers and directors of GBS CIDP FOUNDATION INTERNATIONAL?
- The 990 for the year ended December 31, 2025 lists 18 people; 5 received compensation from the organization, the highest $372,435 (ELIZABETH BUTLER, PRESIDENT &CEO).
- How much revenue does GBS CIDP FOUNDATION INTERNATIONAL have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $7,799,708, expenses of $7,412,920 and total assets of $20,008,529 at year end.
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