2024-07-10T15:52:19-05:00 2023-12-31 236410283 ISDANER & COMPANY LLC THREE BALA PLAZA SUITE 501 WEST BALA CYNWYD PA 190043484 990 2023-01-01 222474769 GBSCIDP FOUNDATION INTERNATIONAL INC GUIL 6106670131 375 EAST ELM STREET SUITE 101 CONSHOHOCKEN PA 19428 ELIZABETH BUTLER EXECUTIVE DIRECTOR 6106670131 2024-07-08 1 ELIZABETH BUTLER 999009999 0 JEFFREY S SILVER CPA MBA P00301622 6106684200 2 AAL1 IAL1 2023 2023-04-26 12:10:37Z ELIZABETH BUTLER 375 EAST ELM STREET SUITE 101 CONSHOHOCKEN PA 19428 7280471 0 X WWW.GBS-CIDP.ORG X 1980 PA IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS AND FAMILIES AFFECTED BY GUILLAIN-BARRE, CIDP AND VARIANTS. PROVIDE PATIENT SUPPORT, RESEARCH SPONSORSHIP, AND LAY AND PROFESSIONAL EDUCATIONAL PROGRAMS WORLDWIDE. 12 12 15 206 0 0 3994796 5561480 0 0 631427 668333 -58826 -88470 4567397 6141343 723084 798327 0 0 1329413 1616000 0 0 218630 1835975 2021013 3888472 4435340 678925 1706003 11708926 15123436 1206459 1722069 10502467 13401367 X TO IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS AND FAMILIES WORLDWIDE AFFECTED BY GBS, CIDP AND VARIANTS BY 1) PROVIDING A NETWORK FOR ALL PATIENTS, THEIR CAREGIVERS AND FAMILIES 2) PROVIDING PUBLIC AND PROFESSIONAL EDUCATION PROGRAMS WORLDWIDE DESIGNED TO HEIGHTEN AWARENESS AND IMPROVE THE UNDERSTANDING AND TREATMENT OF GBS, CIDP AND VARIANTS. 3) EXPANDING THE FOUNDATION'S ROLE IN SPONSORING RESEARCH AND ENGAGING IN PATIENT ADVOCACY. 0 0 3909221 798327 DISTRIBUTION OF INFORMATION AND LITERATURE TO MEMBERS, HOSPITALS, DOCTORS, AND INDIVIDUALS UPON REQUEST; ORGANIZE AND SPONSOR SYMPOSIUM OR REGIONAL MEETING AND OTHER EDUCATIONAL AND RESEARCH PROGRAMS FOR MEDICAL PROFESSIONAL AND LAYPEOPLE; PROVIDE RESEARCH GRANTS TO FURTHER THE STUDY OF GUILLAIN-BARRE, CIDP AND VARIANTS. 3909221 1 1 0 1 0 0 0 0 0 0 1 0 0 1 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 5 0 1 15 1 0 0 0 0 0 0 0 0 0 0 0 0 X 12 12 0 0 0 0 0 1 1 1 0 0 1 1 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX VT VA WV WI WY X X LAURA BLAIR 6106670131 375 EAST ELM STREET SUITE 101 CONSHOHOCKEN PA 19428 CORBIN WHITTINGTON PRESIDENT 10.00 X X 0 0 0 PETER DONOFRIO MD VICE PRESIDENT 5.00 X X 0 0 0 NANCY IGNAZIA DISALVO VP, INTERNATIONAL AFFAIRS 5.00 X X 0 0 0 RUSSELL WALTER SECRETARY 5.00 X X 0 0 0 JIM YADLON TREASURER 5.00 X X 0 0 0 JEFF ALLEN MD DIRECTOR 1.00 X 0 0 0 DIANA CASTRO DIRECTOR 1.00 X 0 0 0 MICHELE DEARING DIRECTOR 1.00 X 0 0 0 BRENDA PERALES DIRECTOR 1.00 X 0 0 0 DAVE ROSSNER DIRECTOR 1.00 X 0 0 0 SHANE SUMLIN DIRECTOR 1.00 X 0 0 0 VALENTINA TREVINO DIRECTOR 1.00 X 0 0 0 ELIZABETH BUTLER EXECUTIVE DIRECTOR 40.00 X 285450 0 50065 LAURA BLAIR CFO 40.00 X 156500 0 20173 MAUREEN NEVILLE DIR OF MKTG & COMMUNICATIO 40.00 X 156900 0 32934 598850 0 103172 3 0 1 0 0 706297 4855183 10135 5561480 261732 261732 1451579 4591 1041364 8205 410215 -3614 406601 406601 1089 706297 89559 -88470 -88470 6141343 0 0 579863 198240 198240 600087 600087 512145 322361 165498 24286 905708 804896 100812 38053 34035 2773 1245 61853 57032 4320 501 98241 82135 9316 6790 6962 6962 22000 22000 66651 66651 8413 7335 661 417 29144 11420 16142 1582 142975 116282 9536 17157 572991 569000 3991 16653 13544 1111 1998 27735 22557 1850 3328 PATIENT ASSISTANCE FUND 400000 400000 CONTRACTED SERVICES 181169 158209 3796 19164 PRINTING 144997 115317 29680 ON-DEMAND EDUCATION PRO 143062 143062 258261 246747 3835 7679 4435340 3909221 307489 218630 893808 1065523 188329 58948 127575 59022 143274 66166 34944 77108 10267690 12815241 196580 1047594 11708926 15123436 67143 37164 765723 647123 175000 198593 1037782 1206459 1722069 X 10502467 13401367 10502467 13401367 11708926 15123436 1706003 1192897 0 X X 0 1 X 1 0 X 2136403 2875001 3037143 3994796 5561480 17604823 2136403 2875001 3037143 3994796 5561480 17604823 9684415 7920408 183783 140919 145652 204168 261732 936254 400 400 18541477 0.42720 0.42840 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 65619 65619 4369721 4435340 371767 92942 0 0 283044 286800 344424 371767 1286035 1929053 64249 63607 65155 65619 258630 70761 71700 86106 92942 321509 482264 33865 2112 31753 109409 64054 45355 77108 SECURITY DEPOSIT 14226 RIGHT OF USE ASSET - NET OPERATING LEASE 1033368 1047594 LEASE LIABILITY 1037782 1037782 X 7280272 1192897 12683 1205580 6074692 66651 66651 6141343 4381372 12683 12683 4368689 66651 66651 4435340 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. FINANCIAL ACCOUNTING STANDARDS BOARD ("FASB") ACCOUNTING STANDARDS CODIFICATION TOPIC 740, INCOME TAXES CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN AN ENTITY'S FINANCIAL STATEMENTS AND PRESCRIBES A RECOGNITION THRESHOLD OF MORE-LIKELY-THAN-NOT TO BE SUSTAINED UPON EXAMINATION BY THE APPROPRIATE TAXING AUTHORITY. MEASUREMENT OF THE TAX UNCERTAINTY OCCURS IF THE RECOGNITION THRESHOLD HAS BEEN MET. ASC TOPIC 740 ALSO PROVIDES GUIDANCE ON DERECOGNITION, CLASSIFICATION, INTEREST AND PENALTIES, ACCOUNTING IN INTERIM PERIODS, AND DISCLOSURE. NO LIABILITY FOR UNCERTAIN TAX POSTIONS WAS RECORDED AS OF DECEMBER 31, 2022 OR 2021. PART XI, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS EXPENSE 12,683. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENTS 12,683. 1 EUROPE 0 0 GRANTS TO RECIPIENTS RESEARCH 550087 SOUTH ASIA 0 0 GRANTS TO RECIPIENTS RESEARCH 50000 0 0 0 0 0 0 600087 0 600087 EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 21587 BANK WIRE 0 BOOK EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 200000 BANK WIRE 0 BOOK SOUTH ASIA RESEARCH 50000 BANK WIRE 0 BOOK EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 50000 BANK WIRE 0 BOOK EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 110000 BANK WIRE 0 BOOK EUROPE (INCLUDING ICELAND & GREENLAND) RESEARCH 165000 BANK WIRE 0 BOOK 6 0 0 0 0 0 0 PART I, LINE 2: REGULAR COMMUNICATIONS WITH GRANTEE, REVIEW OF RESEARCH PROCEDURES AND ANALYSIS OF RESULTS. WALK-A-THON 707386 706297 1089 89559 707386 706297 1089 89559 89559 -88470 1 UNIVERSITY OF CALIFORNIA LOS ANGELES 10833 LE CONTE AVENUE LOS ANGELES CA 90095 954487417 501(C)(3) 200000 0 NOT APPLICABLE NOT APPLICABLE RESEARCH PART I, LINE 2: REGULAR CORRESPONDENCE WITH GRANTEE AND REPORT OF FINDINGS TO MEDICAL ADVISORY BOARD X X 0 0 0 0 0 0 0 0 0 ELIZABETH BUTLER EXECUTIVE DIRECTOR 285450 0 0 0 0 0 14400 0 35665 0 335515 0 0 0 MAUREEN NEVILLE DIR OF MKTG & COMMUNICATIO 156900 0 0 0 0 0 7845 0 25089 0 189834 0 0 0 LAURA BLAIR CFO 156500 0 0 0 0 0 7232 0 12941 0 176673 0 0 0 FORM 990, PART VI, SECTION A, LINE 7A THE ORGANIZATION'S BOARD OF DIRECTORS NOMINATE AND VOTE TO ELECT THE GOVERNING BODY. FORM 990, PART VI, SECTION A, LINE 7B THE BOARD OF DIRECTORS APPROVES DECISIONS OF THE GOVERNING BODY. FORM 990, PART VI, SECTION A, LINE 8B THE COMMITTEES REPORT TO THE BOARD OF DIRECTORS, WHICH INFORMATION IS DOCUMENTED IN THE BOARD OF DIRECTOR MINUTES. FORM 990, PART VI, SECTION B, LINE 11B TREASURER, CFO, AND EXECUTIVE DIRECTOR REVIEW THE FORM 990 WITH THE PAID PREPARER PRIOR TO FILING. THE BOARD ALSO HAS AN OPPORTUNITY TO REVIEW BEFORE FILING. FORM 990, PART VI, SECTION B, LINE 12C COMMUNICATION AT BOARD MEETINGS. FORM 990, PART VI, SECTION B, LINE 15A SALARIES DETERMINED BASED ON NATIONAL HEALTH COUNCIL SALARY AND BENEFIT REPORT FORM 990, PART VI, SECTION C, LINE 19 FURNISHED ON WEBSITE AND UPON REQUEST. FORM 990, PART XII, LINE 2C AUDIT COMMITTEE APPROVE AUDITORS AND ASSUME RESPONSIBILITY FOR THE AUDIT.