2025-06-03T15:38:19-05:00 2024-12-31 236410283 ISDANER & COMPANY LLC ONE BALA PLAZA SUITE 502 BALA CYNWYD PA 19004 990 2024-01-01 222474769 GBSCIDP FOUNDATION INTERNATIONAL INC GUIL 6106670131 375 EAST ELM STREET SUITE 101 CONSHOHOCKEN PA 19428 ELIZABETH BUTLER EXECUTIVE DIRECTOR 6106670131 2025-05-30 1 1 JEFFREY S SILVER CPA MBA P00301622 6106684200 2025-05-30 2024 2025-03-06 01:10:19Z ELIZABETH BUTLER 375 EAST ELM STREET SUITE 101 CONSHOHOCKEN PA 19428 6264566 0 X WWW.GBS-CIDP.ORG X 1980 PA IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS AND FAMILIES AFFECTED BY GUILLAIN-BARRE, CIDP AND VARIANTS. PROVIDE PATIENT SUPPORT, RESEARCH SPONSORSHIP, AND LAY AND PROFESSIONAL EDUCATIONAL PROGRAMS WORLDWIDE. 14 14 21 206 0 0 5561480 4500282 0 0 668333 573240 -88470 -78359 6141343 4995163 798327 757575 0 0 1616000 2213068 0 0 321981 2021013 1663452 4435340 4634095 1706003 361068 15123436 16714766 1722069 1569094 13401367 15145672 X TO IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS AND FAMILIES WORLDWIDE AFFECTED BY GBS, CIDP AND VARIANTS BY 1) PROVIDING A NETWORK FOR ALL PATIENTS, THEIR CAREGIVERS AND FAMILIES 2) PROVIDING PUBLIC AND PROFESSIONAL EDUCATION PROGRAMS WORLDWIDE DESIGNED TO HEIGHTEN AWARENESS AND IMPROVE THE UNDERSTANDING AND TREATMENT OF GBS, CIDP AND VARIANTS. 3) EXPANDING THE FOUNDATION'S ROLE IN SPONSORING RESEARCH AND ENGAGING IN PATIENT ADVOCACY. 0 0 3928505 757575 DISTRIBUTION OF INFORMATION AND LITERATURE TO MEMBERS, HOSPITALS, DOCTORS, AND INDIVIDUALS UPON REQUEST; ORGANIZE AND SPONSOR SYMPOSIUM OR REGIONAL MEETING AND OTHER EDUCATIONAL AND RESEARCH PROGRAMS FOR MEDICAL PROFESSIONAL AND LAYPEOPLE; PROVIDE RESEARCH GRANTS TO FURTHER THE STUDY OF GUILLAIN-BARRE, CIDP AND VARIANTS. 3928505 1 1 0 1 0 0 0 0 0 0 1 0 0 1 1 1 1 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 7 0 1 21 1 0 0 0 0 0 0 0 0 0 0 0 0 X 14 14 0 0 0 0 0 1 1 1 0 0 1 1 1 1 1 1 1 1 1 0 0 AL AK AZ AR CA CO CT DE DC FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX VT VA WV WI WY X X LAURA BLAIR 6106670131 375 EAST ELM STREET SUITE 101 CONSHOHOCKEN PA 19428 CORBIN WHITTINGTON PRESIDENT 10.00 X X 0 0 0 PETER DONOFRIO MD VICE PRESIDENT 5.00 X X 0 0 0 RUSSELL WALTER SECRETARY 5.00 X X 0 0 0 JIM YADLON TREASURER 5.00 X X 0 0 0 JEFF ALLEN MD DIRECTOR 1.00 X 0 0 0 BETSY BLAKE DIRECTOR 1.00 X 0 0 0 DIANA CASTRO DIRECTOR 1.00 X 0 0 0 MICHELE DEARING DIRECTOR 1.00 X 0 0 0 CHRISSIE JENKINS DIRECTOR 1.00 X 0 0 0 BRENDA PERALES DIRECTOR 1.00 X 0 0 0 CLIVE PHILLIPS DIRECTOR 1.00 X 0 0 0 DAVE ROSSNER DIRECTOR 1.00 X 0 0 0 SHANE SUMLIN DIRECTOR 1.00 X 0 0 0 VALENTINA TREVINO DIRECTOR 1.00 X 0 0 0 ELIZABETH BUTLER EXECUTIVE DIRECTOR 40.00 X 329280 0 47390 LAURA BLAIR CFO 40.00 X 200000 0 22727 MAUREEN NEVILLE DIR OF MKTG & COMMUNICATIO 40.00 X 200000 0 34726 729280 0 104843 3 0 1 0 0 755992 3744290 15107 4500282 318618 318618 1444277 1189655 254622 254622 254622 1389 755992 79748 -78359 -78359 4995163 0 0 494881 43535 43535 714040 714040 599397 376018 204545 18834 1341697 1154681 4706 182310 52453 39530 6260 6663 91842 68038 12239 11565 127679 101691 13723 12265 6960 6960 23450 23450 82304 82304 9059 7377 1203 479 59817 40486 17838 1493 179087 147531 9385 22171 232977 227424 174 5379 18374 15136 963 2275 26736 22025 1401 3310 ON-DEMAND EDUCATION PRO 258750 258750 PATIENT ASSISTANCE FUND 250000 250000 CONTRACTED SERVICES 223873 202852 3311 17710 PRINTING 93727 73600 20127 198338 178831 2107 17400 4634095 3928505 383609 321981 464371 726311 601152 473784 58948 177760 59022 119354 163810 84539 77108 79271 12815241 14182210 1047594 956076 15123436 16714766 37164 84187 647123 533057 10000 1037782 941850 1722069 1569094 X 13401367 15145672 13401367 15145672 15123436 16714766 361068 1383237 0 X X 0 1 X 1 0 X 2875001 3037143 3994796 5561480 4500282 19968702 2875001 3037143 3994796 5561480 4500282 19968702 11498241 8470461 140919 145652 204168 261732 318618 1071089 400 400 21040191 0.40260 0.42720 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 65229 65229 4568866 4634095 381705 95426 0 0 286800 344424 371767 381705 1384696 2077044 63607 65155 65619 65229 259610 71700 86106 92942 95426 346174 519261 35565 4370 31195 128245 80169 48076 79271 SECURITY DEPOSIT 14226 RIGHT OF USE ASSET - NET OPERATING LEASE 941850 956076 LEASE LIABILITY 941850 941850 X 6296096 1383237 1383237 4912859 82304 82304 4995163 4551791 0 4551791 82304 82304 4634095 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. FINANCIAL ACCOUNTING STANDARDS BOARD ("FASB") ACCOUNTING STANDARDS CODIFICATION TOPIC 740, INCOME TAXES CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES RECOGNIZED IN AN ENTITY'S FINANCIAL STATEMENTS AND PRESCRIBES A RECOGNITION THRESHOLD OF MORE-LIKELY-THAN-NOT TO BE SUSTAINED UPON EXAMINATION BY THE APPROPRIATE TAXING AUTHORITY. MEASUREMENT OF THE TAX UNCERTAINTY OCCURS IF THE RECOGNITION THRESHOLD HAS BEEN MET. ASC TOPIC 740 ALSO PROVIDES GUIDANCE ON DERECOGNITION, CLASSIFICATION, INTEREST AND PENALTIES, ACCOUNTING IN INTERIM PERIODS, AND DISCLOSURE. NO LIABILITY FOR UNCERTAIN TAX POSTIONS WAS RECORDED AS OF DECEMBER 31, 2024 OR 2023. 1 EUROPE 0 0 GRANTS TO RECIPIENTS RESEARCH 664040 SOUTH ASIA 0 0 GRANTS TO RECIPIENTS RESEARCH 50000 0 0 0 0 0 0 714040 0 714040 EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 50000 BANK WIRE 0 BOOK EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 65000 BANK WIRE 0 BOOK EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 172000 BANK WIRE 0 BOOK EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 100000 BANK WIRE 0 BOOK EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 100000 BANK WIRE 0 BOOK EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM RESEARCH 173540 BANK WIRE 0 BOOK SOUTH ASIA RESEARCH 50000 0 0 0 0 0 0 0 PART I, LINE 2: REGULAR COMMUNICATIONS WITH GRANTEE, REVIEW OF RESEARCH PROCEDURES AND ANALYSIS OF RESULTS. WALK-A-THON 757381 755992 1389 79748 757381 755992 1389 79748 79748 -78359 1 UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER 7703 FLOYD CURL DRIVE SAN ANTONIO TX 78229 742586219 501(C)(3) 50000 0 NOT APPLICABLE NOT APPLICABLE RESEARCH 3 PART I, LINE 2: REGULAR CORRESPONDENCE WITH GRANTEE AND REPORT OF FINDINGS TO MEDICAL ADVISORY BOARD X X 0 0 0 0 0 0 0 0 0 ELIZABETH BUTLER EXECUTIVE DIRECTOR 329280 0 0 0 0 0 14400 0 32990 0 376670 0 0 0 MAUREEN NEVILLE DIR OF MKTG & COMMUNICATIO 200000 0 0 0 0 0 10000 0 24726 0 234726 0 0 0 LAURA BLAIR CFO 200000 0 0 0 0 0 10000 0 12727 0 222727 0 0 0 FORM 990, PART VI, SECTION A, LINE 7A THE ORGANIZATION'S BOARD OF DIRECTORS NOMINATE AND VOTE TO ELECT THE GOVERNING BODY. FORM 990, PART VI, SECTION A, LINE 7B THE BOARD OF DIRECTORS APPROVES DECISIONS OF THE GOVERNING BODY. FORM 990, PART VI, SECTION A, LINE 8B THE COMMITTEES REPORT TO THE BOARD OF DIRECTORS, WHICH INFORMATION IS DOCUMENTED IN THE BOARD OF DIRECTOR MINUTES. FORM 990, PART VI, SECTION B, LINE 11B TREASURER, CFO, AND EXECUTIVE DIRECTOR REVIEW THE FORM 990 WITH THE PAID PREPARER PRIOR TO FILING. THE BOARD ALSO HAS AN OPPORTUNITY TO REVIEW BEFORE FILING. FORM 990, PART VI, SECTION B, LINE 12C COMMUNICATION AT BOARD MEETINGS. FORM 990, PART VI, SECTION B, LINE 15A SALARIES DETERMINED BASED ON NATIONAL HEALTH COUNCIL SALARY AND BENEFIT REPORT FORM 990, PART VI, SECTION C, LINE 19 FURNISHED ON WEBSITE AND UPON REQUEST. FORM 990, PART XII, LINE 2C AUDIT COMMITTEE APPROVE AUDITORS AND ASSUME RESPONSIBILITY FOR THE AUDIT.