Nonprofit · EIN 22-2417590
SPINA BIFIDA OF WESTERN NEW YORK INC
Tax-exempt · MIDDLEPORT, NY 14105
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $108,114 | $18,345 | $89,769 | $565,672 | $0 | $565,672 |
| December 31, 2024 | 990 | $105,428 | $18,490 | $86,938 | $507,149 | $0 | $507,149 |
| December 31, 2023 | 990 | $110,467 | $20,439 | $90,028 | $420,211 | $0 | $420,211 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $6,972
- Program service revenue
- $4,344
- Investment income
- $88,745
- Net gain from sales of assets
- $82,530
- Net income from fundraising events
- $8,053
- Other revenue
- $8,053
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $400
- Program services (functional)
- $11,193
- Management and general (functional)
- $7,152
Balance sheet and other
- Total assets, start of year
- $507,149
- Total assets, end of year
- $565,672
- Total liabilities, end of year
- $0
- Net assets, end of year
- $565,672
- Publicly traded securities
- $511,990
- Net assets without donor restrictions
- $565,672
- Gross receipts
- $338,686
- Employees
- 0
- Volunteers
- 30
- Year formed
- 1981
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Nicholas Heilig | President Officer | 5 | $0 |
| Kristi Leone | Vice President Officer | 5 | $0 |
| Cynthia Carlson | Secretary Officer | 5 | $0 |
| Janet Slack | Treasurer Officer | 5 | $0 |
990 for the year ended December 31, 2024: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| NICHOLAS HEILIG | President Officer | 5 | $0 |
| KRISTI LEONE | VicePresident Officer | 5 | $0 |
| CYNTHIA CARLSON | Secretary Officer | 5 | $0 |
| JANET SLACK | Treasurer Officer | 5 | $0 |
990 for the year ended December 31, 2023: 4 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| NICHOLAS HEILIG | President Officer | 5 | $0 |
| KRISTI LEONE | VicePresident Officer | 5 | $0 |
| CYNTHIA CARLSON | Secretary Officer | 5 | $0 |
| JANET SLACK | Treasurer Officer | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 3515 DRUM RD, MIDDLEPORT, NY 14105-9742
- In care of
- % NICHOLAS HEILIG
- Signed the 990
- Nicholas Heilig, President
- Phone
- (716) 255-3254
- Website
- www.sbwny.org
- Return prepared by
- JLTHOM CPA PC
Mission
To empower people affected by Spina Bifida & other related conditions to live full & enriched lives by offering a community of strong relationships, support & education.
Program accomplishments
- Family/Individual Support Activities - ongoing throughout the year. Activities include recreational and social group activities for youth and adults to promote socialization, networking, public awareness and disability education.Expenses $11,193
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 22-2417590
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1982
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $565,672
- Income (IRS master file)
- $338,686
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $108,114 | $18,345 | $565,672 | XML |
| 990 | December 2024 | $105,428 | $18,490 | $507,149 | XML |
| 990 | December 2023 | $110,467 | $20,439 | $420,211 | XML |
| 990 | December 2022 | $55,136 | $114,768 | $330,183 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 22-2417590).
Questions about SPINA BIFIDA OF WESTERN NEW YORK INC
- What is the EIN of SPINA BIFIDA OF WESTERN NEW YORK INC?
- The employer identification number (EIN) of SPINA BIFIDA OF WESTERN NEW YORK INC is 22-2417590.
- Is SPINA BIFIDA OF WESTERN NEW YORK INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1982.
- Are donations to SPINA BIFIDA OF WESTERN NEW YORK INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SPINA BIFIDA OF WESTERN NEW YORK INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SPINA BIFIDA OF WESTERN NEW YORK INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SPINA BIFIDA OF WESTERN NEW YORK INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who are the officers and directors of SPINA BIFIDA OF WESTERN NEW YORK INC?
- The 990 for the year ended December 31, 2025 lists 4 people; 0 received compensation from the organization.
- How much revenue does SPINA BIFIDA OF WESTERN NEW YORK INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $108,114, expenses of $18,345 and total assets of $565,672 at year end.
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