Nonprofit · EIN 13-3753992
MOEBIUS SYNDROME FOUNDATION
Tax-exempt · DENVER, CO 80202
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $1,072,751 | $760,403 | $312,348 | $2,539,041 | $105,458 | $2,433,583 |
| December 31, 2024 | 990 | $338,157 | $283,083 | $55,074 | $1,978,268 | $8,019 | $1,970,249 |
| December 31, 2023 | 990 | $458,300 | $599,259 | -$140,959 | $1,833,572 | $3,086 | $1,830,486 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $961,604
- Program service revenue
- $38,678
- Investment income
- $67,729
- Net gain from sales of assets
- $12,113
- Other revenue
- $4,740
Expenses
- Grants and similar amounts paid
- $227,648
- Compensation of officers, directors and key employees
- $95,387
- Other salaries and wages
- $51,788
- Salaries, compensation and benefits (total)
- $159,010
- Professional fundraising fees
- $0
- Legal fees
- $6,000
- Accounting fees
- $14,770
- Travel
- $2,665
- Program services (functional)
- $659,681
- Management and general (functional)
- $78,494
- Fundraising (functional)
- $22,228
Balance sheet and other
- Total assets, start of year
- $1,978,268
- Total assets, end of year
- $2,539,041
- Total liabilities, end of year
- $105,458
- Net assets, end of year
- $2,433,583
- Publicly traded securities
- $1,727,503
- Net assets without donor restrictions
- $1,841,865
- Net assets with donor restrictions
- $591,718
- Gross receipts
- $1,444,793
- Employees
- 2
- Volunteers
- 111
- Year formed
- 1994
- State of legal domicile
- CO
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jennifer Whitman | Executive Director Officer | 50 | $95,392 |
| Rebecca Maher | President Trustee or director, Officer | 10 | $0 |
| Steven Maldonado | Vice President Trustee or director, Officer | 2 | $0 |
| Destiny Bachman | Treasurer Trustee or director, Officer | 10 | $0 |
| Jon Fisher | Secretary Trustee or director, Officer | 10 | $0 |
| Bryn Webb MD | Board Member Trustee or director | 2 | $0 |
| KiOwana Phillips | Board Member Trustee or director | 2 | $0 |
| Kathryn Kraus McClure MD | Board Member Trustee or director | 2 | $0 |
| Michael Mendenhall Esq | Board Member Trustee or director | 2 | $0 |
| Bobby Medow | Board Member Trustee or director | 2 | $0 |
| Tara Lewis PhD | Board Member Trustee or director | 2 | $0 |
| Lucia Santistevan MD | Board Member Trustee or director | 2 | $0 |
990 for the year ended December 31, 2024: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jennifer Whitman | Executive Director Officer | 40 | $90,018 |
| Austin Halls | Board Member Trustee or director | 2 | $0 |
| Vicky McCarrell | Board Member Trustee or director | 2 | $0 |
| KiOwana Phillips | Board Member Trustee or director | 2 | $0 |
| Kathryn Kraus | Board Member Trustee or director | 2 | $0 |
| Bryn Webb MD | Board Member Trustee or director | 2 | $0 |
| Rebecca Maher | President Trustee or director, Officer | 10 | $0 |
| Destiny Bachman | Treasurer Trustee or director, Officer | 10 | $0 |
| Jon Fisher | Secretary Trustee or director, Officer | 10 | $0 |
| Steven Maldonado | Vice President Trustee or director, Officer | 2 | $0 |
| Jacob Licht | Past President Trustee or director, Officer | 10 | $0 |
990 for the year ended December 31, 2023: 12 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Jennifer Whitman | Executive Director Officer | 40 | $91,410 |
| Jon Fisher | Board Member Trustee or director | 2 | $0 |
| Monica Woodall | Board Member Trustee or director | 2 | $0 |
| Destiny Bachman | Board Member Trustee or director | 2 | $0 |
| KiOwana Phillips | Board Member Trustee or director | 2 | $0 |
| Kathryn Kraus | Board Member Trustee or director | 2 | $0 |
| Austin Halls | Board Member Trustee or director | 2 | $0 |
| Bryn Webb MD | Board Member Trustee or director | 2 | $0 |
| Jacob Licht | President Trustee or director, Officer | 10 | $0 |
| Vicki McCarrell | Treasurer Trustee or director, Officer | 10 | $0 |
| Rebecca Maher | Secretary Trustee or director, Officer | 10 | $0 |
| Steven Maldonado | Vice President Trustee or director, Officer | 2 | $0 |
Address and contacts
- Address (IRS master file)
- 1312 17TH STREET 976, DENVER, CO 80202-1508
- Principal officer (990 for 2025)
- Rebecca Maher, 1312 17th Street 976, Denver, CO 80202
- Signed the 990
- Rebecca Maher, President
- Phone
- (844) 663-2487
- Website
- www.moebiussyndrome.org
- Return prepared by
- Kositzka Wicks and Company
Mission
The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
Program accomplishments
- Provide information and support to individuals with Moebius syndrome and their families. The newsletter and biannual conference are the primary means of accomplishing this goal.Expenses $389,038 · revenue $43,418
- Advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.Expenses $246,643 · grants $203,648
- To provide college scholarships to students with Moebius Syndrome.Expenses $24,000 · grants $24,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 13-3753992
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1994
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Philanthropy, voluntarism and grantmaking foundations (T30)
- Assets (IRS master file)
- $2,539,041
- Income (IRS master file)
- $1,444,793
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $1,072,751 | $760,403 | $2,539,041 | XML |
| 990 | December 2024 | $338,157 | $283,083 | $1,978,268 | XML |
| 990 | December 2023 | $458,300 | $599,259 | $1,833,572 | XML |
| 990 | December 2022 | $358,125 | $519,527 | $1,898,826 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 13-3753992).
Questions about MOEBIUS SYNDROME FOUNDATION
- What is the EIN of MOEBIUS SYNDROME FOUNDATION?
- The employer identification number (EIN) of MOEBIUS SYNDROME FOUNDATION is 13-3753992.
- Is MOEBIUS SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1994.
- Are donations to MOEBIUS SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does MOEBIUS SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of MOEBIUS SYNDROME FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did MOEBIUS SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of MOEBIUS SYNDROME FOUNDATION?
- The 990 for the year ended December 31, 2025 names Rebecca Maher.
- Who are the officers and directors of MOEBIUS SYNDROME FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 12 people; 1 received compensation from the organization, the highest $95,392 (Jennifer Whitman, Executive Director).
- How much revenue does MOEBIUS SYNDROME FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $1,072,751, expenses of $760,403 and total assets of $2,539,041 at year end.
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