2024-05-07T14:27:14-05:00 2023-12-31 541342298 Kositzka Wicks and Company 5270 Shawnee Road Suite 250 Alexandria VA 22312 990 2023-01-01 133753992 Moebius Syndrome Foundation MOEB 2404219755 1312 17th Street 976 Denver CO 80202 Jacob Licht President 2404219755 2024-05-06 1 Jacob Licht XXX-XX-XXXX 1 Jennica Jardine Whitfield CPA P01379267 7036422700 2 AAL1 IAL1 2023 2023-04-26 12:10:37Z Jacob Licht 1312 17th Street 976 Denver CO 80202 458300 0 X www.moebiussyndrome.org X 1994 DE To provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions 11 11 3 1 0 0 240979 322045 69422 66366 47724 68250 0 1639 358125 458300 12000 91000 0 0 129224 141482 0 0 27032 378303 366777 519527 599259 -161402 -140959 1898826 1833572 45653 3086 1853173 1830486 X The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions. 0 0 315245 66366 Provide information and support to individuals with Moebius syndrome and their families. The newsletter and biannual conference are the primary means of accomplishing this goal. 135077 70000 Advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions. 21000 21000 To provide college scholarships to students with Moebius Syndrome. 471322 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 3 0 1 3 1 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 1 0 0 1 1 1 0 0 0 0 0 0 AL AR CA FL GA HI IL KS KY MD MA MI MN NH NJ NM NY NC ND OR PA RI SC TN VA WV WI X Moebius Syndrome Foundation 6608343406 6879 Hwy 135 Pilot Grove MO 65276 Jon Fisher Board Member 2.00 X 0 0 0 Monica Woodall Board Member 2.00 X 0 0 0 Destiny Bachman Board Member 2.00 X 0 0 0 KiOwana Phillips Board Member 2.00 X 0 0 0 Kathryn Kraus Board Member 2.00 X 0 0 0 Austin Halls Board Member 2.00 X 0 0 0 Bryn Webb MD Board Member 2.00 X 0 0 0 Jacob Licht President 10.00 X X 0 0 0 Vicki McCarrell Treasurer 10.00 X X 0 0 0 Rebecca Maher Secretary 10.00 X X 0 0 0 Steven Maldonado Vice President 2.00 X X 0 0 0 Jennifer Whitman Executive Director 40.00 X 91410 0 0 91410 0 0 0 0 0 0 0 322045 322045 Conference registratio 611430 66366 66366 66366 68250 68250 Miscellaneous Income 900099 1639 1639 1639 458300 66366 0 69889 91000 91000 91410 33315 45051 13044 39775 39775 10297 5737 3536 1024 250 250 13200 13200 13182 13182 49842 39858 9984 15978 2995 19 12964 13797 2828 10969 14862 14234 628 207935 207935 2150 224 1926 Postage, printing, and 23032 22502 530 Dues, licenses, and sub 11153 9722 1431 Membership events 1396 1197 199 599259 471322 100905 27032 58401 38239 450 60255 1779720 1795333 1898826 1833572 5514 3086 40139 45653 3086 X 1782261 1829634 70912 852 1853173 1830486 1898826 1833572 -140959 118272 0 X 1 X 0 0 0 X 182833 66325 488888 240979 226576 1205601 4848 69422 66366 140636 187681 66325 488888 310401 292942 1346237 0 91419 164763 256182 91419 164763 256182 1090055 2109 25770 21766 47724 68247 165616 2109 25770 21766 47724 68247 165616 34389 34389 224179 92095 510654 358125 361189 1546242 0.70500 0.82050 0.10710 0.09360 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 X Part X, Line 2: Moebius Syndrome Foundation is exempt from income taxes under Section 501(c)(3) of the Internal Revenue Code. Income from certain activities not directly related to the Organization's exempt purpose is subject to taxation as unrelated business income. The Foundation had no unrelated business income for the year ended December 31, 2023. 1 Indiana University 107 S Indiana Ave Bloomington IN 47405 356001673 501(C)(3) 70000 0 For scientific and/or clinical research on Moebius syndrome University of South Florida 4202 E Fowler Ave Tampa FL 33620 593102112 501(C)(3) 3000 0 Scholarship Fayetteville State University 1200 Murchison Rd Fayetteville NC 28301 581238736 501(C)(3) 3000 0 Scholarship Butler Community College 107 College Dr Butler PA 16002 480690383 501(C)(3) 3000 0 Scholarship University of Hartford 200 Bloomfield Ave West Hartford CT 06117 060731360 501(C)(3) 3000 0 Scholarship The George Washington University 2121 I St NW Washington DC 20052 530196584 501(C)(3) 3000 0 Scholarship University of Maryland College 1101 Main Administration Bldg 7901 Regents Drive College Park MS 20742 526002033 501(C)(3) 3000 0 Scholarship Citrus Community College 1000 W Foothill Blvd Glendora CA 91741 952452557 501(C)(3) 3000 0 Scholarship Part I, Line 2: Moebius Syndrome Foundation maintains records and has regular check-ins with the scholarship recipients as the various colleges. Form 990, Part VI, Section B, line 11b All board members receive a copy of the Form 990. It is reviewed by the officers before filing. Form 990, Part VI, Section C, line 18 These documents are made available upon request. Form 990, Part VI, Section C, line 19 These documents are made available upon request.