Nonprofit · EIN 04-3222167
FRAXA RESEARCH FOUNDATION INC
Tax-exempt · NEWBURYPORT, MA 01950
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $2,444,786 | $1,992,357 | $452,429 | $5,503,274 | $0 | $5,503,274 |
| December 31, 2024 | 990 | $2,293,199 | $1,433,380 | $859,819 | $4,964,245 | $12,770 | $4,951,475 |
| December 31, 2023 | 990 | $2,044,969 | $1,804,308 | $240,661 | $3,961,307 | $13,492 | $3,947,815 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $2,175,285
- Program service revenue
- $0
- Investment income
- $194,302
- Net gain from sales of assets
- $59,945
- Net income from fundraising events
- $75,199
- Other revenue
- $75,199
Expenses
- Grants and similar amounts paid
- $1,503,223
- Compensation of officers, directors and key employees
- $319,337
- Other salaries and wages
- $62,489
- Salaries, compensation and benefits (total)
- $409,490
- Professional fundraising fees
- $0
- Accounting fees
- $7,250
- Occupancy
- $6,600
- Travel
- $2,964
- Program services (functional)
- $1,858,420
- Management and general (functional)
- $85,429
- Fundraising (functional)
- $48,508
Balance sheet and other
- Total assets, start of year
- $4,964,245
- Total assets, end of year
- $5,503,274
- Total liabilities, end of year
- $0
- Net assets, end of year
- $5,503,274
- Publicly traded securities
- $2,047,933
- Net assets without donor restrictions
- $5,463,274
- Net assets with donor restrictions
- $40,000
- Gross receipts
- $3,035,825
- Employees
- 3
- Volunteers
- 93
- Year formed
- 1994
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Katherine Clapp | President Trustee or director, Officer | 40 | $155,319 | $10,100 |
| Michael Tranfaglia | Medical Director/Treasurer/Secretary Trustee or director, Officer | 40 | $143,817 | $10,100 |
| Deborah Stevenson | Board Chair Trustee or director, Officer | 10 | $0 | $0 |
| Dean Clark | Director Trustee or director | 10 | $0 | $0 |
| Theodore Coutilish | Director Trustee or director | 10 | $0 | $0 |
| Leslie Eddy | Director Trustee or director | 10 | $0 | $0 |
| Andres Centellas | Director Trustee or director | 10 | $0 | $0 |
| Elizabeth Mazzola | Director Trustee or director | 10 | $0 | $0 |
| James Vershbow | Director Trustee or director | 10 | $0 | $0 |
| Ronald M Watkins Jr | Director Trustee or director | 10 | $0 | $0 |
| Sasa Zorovic | Vice President Trustee or director, Officer | 10 | $0 | $0 |
990 for the year ended December 31, 2024: 11 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Katherine Clapp | President Trustee or director, Officer | 40 | $150,381 | $6,698 |
| Michael Tranfaglia | Medical Director/Treasurer/Secretary Trustee or director, Officer | 40 | $139,245 | $8,141 |
| Deborah Stevenson | Board Chair Trustee or director, Officer | 10 | $0 | $0 |
| Dean Clark | Director Trustee or director | 10 | $0 | $0 |
| Theodore Coutilish | Director Trustee or director | 10 | $0 | $0 |
| Leslie Eddy | Director Trustee or director | 10 | $0 | $0 |
| Andres Centellas | Director Trustee or director | 10 | $0 | $0 |
| Jessica Haugen | Director Trustee or director | 10 | $0 | $0 |
| James Vershbow | Director Trustee or director | 10 | $0 | $0 |
| Ronald M Watkins Jr | Director Trustee or director | 10 | $0 | $0 |
| Sasa Zorovic | Director Trustee or director | 10 | $0 | $0 |
990 for the year ended December 31, 2023: 12 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| Katherine Clapp | President Trustee or director, Officer | 40 | $143,606 | $7,647 |
| Michael Tranfaglia | Medical Director/Treasurer/Secretary Trustee or director, Officer | 40 | $132,971 | $7,647 |
| Deborah Stevenson | Board Chair Trustee or director, Officer | 10 | $0 | $0 |
| Dean Clark | Director Trustee or director | 10 | $0 | $0 |
| Theodore Coutilish | Director Trustee or director | 10 | $0 | $0 |
| Leslie Eddy | Director Trustee or director | 10 | $0 | $0 |
| Andres Centellas | Director Trustee or director | 10 | $0 | $0 |
| Franziska Klebe | Director Trustee or director | 10 | $0 | $0 |
| Jessica Haugen | Director Trustee or director | 10 | $0 | $0 |
| James Vershbow | Director Trustee or director | 10 | $0 | $0 |
| Ronald M Watkins Jr | Director Trustee or director | 10 | $0 | $0 |
| Sasa Zorovic | Director Trustee or director | 10 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 10 PRINCE PLACE, NEWBURYPORT, MA 01950-2641
- In care of
- % KATHERINE N CLAPP PRES
- Principal officer (990 for 2025)
- Katherine N Clapp, 10 Prince Place Suite 203, Newburyport, MA 01950
- Signed the 990
- Katherine Clapp, President
- Phone
- (978) 462-1866
- Website
- www.fraxa.org
- Return prepared by
- FRITZ DEGUGLIELMO LLC
Mission
FRAXAs mission is to find effective treatments and ultimately a cure for Fragile X syndrome.
Program accomplishments
- To raise funds for the direct funding of grant research for the purpose of finding treatment and cure for Fragile X.Expenses $1,713,544 · grants $1,503,223
- To fund programs for the purpose of educating the general public about Fragile X.Expenses $144,876
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 04-3222167
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1994
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H99)
- Assets (IRS master file)
- $5,503,274
- Income (IRS master file)
- $3,035,825
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $2,444,786 | $1,992,357 | $5,503,274 | XML |
| 990 | December 2024 | $2,293,199 | $1,433,380 | $4,964,245 | XML |
| 990 | December 2023 | $2,044,969 | $1,804,308 | $3,961,307 | XML |
| 990 | December 2022 | $2,018,041 | $1,898,116 | $3,531,781 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 04-3222167).
Questions about FRAXA RESEARCH FOUNDATION INC
- What is the EIN of FRAXA RESEARCH FOUNDATION INC?
- The employer identification number (EIN) of FRAXA RESEARCH FOUNDATION INC is 04-3222167.
- Is FRAXA RESEARCH FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1994.
- Are donations to FRAXA RESEARCH FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FRAXA RESEARCH FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FRAXA RESEARCH FOUNDATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FRAXA RESEARCH FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of FRAXA RESEARCH FOUNDATION INC?
- The 990 for the year ended December 31, 2025 names Katherine N Clapp.
- Who are the officers and directors of FRAXA RESEARCH FOUNDATION INC?
- The 990 for the year ended December 31, 2025 lists 11 people; 2 received compensation from the organization, the highest $155,319 (Katherine Clapp, President).
- How much revenue does FRAXA RESEARCH FOUNDATION INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $2,444,786, expenses of $1,992,357 and total assets of $5,503,274 at year end.
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