Nonprofit · EIN 99-4323785
DCIS UNDERSTOOD INC
Tax-exempt · COLD SPRING, NY 10516
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $37,412 | $8,943 | $28,469 | $37,469 | $0 | $37,469 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $37,405
- Investment income
- $7
Expenses
- Compensation of officers, directors and key employees
- $0
- Professional fees and payments to contractors
- $3,375
- Printing, publications and postage
- $1,208
- Other expenses
- $4,360
- Program services (functional)
- $6,633
Balance sheet and other
- Total assets, start of year
- $9,000
- Total assets, end of year
- $37,469
- Total liabilities, end of year
- $0
- Net assets, end of year
- $37,469
- Cash, savings and investments
- $37,469
- Gross receipts
- $37,412
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JULIA STALDER | PRESIDENT | 40 | $0 |
| ASHLEY LITWIN DIEGO | DIRECTOR | 1 | $0 |
| SHIRA WEISSMAN | DIRECTOR | 1 | $0 |
| ERIN ANKIN | DIRECTOR | 1 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 373, COLD SPRING, NY 10516-0373
- In care of
- % JULIA STALDER
- Mailing address (990-N for 2024)
- PO Box 373, Cold Spring NY 10516
- Principal officer (990-N for 2024)
- Julia Stalder, PO Box 373, Cold Spring NY 10516
- Signed the 990-EZ
- JULIA STALDER, PRESIDENT
- Phone
- (917) 232-3329
- Website
- www.dcisunderstood.org
- Return prepared by
- FULLER LOWENBERG & CO CPAS PC
Mission
DCIS UNDERSTOOD IS A VOLUNTEER-LED 501(C)(3) PUBLIC CHARITY FOUNDED IN 2024 BY A PATIENT ADVOCATE. THE ORGANIZATION'S MISSION IS TO INCREASE AWARENESS AND KNOWLEDGE OF DUCTAL CARCINOMA IN SITU (DCIS) AND TO ACCELERATE DCIS RESEARCH THROUGH EDUCATION, ADVOCACY, AND FUNDING. DCIS IS A NON-INVASIVE BREAST CONDITION, OFTEN REFERRED TO AS STAGE 0 BREAST CANCER, DIAGNOSED IN APPROXIMATELY 60,000 INDIVIDUALS IN THE UNITED STATES EACH YEAR. DESPITE ITS PREVALENCE, PATIENTS FREQUENTLY RECEIVE LIMITED INFORMATION AT DIAGNOSIS AND FACE COMPLEX, TIME-SENSITIVE TREATMENT DECISIONS WITH LITTLE PATIENT-CENTERED GUIDANCE AVAILABLE. DCIS UNDERSTOOD WAS FOUNDED TO CLOSE THAT INFORMATION GAP AND TO GIVE PATIENTS AND THEIR FAMILIES A TRUSTED, INDEPENDENT SOURCE OF EDUCATION AND SUPPORT.
Program accomplishments
- THE ORGANIZATION OPERATES A SINGLE INTEGRATED PROGRAM THAT SERVES DCIS PATIENTS, THEIR FAMILIES, CLINICIANS, AND THE GENERAL PUBLIC THROUGH THREE COORDINATED ACTIVITIES. EDUCATION: THE ORGANIZATION PUBLISHES FREE, EVIDENCE-BASED EDUCATIONAL CONTENT INCLUDING DIAGNOSIS EXPLAINERS, TREATMENT OVERVIEWS, FREQUENTLY ASKED QUESTIONS, AND PLAIN-LANGUAGE SUMMARIES OF EMERGING CLINICAL RESEARCH REVIEWED FOR ACCURACY BY A VOLUNTEER ADVISORY COUNCIL OF BREAST ONCOLOGISTS, SURGEONS, AND RESEARCHERS. ADVOCACY: THE ORGANIZATION RAISES PUBLIC AWARENESS OF DCIS, PROMOTES INFORMED SHARED DECISION-MAKING BETWEEN PATIENTS AND THEIR CLINICIANS, AND WORKS TO ELEVATE THE PATIENT VOICE IN RESEARCH AND POLICY PRIORITIES. SUPPORT: THE ORGANIZATION PROVIDES COPING RESOURCES AND CURATED REFERRALS TO SUPPORT COMMUNITIES FOR INDIVIDUALS NAVIGATING A DCIS DIAGNOSIS. THESE ACTIVITIES ARE DELIVERED PRIMARILY THROUGH THE ORGANIZATION'S PUBLIC WEBSITE (DCISUNDERSTOOD.ORG) AND THROUGH PARTNERSHIPS WITH CLINICIANS, RESEARCHERS, AND PATIENT COMMUNITIES.DURING THE TAX YEAR, DCIS UNDERSTOOD LAUNCHED ITS PUBLIC EDUCATIONAL PLATFORM AT DCISUNDERSTOOD.ORG AND REACHED APPROXIMATELY 2,200 NEW USERS FROM THE UNITED STATES AND NINE OTHER COUNTRIES SEEKING INFORMATION ABOUT DCIS. THE ORGANIZATION CONVENED A VOLUNTEER ADVISORY COUNCIL OF SEVEN BREAST-CANCER CLINICIANS AND RESEARCHERS; PUBLISHED A PATIENT EDUCATION BROCHURE FOR NEWLY DIAGNOSED INDIVIDUALS IN BOTH ENGLISH AND SPANISH; LAUNCHED A BLOG ON THE ORGANIZATION'S WEBSITE AND PUBLISHED 20 EDUCATIONAL ARTICLES AND RESEARCH SUMMARIES; LAUNCHED A QUARTERLY E-NEWSLETTER, GROWING THE SUBSCRIBER BASE TO 200; BEGAN DEVELOPMENT OF AN INTEGRATED AI ASSISTANT DESIGNED TO ANSWER COMMON PATIENT QUESTIONS ABOUT DCIS DIRECTLY ON THE WEBSITE; AND ESTABLISHED A SOCIAL MEDIA STRATEGY AND INITIATED ITS ROLLOUT TO EXPAND THE ORGANIZATION'S REACH. IN ADDITION, THE ORGANIZATION ATTENDED THE SAN ANTONIO BREAST CANCER SYMPOSIUM AND THE ANNUAL BREAST CANCER SYMPOSIUM IN HUDSON, NY, WHICH YIELDED NUMEROUS PARTNERSHIPS AND PROFESSIONAL CONNECTIONS; PARTICIPATED IN A WIDELY FOLLOWED PODCAST; WAS FEATURED IN AN ARTICLE IN CURE MAGAZINE; AND LAUNCHED A COORDINATED FUNDRAISING STRATEGY DESIGNED TO ENGAGE INDIVIDUAL DONORS, FOUNDATIONS, AND CORPORATE PARTNERS; ALL CONTRIBUTIONS RECEIVED DURING THE TAX YEAR CAME FROM INDIVIDUAL DONORS. ALL PROGRAM WORK WAS PERFORMED BY VOLUNTEERS, INCLUDING THE FOUNDER AND BOARD OF DIRECTORS; THE ORGANIZATION HAD NO PAID STAFF DURING THE TAX YEAR.Expenses $6,633
What it must file and when
IRS records say it files Form 990-N (e-Postcard). Gross receipts normally $50,000 or less. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-N on file |
| 2023 | December 31, 2023 | May 15, 2024 | Check at the IRS |
IRS record
- EIN
- 99-4323785
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2024
- Accounting year ends
- December
- Files
- Form 990-N (e-Postcard)
- Category (NTEE)
- Voluntary health associations and medical disciplines (G32)
- Assets (IRS master file)
- $37,469
- Income (IRS master file)
- $37,412
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $37,412 | $8,943 | $37,469 | XML |
| 990-N for 2024 Officer: Julia Stalder | December 31, 2024 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 99-4323785).
Questions about DCIS UNDERSTOOD INC
- What is the EIN of DCIS UNDERSTOOD INC?
- The employer identification number (EIN) of DCIS UNDERSTOOD INC is 99-4323785.
- Is DCIS UNDERSTOOD INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2024.
- Are donations to DCIS UNDERSTOOD INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does DCIS UNDERSTOOD INC file?
- Form 990-N (e-Postcard). Gross receipts normally $50,000 or less.
- When is the next return of DCIS UNDERSTOOD INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did DCIS UNDERSTOOD INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of DCIS UNDERSTOOD INC?
- The 990-N for 2024 names Julia Stalder.
- Who are the officers and directors of DCIS UNDERSTOOD INC?
- The 990-EZ for the year ended December 31, 2025 lists 4 people; 0 received compensation from the organization.
- How much revenue does DCIS UNDERSTOOD INC have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $37,412, expenses of $8,943 and total assets of $37,469 at year end.
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All nonprofits in COLD SPRING · New York · Voluntary health associations and medical disciplines