2026-07-13T10:01:03-05:00 2025-12-31 200066099 FULLER LOWENBERG & CO CPAS PC 200 MOTOR PKWY D-24 HAUPPAUGE NY 11788 990EZ 2025-01-01 994323785 DCIS UNDERSTOOD INC DCIS 9172323329 PO BOX 373 COLD SPRING NY 10516 JULIA STALDER PRESIDENT 9172323329 2026-07-06 1 LYNN GIUGLIANO CPA P00955404 6314997900 2025 2025-03-06 01:10:19Z X DCISUNDERSTOOD.ORG X X 37412 X 37405 7 37412 3375 1208 4360 8943 28469 9000 0 37469 9000 37469 9000 37469 0 0 9000 37469 X DCIS UNDERSTOOD IS A VOLUNTEER-LED 501(C)(3) PUBLIC CHARITY FOUNDED IN 2024 BY A PATIENT ADVOCATE. THE ORGANIZATION'S MISSION IS TO INCREASE AWARENESS AND KNOWLEDGE OF DUCTAL CARCINOMA IN SITU (DCIS) AND TO ACCELERATE DCIS RESEARCH THROUGH EDUCATION, ADVOCACY, AND FUNDING. DCIS IS A NON-INVASIVE BREAST CONDITION, OFTEN REFERRED TO AS STAGE 0 BREAST CANCER, DIAGNOSED IN APPROXIMATELY 60,000 INDIVIDUALS IN THE UNITED STATES EACH YEAR. DESPITE ITS PREVALENCE, PATIENTS FREQUENTLY RECEIVE LIMITED INFORMATION AT DIAGNOSIS AND FACE COMPLEX, TIME-SENSITIVE TREATMENT DECISIONS WITH LITTLE PATIENT-CENTERED GUIDANCE AVAILABLE. DCIS UNDERSTOOD WAS FOUNDED TO CLOSE THAT INFORMATION GAP AND TO GIVE PATIENTS AND THEIR FAMILIES A TRUSTED, INDEPENDENT SOURCE OF EDUCATION AND SUPPORT. THE ORGANIZATION OPERATES A SINGLE INTEGRATED PROGRAM THAT SERVES DCIS PATIENTS, THEIR FAMILIES, CLINICIANS, AND THE GENERAL PUBLIC THROUGH THREE COORDINATED ACTIVITIES. EDUCATION: THE ORGANIZATION PUBLISHES FREE, EVIDENCE-BASED EDUCATIONAL CONTENT INCLUDING DIAGNOSIS EXPLAINERS, TREATMENT OVERVIEWS, FREQUENTLY ASKED QUESTIONS, AND PLAIN-LANGUAGE SUMMARIES OF EMERGING CLINICAL RESEARCH REVIEWED FOR ACCURACY BY A VOLUNTEER ADVISORY COUNCIL OF BREAST ONCOLOGISTS, SURGEONS, AND RESEARCHERS. ADVOCACY: THE ORGANIZATION RAISES PUBLIC AWARENESS OF DCIS, PROMOTES INFORMED SHARED DECISION-MAKING BETWEEN PATIENTS AND THEIR CLINICIANS, AND WORKS TO ELEVATE THE PATIENT VOICE IN RESEARCH AND POLICY PRIORITIES. SUPPORT: THE ORGANIZATION PROVIDES COPING RESOURCES AND CURATED REFERRALS TO SUPPORT COMMUNITIES FOR INDIVIDUALS NAVIGATING A DCIS DIAGNOSIS. THESE ACTIVITIES ARE DELIVERED PRIMARILY THROUGH THE ORGANIZATION'S PUBLIC WEBSITE (DCISUNDERSTOOD.ORG) AND THROUGH PARTNERSHIPS WITH CLINICIANS, RESEARCHERS, AND PATIENT COMMUNITIES.DURING THE TAX YEAR, DCIS UNDERSTOOD LAUNCHED ITS PUBLIC EDUCATIONAL PLATFORM AT DCISUNDERSTOOD.ORG AND REACHED APPROXIMATELY 2,200 NEW USERS FROM THE UNITED STATES AND NINE OTHER COUNTRIES SEEKING INFORMATION ABOUT DCIS. THE ORGANIZATION CONVENED A VOLUNTEER ADVISORY COUNCIL OF SEVEN BREAST-CANCER CLINICIANS AND RESEARCHERS; PUBLISHED A PATIENT EDUCATION BROCHURE FOR NEWLY DIAGNOSED INDIVIDUALS IN BOTH ENGLISH AND SPANISH; LAUNCHED A BLOG ON THE ORGANIZATION'S WEBSITE AND PUBLISHED 20 EDUCATIONAL ARTICLES AND RESEARCH SUMMARIES; LAUNCHED A QUARTERLY E-NEWSLETTER, GROWING THE SUBSCRIBER BASE TO 200; BEGAN DEVELOPMENT OF AN INTEGRATED AI ASSISTANT DESIGNED TO ANSWER COMMON PATIENT QUESTIONS ABOUT DCIS DIRECTLY ON THE WEBSITE; AND ESTABLISHED A SOCIAL MEDIA STRATEGY AND INITIATED ITS ROLLOUT TO EXPAND THE ORGANIZATION'S REACH. IN ADDITION, THE ORGANIZATION ATTENDED THE SAN ANTONIO BREAST CANCER SYMPOSIUM AND THE ANNUAL BREAST CANCER SYMPOSIUM IN HUDSON, NY, WHICH YIELDED NUMEROUS PARTNERSHIPS AND PROFESSIONAL CONNECTIONS; PARTICIPATED IN A WIDELY FOLLOWED PODCAST; WAS FEATURED IN AN ARTICLE IN CURE MAGAZINE; AND LAUNCHED A COORDINATED FUNDRAISING STRATEGY DESIGNED TO ENGAGE INDIVIDUAL DONORS, FOUNDATIONS, AND CORPORATE PARTNERS; ALL CONTRIBUTIONS RECEIVED DURING THE TAX YEAR CAME FROM INDIVIDUAL DONORS. ALL PROGRAM WORK WAS PERFORMED BY VOLUNTEERS, INCLUDING THE FOUNDER AND BOARD OF DIRECTORS; THE ORGANIZATION HAD NO PAID STAFF DURING THE TAX YEAR. 0 6633 6633 JULIA STALDER PRESIDENT 40.00 0 0 0 ASHLEY LITWIN DIEGO DIRECTOR 1.00 0 0 0 SHIRA WEISSMAN DIRECTOR 1.00 0 0 0 ERIN ANKIN DIRECTOR 1.00 0 0 0 X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 NY THE ORGANIZATION PO BOX 373 COLD SPRING NY 10516 9172323329 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 9000 37405 46405 9000 37405 46405 0 0 0 46405 7 7 7 7 9000 37412 46412 X PART III, SHORT YEAR EXPLANATION: THE ORGANIZATION WAS FORMED IN 2024. THE ORGANIZATION DID NOT OPERATE FOR A FULL 12-MONTH TAX YEAR DURING ITS FIRST REPORTING PERIOD. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990-EZ, PART I, LINE 4 - OTHER INVESTMENT INCOME DESCRIPTION: INTEREST INCOME. AMOUNT: 7. FORM 990-EZ, PART I, LINE 16 - OTHER EXPENSES DESCRIPTION: CONFERENCES AND MEETINGS. AMOUNT: 150. DESCRIPTION: DUES AND SUBSCRIPTIONS. AMOUNT: 147. DESCRIPTION: OFFICE SUPPLIES. AMOUNT: 365. DESCRIPTION: TRAVEL. AMOUNT: 3,503. DESCRIPTION: SOFTWARE. AMOUNT: 130. DESCRIPTION: GIFTS. AMOUNT: 65. TOTAL TO FORM 990-EZ, LINE 16: 4,360. THE ORGANIZATION DID NOT, DURING THE YEAR, RECEIVE ANY FUNDS, DIRECTLY,OR INDIRECTLY, TO PAY PREMIUMS ON A PERSONAL BENEFIT CONTRACT.THE ORGANIZATION, DID NOT, DURING THE YEAR, PAY ANY PREMIUMS, DIRECTLY,OR INDIRECTLY, ON A PERSONAL BENEFIT CONTRACT.