Nonprofit · EIN 94-2738019
FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES
Tax-exempt · LANSDALE, PA 19446
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| September 30, 2025 | 990 | $966,515 | $1,072,101 | -$105,586 | $3,272,432 | $50,921 | $3,221,511 |
| September 30, 2024 | 990 | $1,970,863 | $1,182,513 | $788,350 | $3,282,013 | $46,944 | $3,235,069 |
| September 30, 2023 | 990 | $734,946 | $756,091 | -$21,145 | $2,074,173 | $19,514 | $2,054,659 |
Financial details: 990 for the year ended September 30, 2025
Revenue
- Contributions, gifts and grants
- $832,916
- Program service revenue
- $0
- Investment income
- $133,599
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $260,394
- Compensation of officers, directors and key employees
- $206,961
- Other salaries and wages
- $155,402
- Salaries, compensation and benefits (total)
- $397,463
- Professional fundraising fees
- $0
- Accounting fees
- $55,146
- Occupancy
- $1,708
- Travel
- $9,722
- Depreciation
- $7,597
- Program services (functional)
- $877,406
- Management and general (functional)
- $110,419
- Fundraising (functional)
- $84,276
Balance sheet and other
- Total assets, start of year
- $3,282,013
- Total assets, end of year
- $3,272,432
- Total liabilities, end of year
- $50,921
- Net assets, end of year
- $3,221,511
- Land, buildings and equipment
- $4,276
- Publicly traded securities
- $2,498,561
- Net assets without donor restrictions
- $2,135,632
- Net assets with donor restrictions
- $1,085,879
- Gross receipts
- $966,515
- Employees
- 3
- Volunteers
- 80
- Year formed
- 1981
- State of legal domicile
- PA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended September 30, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CHRISTOPHER BOYNTON | CHIEF EXEC. Officer | 40 | $206,961 |
| SARAH AUGHENBAUGH | BOARD MEMBER Trustee or director | 1 | $0 |
| JACKIE BARRETT | BOARD MEMBER Trustee or director | 1 | $0 |
| JEFFREY BLAKE | BOARD MEMBER Trustee or director | 1 | $0 |
| JOLIE CINA | BOARD MEMBER Trustee or director | 1 | $0 |
| MARK EVANS | VICE PRESIDE Trustee or director, Officer | 2 | $0 |
| BETH HAMPSHIRE | BOARD CHAIR Trustee or director, Officer | 2 | $0 |
| TEJAL KAMDAR | SECRETARY Trustee or director, Officer | 2 | $0 |
| SEAN MCTERNAN | CHAIR Trustee or director, Officer | 3 | $0 |
| BRITTANY CRAIGLOW MD | BOARD MEMBER Trustee or director | 1 | $0 |
| LATANYA BENJAMIN MD | BOARD MEMBER Trustee or director | 1 | $0 |
| SARAH ASCH MD | BOARD MEMBER Trustee or director | 1 | $0 |
| KEITH CHOATE MD PHD | BOARD MEMBER Trustee or director | 1 | $0 |
| BAILEY PRETAK | SECRETARY Trustee or director, Officer | 2 | $0 |
| JASON THOGMARTIN | CFO Trustee or director, Officer | 2 | $0 |
3 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| FULVIA VERONESE | BOARD MEMBER Trustee or director | 1 | $0 |
| JENNIE WIKLOW-RILEY | BOARD MEMBER Trustee or director | 1 | $0 |
| LOWELL WRIGHT | BOARD MEMBER Trustee or director | 1 | $0 |
990 for the year ended September 30, 2024: 18 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CHRISTOPHER BOYNTON | CHIEF EXEC. Officer | 40 | $208,365 |
| SARAH AUGHENBAUGH | BOARD MEMBER Trustee or director | 1 | $0 |
| JACKIE BARRETT | BOARD MEMBER Trustee or director | 1 | $0 |
| JEFFREY BLAKE | BOARD MEMBER Trustee or director | 1 | $0 |
| JOLIE CINA | BOARD MEMBER Trustee or director | 1 | $0 |
| MARK EVANS | VICE PRESIDE Trustee or director, Officer | 2 | $0 |
| BETH HAMPSHIRE | BOARD CHAIR Trustee or director, Officer | 2 | $0 |
| TEJAL KAMDAR | SECRETARY Trustee or director, Officer | 2 | $0 |
| SEAN MCTERNAN | CHAIR Trustee or director, Officer | 3 | $0 |
| BRITTANY CRAIGLOW MD | BOARD MEMBER Trustee or director | 1 | $0 |
| LATANYA BENJAMIN MD | BOARD MEMBER Trustee or director | 1 | $0 |
| SARAH ASCH MD | BOARD MEMBER Trustee or director | 1 | $0 |
| KEITH CHOATE MD PHD | BOARD MEMBER Trustee or director | 1 | $0 |
| BAILEY PRETAK | SECRETARY Trustee or director, Officer | 2 | $0 |
| JASON THOGMARTIN | CFO Trustee or director, Officer | 2 | $0 |
| FULVIA VERONESE | BOARD MEMBER Trustee or director | 1 | $0 |
| JENNIE WIKLOW-RILEY | BOARD MEMBER Trustee or director | 1 | $0 |
| LOWELL WRIGHT | BOARD MEMBER Trustee or director | 1 | $0 |
990 for the year ended September 30, 2023: 15 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| CHRISTOPHER BOYNTON | CHIEF EXEC. Officer | 40 | $182,895 |
| JACKIE BARRETT | BOARD MEMBER Trustee or director | 1 | $0 |
| JOLIE CINA | BOARD MEMBER Trustee or director | 1 | $0 |
| MARK EVANS | BOARD MEMBER Trustee or director | 1 | $0 |
| BETH HAMPSHIRE | BOARD CHAIR Trustee or director, Officer | 2 | $0 |
| TEJAL KAMDAR | BOARD MEMBER Trustee or director | 1 | $0 |
| SEAN MCTERNAN | BOARD MEMBER Trustee or director | 1 | $0 |
| BRITTANY CRAIGLOW MD | BOARD MEMBER Trustee or director | 1 | $0 |
| LATANYA BENJAMIN MD | BOARD MEMBER Trustee or director | 1 | $0 |
| SARAH ASCH MD | BOARD MEMBER Trustee or director | 1 | $0 |
| KEITH CHOATE MD PHD | BOARD MEMBER Trustee or director | 1 | $0 |
| BAILEY PRETAK | SECRETARY Trustee or director, Officer | 2 | $0 |
| BRIAN STERN | VICE CHAIR Trustee or director, Officer | 3 | $0 |
| JASON THOGMARTIN | CFO Trustee or director, Officer | 2 | $0 |
| LOWELL WRIGHT | BOARD MEMBER Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 1067, LANSDALE, PA 19446-0687
- Principal officer (990 for 2024)
- CHRISTOPHER BOYNTON, PO BOX 1067, LANSDALE, PA 19446
- Signed the 990
- CHRISTOPHER BOYNTON, CHIEF EXEC. OFFICER
- Phone
- (215) 977-9400
- Website
- WWW.FIRSTSKINFOUNDATION.ORG
- Return prepared by
- FRANCIS S INFURCHIA & COMPANY LLC
Mission
TO IMPROVE THE LIVES AND SEEK CURES FOR THOSE AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES.
Program accomplishments
- FIRST EDUCATES, INSPIRES, AND CONNECTS FAMILIES AND INDIVIDUALS AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES. FIRST HOSTS PATIENT SUPPORT FORUMS AND ALSO PROVIDES CRITICAL INFORMATION TO ITS MEMBERS AND THE GENERAL PUBLIC THROUGH ITS WEBSITE AND CALLS TO ITS KNOWLEDGEABLE STAFF. FIRST MAINTAINS AN ACTIVE SOCIAL MEDIA PRESENCE AND FACILITATES GROUP DISCUSSIONS. FIRST PROVIDES ACCURATE, NON-BIASED INFORMATION ON THE LATEST IN RESEARCH, DIAGNOSIS, AND MANAGEMENT OF ICHTHYOSIS AND RELATED SKIN TYPES, AND CRITICAL SUPPORT TO THOSE AFFECTED WITH THESE GENETIC CONDITIONS AND THOSE THAT CARE FOR THEM.Expenses $685,950 · grants $68,938
- ONE OF THE CORNERSTONES OF FIRST IS ITS EMPHASIS ON RESEARCH AND ITS SUPPORT OF THE YALE ICHTHYOSIS REGISTRY BOTH FINANCIALLY AND THROUGH ITS PROMOTION ACCROSS ITS COMMUNICATION CHANNELS. CRITICAL TO IMPROVING THE MANAGEMENT OF THEIR CONDITION, PARTICIPATION IN THE YALE REGISTRY PROVIDES EACH AFFECTED INDIVIDUAL A GENETIC DIAGNOSIS OF THEIR PARTICULAR TYPE OF ICHTHYOSIS OR OTHER SKIN TYPE. THE REGISTRY IS ALSO VITALLY IMPORTANT TO THE RESEARCH COMMUNITY AND CONTINUES TO BE REFERENCED IN NUMEROUS STUDIES AND MANUSCRIPTS. THE REGISTRY ALSO SERVES TO PROVIDE RESEARCH OPPORTUNITIES FOR TRAINING THE NEXT GENERATION OF PHYSICIAN SCIENTISTS.Expenses $191,456 · grants $191,456
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in September, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | September 30, 2026 | February 16, 2027 | Not due yet |
| 2024 | September 30, 2025 | February 17, 2026 | 990 on file |
| 2023 | September 30, 2024 | February 18, 2025 | 990 on file |
IRS record
- EIN
- 94-2738019
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1981
- Accounting year ends
- September
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $3,272,432
- Income (IRS master file)
- $966,515
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | September 2025 | $966,515 | $1,072,101 | $3,272,432 | XML |
| 990 | September 2024 | $1,970,863 | $1,182,513 | $3,282,013 | XML |
| 990 | September 2023 | $734,946 | $756,091 | $2,074,173 | XML |
| 990 | September 2022 | $708,551 | $891,681 | $1,958,602 | IRS |
| 990 | September 2021 | – | – | – | IRS |
| 990 | September 2020 | – | – | – | IRS |
| 990 | September 2019 | – | – | – | IRS |
| 990 | September 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 94-2738019).
Questions about FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES
- What is the EIN of FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES?
- The employer identification number (EIN) of FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES is 94-2738019.
- Is FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1981.
- Are donations to FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES due?
- The return for tax year 2025 (the year ending September 30, 2026) is due February 16, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended September 2025.
- Who is the principal officer of FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES?
- The 990 for the year ended September 30, 2025 names CHRISTOPHER BOYNTON.
- Who are the officers and directors of FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES?
- The 990 for the year ended September 30, 2025 lists 18 people; 1 received compensation from the organization, the highest $206,961 (CHRISTOPHER BOYNTON, CHIEF EXEC.).
- How much revenue does FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES have?
- On its 990 for the year ended September 30, 2025 it reported revenue of $966,515, expenses of $1,072,101 and total assets of $3,272,432 at year end.
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