2024-06-18T15:32:59-04:00 2023-09-30 261387840 FRANCIS S INFURCHIA & COMPANY LLC 45 EAST AVENUE NORWALK CT 06851 990 2022-10-01 942738019 FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES INC FOUN 2159779400 PO BOX 1067 LANSDALE PA 19446 CHRISTOPHER BOYNTON CHIEF EXEC. OFFICER 2159779400 2024-05-16 true CHRISTOPHER BOYNTON XXX-XX-XXXX false FRANCIS S INFURCHIA CPA P00594023 2038527088 2024-06-18 2022 2023-04-26 12:10:37Z FIRST CHRISTOPHER BOYNTON PO BOX 1067 LANSDALE PA 19446 1358794 false X WWW.FIRSTSKINFOUNDATION.ORG X 1981 PA TO IMPROVE LIVES AND SEEK CURES FOR THOSE AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES. 14 14 3 80 0 619447 676431 0 89104 58515 0 708551 734946 69336 108721 0 333753 349818 0 62147 488592 297552 891681 756091 -183130 -21145 1958602 2074173 32271 19514 1926331 2054659 TO IMPROVE THE LIVES AND SEEK CURES FOR THOSE AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES. false false 527291 15221 FIRST EDUCATES, INSPIRES, AND CONNECTS FAMILIES AND INDIVIDUALS AFFECTED BY ICHTHYOSIS AND RELATED SKIN TYPES. FIRST HOSTS PATIENT SUPPORT FORUMS AND ALSO PROVIDES CRITICAL INFORMATION TO ITS MEMBERS AND THE GENERAL PUBLIC THROUGH ITS WEBSITE AND CALLS TO ITS KNOWLEDGEABLE STAFF. FIRST MAINTAINS AN ACTIVE SOCIAL MEDIA PRESENCE AND FACILITATES GROUP DISCUSSIONS. FIRST PROVIDES ACCURATE, NON-BIASED INFORMATION ON THE LATEST IN RESEARCH, DIAGNOSIS, AND MANAGEMENT OF ICHTHYOSIS AND RELATED SKIN TYPES, AND CRITICAL SUPPORT TO THOSE AFFECTED WITH THESE GENETIC CONDITIONS AND THOSE THAT CARE FOR THEM. 93500 93500 ONE OF THE CORNERSTONES OF FIRST IS ITS EMPHASIS ON RESEARCH AND ITS SUPPORT OF THE YALE ICHTHYOSIS REGISTRY BOTH FINANCIALLY AND THROUGH ITS PROMOTION ACCROSS ITS COMMUNICATION CHANNELS. CRITICAL TO IMPROVING THE MANAGEMENT OF THEIR CONDITION, PARTICIPATION IN THE YALE REGISTRY PROVIDES EACH AFFECTED INDIVIDUAL A GENETIC DIAGNOSIS OF THEIR PARTICULAR TYPE OF ICHTHYOSIS OR OTHER SKIN TYPE. THE REGISTRY IS ALSO VITALLY IMPORTANT TO THE RESEARCH COMMUNITY AND CONTINUES TO BE REFERENCED IN NUMEROUS STUDIES AND MANUSCRIPTS. THE REGISTRY ALSO SERVES TO PROVIDE RESEARCH OPPORTUNITIES FOR TRAINING THE NEXT GENERATION OF PHYSICIAN SCIENTISTS. 620791 true true false false false false false false false true true false false false false false false false false false false false false false false false false true true true false false false false false false false false false false false false false false false false false true 0 0 false 3 true false false false false false false false false false false false false X 14 14 false false false false false false false true true false false true true true true true true true true false AR AK CA CT FL GA KS KY ME MA MD MI MN MS NC NH NJ NM NY OH OK OR PA RI SC TN UT VA WA WI WV ND X X X LISA BREUNING 2159779400 PO BOX 1067 LANSDALE PA 19446 CHRISTOPHER BOYNTON CHIEF EXEC. 40.00 X 182895 0 0 JACKIE BARRETT BOARD MEMBER 1.00 X 0 0 0 JOLIE CINA BOARD MEMBER 1.00 X 0 0 0 MARK EVANS BOARD MEMBER 1.00 X 0 0 0 BETH HAMPSHIRE BOARD CHAIR 2.00 X X 0 0 0 TEJAL KAMDAR BOARD MEMBER 1.00 X 0 0 0 SEAN MCTERNAN BOARD MEMBER 1.00 X 0 0 0 BRITTANY CRAIGLOW MD BOARD MEMBER 1.00 X 0 0 0 LATANYA BENJAMIN MD BOARD MEMBER 1.00 X 0 0 0 SARAH ASCH MD BOARD MEMBER 1.00 X 0 0 0 KEITH CHOATE MD PHD BOARD MEMBER 1.00 X 0 0 0 BAILEY PRETAK SECRETARY 2.00 X X 0 0 0 BRIAN STERN VICE CHAIR 3.00 X X 0 0 0 JASON THOGMARTIN CFO 2.00 X X 0 0 0 LOWELL WRIGHT BOARD MEMBER 1.00 X 0 0 0 182895 1 false true false 676431 676431 71603 71603 610760 623848 -13088 -13088 -13088 734946 -13088 71603 93500 93500 15221 15221 182895 144670 20667 17558 132600 104886 14984 12730 10566 8358 1194 1014 23757 18791 2685 2281 53432 42265 6037 5130 12939 10235 1462 1242 38902 30771 4396 3735 19473 15403 2200 1870 10855 8586 1227 1042 1368 1082 155 131 8588 6794 970 824 5528 4372 625 531 8263 6536 934 793 4771 3774 539 458 PRINTING & PUBLICATIONS 28575 22603 3229 2743 PUBLISHING 20000 15820 2260 1920 NATIONAL CONFERENCE & FOR 19935 15768 2253 1914 LICENSES 14543 11504 1643 1396 50380 39852 5693 4835 756091 620791 73153 62147 191700 157406 3624 15243 79566 63324 24505 16242 1738773 1885282 1958602 2074173 32271 19514 32271 19514 X 1043955 1172894 882376 881765 1926331 2054659 1958602 2074173 -21145 149473 X false true true false X 527211 675158 602335 619447 676431 3100582 527211 675158 602335 619447 676431 3100582 3100582 68780 60113 71642 97088 71603 369226 95950 95950 3565758 0.86950 0.86820 X PART II, LINE 10 MISCELLANEOUS INCOME 95,950 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 237850 160037 110013 110013 119617 false false 79566 63324 16242 16242 884419 149473 149473 734946 734946 756091 756091 756091 SCHEDULE D, PAGE 2, PART V, LINE 4 CORPUS OF THE ENDOWMENT ASSET IS HELD IN PERPETUITY FOR THE EDNA AND MYRON CURL ENDOWMENT, THE JANE BUKATY MEMBERSHIP ASSISTANCE FUND, THE WEARY FUND FOR FIRST, AND THE UFIRST SCHOLARSHIP FUND BASED ON DONOR-RESTRICTION. THE ENDOWMENT ASSET IS INVESTED IN A MIX OF EQUITY AND FIXED INCOME SECURITIES. INVESTMENT EARNINGS ON THE EDNA AND MYRON CURL ENDOWMENT ARE APPROPRIATED TO RESEARCH AND WILL BE SPENT WHEN THE ORGANIZATION'S BOARD OF DIRECTORS DETERMINE ENOUGH INTEREST HAS ACCUMULATED TO A LEVEL THAT WILL ENABLE THEM TO PROVIDE RESEARCH GRANTS. EARNINGS ON THE JANE BUKATY MEMBERSHIP ASSISTANCE FUND ARE USED TO PROVIDE FINANCIAL ASSISTANCE TO FAMILIES WITH ONE OR MORE AFFECTED INDIVIDUALS WHOSE FINANCIAL AND REIMBURSEMENT CIRCUMSTANCES MAKE OBTAINING ADEQUATE CARE AND TREATMENT DIFFICULT OR IMPOSSIBLE. EARNINGS ON THE WEARY FUND FOR FIRST WILL BE USED TO PURCHASE WINDOW AIR CONDITIONERS FOR FAMILIES OR INDIVIDUALS AFFECTED WITH ICHTHYOSIS OR A RELATED SKIN TYPE WHO DEMONSTRATE FINANCIAL NEED ANYWHERE IN THE UNITED STATES. EARNINGS ON THE UFIRST SCHOLARSHIP FUND ARE USED TO PROVIDE SCHOLARSHIPS FOR STUDENTS WITH A FORM OF ICHTHYOSIS OR RELATED SKIN TYPE TO ADVANCE THEIR POST-SECONDARY, GRADUATE, OR VOCATIONAL EDUCATION. false YALE UNIVERSITY 333 CEDAR STREET NEW HAVEN CT 06520 060646973 (C)(3) 93500 RESEARCH GRANT SCHOLARSHIPS FOR POST SEC 15221 X X X X X false false false false false false false false false CHRISTOPHER BOYNTON CHIEF EXEC. OFFICER 182895 182895 FORM 990 THE ICHTHYOSIS AND RELATED SKIN TYPES ARE A SET OF RARE SKIN DISEASES WITH NUMEROUS SERIOUS MEDICAL COMPLICATIONS AS WELL AS PSYCHOSOCIAL ISSUES DUE TO THE PHYSICAL APPEARANCES OF CHRONIC SCALING, CRACKING, THICKENED, BLISTERING, AND EXTREMELY RED SKIN. ACCESS TO ACCURATE MEDICAL INFORMATION AND EMOTIONAL SUPPORT IS INVALUABLE. IN TODAY'S WORLD OF TECHNOLOGY, FIRST'S WEBSITE AND DIGITAL PROGRAM SERVICES ARE CLOSING THE GAP BETWEEN MEMBERS, FAMILIES, CAREGIVERS, PHYSICIANS, AND RESEARCHERS. FIRST ADMINISTERS AND FUNDS FOUR INDIVIDUAL GRANT AND SCHOLARSHIP PROGRAMS FOR ITS MEMBERS. SCHOLORSHIP FUNDS ARE AVAILABLE FOR AFFECTED STUDENTS TO ADVANCE THEIR POST-SECONDARY EDUCATION. TWO FUNDS ARE AVAILABLE FOR SMALL GRANTS TO HELP MEMBERS WITH THE PURCHASE OF NEW CREAMS, LOTIONS, OR OTHER PRODUCTS TO HELP THEIR SKIN ROUTINE AND APPEARANCE. SCHOLARSHIPS ARE ALSO AVAILABLE FOR FAMILIES TO ATTEND THE NATIONAL CONFERENCE EVERY OTHER YEAR BY WAIVING THE REGISTRATION FEES AND PROVIDING OVERNIGHT ACCOMODATIONS. FORM 990, PAGE 6, PART VI, LINE 11B ONCE PREPARED THE 990 IS REVIEWED BY THE FINANCE COMMITTEE. THE BOARD OF DIRECTORS IS THEN SENT A COPY TO REVIEW, COMMENT, AND ASK QUESTIONS BEFORE THE FORM 990 IS SUBMITTED TO THE IRS. FORM 990, PAGE 6, PART VI, LINE 12C THE BOARD REVIEWS THE CONFLICT OF INTEREST POLICY ON AN ANNUAL BASIS. THE POLICY REQUIRES BOARD MEMBERS TO RECUSE THEMSELVES FROM DISCUSSION OR VOTING IF THE TOPIC REPRESENTS A CONFLICT OF INTEREST. FORM 990, PAGE 6, PART VI, LINE 15A LOCAL ORGANIZATIONS, SEARCH FIRMS, AND EMPLOYMENT AGENCIES ARE POLLED TO OBTAIN A SENSE OF APPROPRIATE COMPENSATION. A MORE DETAILED ANALYSIS OF MARKET RATES HAS BEEN PERFORMED TO ESTABLISH COMPENSATION IS COMMENSURATE WITH RESPONSIBILITIES AND PERFORMANCE. FORM 990, PAGE 6, PART VI, LINE 15B A DETAILED ANALYSIS OF MARKET RATES HAS BEEN PERFORMED TO ESTABLISH COMPENSATION IS COMMENSURATE WITH RESPONSIBILITIES AND PERFORMANCE. FORM 990, PAGE 6, PART VI, LINE 17 MISSISSIPPI, NORTH CAROLINA, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEW YORK, OHIO, OKLAHOMA, OREGON, PENNSYLVANIA, RHODE ISLAND, SOUTH CAROLINA, TENNESSEE, UTAH, VIRGINIA, WASHINGTON, WISCONSIN, WEST VIRGINIA, NORTH DAKOTA FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS AND CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. FINANCIAL STATEMENTS ARE PUBLISHED ON OUR WEBSITE AND AVAILABLE THROUGH OTHER WEBSITES SUCH AS GUIDESTAR AND CHARITY NAVIGATOR.