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Nonprofit · EIN 92-2174042

A RACE AGAINST BLINDNESS

Tax-exempt · GILBERT, AZ 85298

Financials

$188K$02023$12.5M$11.7M2024
Revenue Expenses · by fiscal year end
Financials of A RACE AGAINST BLINDNESS by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$12,464,243$11,731,696$732,547$1,070,052$149,846$920,206
December 31, 2023990$187,660$0$187,660$190,365$2,705$187,660
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$13,932,081
Program service revenue
$1,879
Investment income
-$27,826
Net gain from sales of assets
-$27,845
Net income from fundraising events
-$1,441,891
Other revenue
-$1,441,891

Expenses

Grants and similar amounts paid
$3,007,754
Compensation of officers, directors and key employees
$0
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$88,129
Legal fees
$7,273
Accounting fees
$24,488
Occupancy
$6,285
Travel
$18,197
Program services (functional)
$3,040,740
Management and general (functional)
$207,445
Fundraising (functional)
$8,483,511

Balance sheet and other

Total assets, start of year
$190,365
Total assets, end of year
$1,070,052
Total liabilities, end of year
$149,846
Net assets, end of year
$920,206
Net assets without donor restrictions
$920,206
Gross receipts
$14,015,979
Employees
0
Volunteers
3
Year formed
2023
State of legal domicile
AZ

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
Stephen JohnstonPresident
Trustee or director, Officer
50$0
Kristina JohnstonSecretary
Trustee or director, Officer
50$0
Shelley KramerTreasurer
Trustee or director, Officer
5$0
990 for the year ended December 31, 2023: 3 people
NameTitleHours / weekCompensation
Stephen JohnstonPresident
Trustee or director, Officer
50$0
Kristina JohnstonSecretary
Trustee or director, Officer
50$0
Shelley KramerTreasurer
Trustee or director, Officer
5$0

Address and contacts

Address (IRS master file)
4967 S ELLESMERE ST, GILBERT, AZ 85298-0617
Principal officer (990 for 2024)
Stephen Johnston, 4967 S Ellesmere St, Gilbert, AZ 85298
Signed the 990
Stephen Johnston, President
Phone
(520) 548-1807
Return prepared by
Upkeepe

Mission

The mission and purpose of this organization is to advocate for the communities affected by retinitis pigmentosa, Bardet-Biedl syndrome, blindness and low-vision disorders.

990 for the year ended December 31, 2024

Program accomplishments

  • A Race Against Blindness advocated for the communities affected by retinitis pigmentosa, Bardet-Biedl syndrome, blindness and low-vision disorders. In 2024 the organization raised awareness for these diseases and gained enthusiasm for the need to support and fund research to develop therapies and treatments for Bardet-Biedl Syndrome and Retinitis Pigmentosa.
    Expenses $3,040,740 · grants $3,007,754

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
92-2174042
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2023
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Medical research (H41)
Assets (IRS master file)
$1,070,052
Income (IRS master file)
$14,015,979

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$12,464,243$11,731,696$1,070,052XML
990December 2023$187,660$0$190,365XML

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 92-2174042).

Questions about A RACE AGAINST BLINDNESS

What is the EIN of A RACE AGAINST BLINDNESS?
The employer identification number (EIN) of A RACE AGAINST BLINDNESS is 92-2174042.
Is A RACE AGAINST BLINDNESS tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2023.
Are donations to A RACE AGAINST BLINDNESS tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does A RACE AGAINST BLINDNESS file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of A RACE AGAINST BLINDNESS due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did A RACE AGAINST BLINDNESS last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of A RACE AGAINST BLINDNESS?
The 990 for the year ended December 31, 2024 names Stephen Johnston.
Who are the officers and directors of A RACE AGAINST BLINDNESS?
The 990 for the year ended December 31, 2024 lists 3 people; 0 received compensation from the organization.
How much revenue does A RACE AGAINST BLINDNESS have?
On its 990 for the year ended December 31, 2024 it reported revenue of $12,464,243, expenses of $11,731,696 and total assets of $1,070,052 at year end.

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