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Nonprofit · EIN 91-1397792

BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION

Tax-exempt · GAHANNA, OH 43230

Financials

$746K$952K2023$602K$967K2024
Revenue Expenses · by fiscal year end
Financials of BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$601,964$967,326-$365,362$965,863$197,874$767,989
December 31, 2023990$746,147$952,036-$205,889$1,203,251$82,983$1,120,268
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$566,255
Program service revenue
$0
Investment income
$35,709
Other revenue
$0

Expenses

Grants and similar amounts paid
$135,863
Compensation of officers, directors and key employees
$100,000
Other salaries and wages
$230,829
Salaries, compensation and benefits (total)
$369,612
Professional fundraising fees
$0
Accounting fees
$36,590
Occupancy
$22,476
Travel
$37,925
Depreciation
$11,623
Program services (functional)
$685,086
Management and general (functional)
$202,640
Fundraising (functional)
$79,600

Balance sheet and other

Total assets, start of year
$1,203,251
Total assets, end of year
$965,863
Total liabilities, end of year
$197,874
Net assets, end of year
$767,989
Land, buildings and equipment
$22,739
Publicly traded securities
$570,630
Net assets without donor restrictions
$91,405
Net assets with donor restrictions
$676,584
Gross receipts
$601,964
Employees
5
Volunteers
40
Year formed
1987
State of legal domicile
OH

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
AMY FENTON PARKERPRESIDENT &
Officer
40$100,000
DARLENE ROYALTYBOARD CHAIR
Trustee or director, Officer
1$0
BARBARA WUEBBELSBOARD VICE C
Trustee or director, Officer
1$0
BARBARA MCDONOUGHSECRETARY
Trustee or director, Officer
1$0
FRED SURREYTREASURER
Trustee or director, Officer
1$0
JOHN IRELANDDIRECTOR
Trustee or director
1$0
WAYNE KIEFERDIRECTOR
Trustee or director
1$0
KATE HALLERDIRECTOR
Trustee or director
1$0
DAVE PEARCEDIRECTOR
Trustee or director
1$0
SUZETTE JAMESDIRECTOR
Trustee or director
1$0
FERNANDA LEAL-PARDINASDIRECTOR
Trustee or director
1$0
ANTHONY FERRANDINODIRECTOR
Trustee or director
1$0
DONNA FOGELDIRECTOR
Trustee or director
1$0
JOHN PATTERSONDIRECTOR
Trustee or director
1$0
990 for the year ended December 31, 2023: 15 people
NameTitleHours / weekCompensation
AMY FENTON PARKERPRESIDENT &
Officer
40$98,500
DARLENE ROYALTYBOARD CHAIR
Trustee or director, Officer
1$0
BARBARA WUEBBELSBOARD VICE C
Trustee or director, Officer
1$0
BARBARA MCDONOUGHSECRETARY
Trustee or director, Officer
1$0
FRED SURREYTREASURER
Trustee or director, Officer
1$0
JOHN IRELANDSIBLING REP.
Trustee or director
1$0
DONNA FOGLEDIRECTOR
Trustee or director
1$0
TONY FERRANDINODIRECTOR
Trustee or director
1$0
WAYNE KIEFERDIRECTOR
Trustee or director
1$0
KATE HALLERDIRECTOR
Trustee or director
1$0
DAVID PEARCEDIRECTOR
Trustee or director
1$0
KYLEEN DOUGLASDIRECTOR
Trustee or director
1$0
SUZETTE JAMESDIRECTOR
Trustee or director
1$0
FERNANDA LEAL-PARDINASDIRECTOR
Trustee or director
1$0
JOHN PATTERSONDIRECTOR
Trustee or director
1$0

Address and contacts

Address (IRS master file)
4285 MORSE RD PMB 104, GAHANNA, OH 43230-1522
Principal officer (990 for 2024)
AMY FENTON PARKER, 104 MILL STSTE G, GAHANNA, OH 43230
Signed the 990
AMY FENTON PARKER, PRESIDENT & CEO
Phone
(800) 448-4570
Return prepared by
WELLS CPA LLC

Mission

OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE.

990 for the year ended December 31, 2024

Program accomplishments

  • PROGRAMS SUCH AS THE SIBLING PROGRAM, FAMILY HELP FUND, PARENT/MENTORS AND THE GENERAL BEREAVEMENT PROGRAM ALL WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE.
    Expenses $239,406
  • GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE.
    Expenses $201,481 · grants $135,863
  • CONFERENCES AND CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE.
    Expenses $244,199

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
91-1397792
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Group exemption
Exempt since
1994
Accounting year ends
December
Files
Form 990 or 990-EZ
Group exemption
5182 (2 member organizations)
Assets (IRS master file)
$965,863
Income (IRS master file)
$601,964

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$601,964$967,326$965,863XML
990December 2023$746,147$952,036$1,203,251XML
990December 2022$1,099,485$858,302$1,291,125IRS
990December 2021–––IRS
990December 2020–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 91-1397792).

Questions about BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION

What is the EIN of BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION?
The employer identification number (EIN) of BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION is 91-1397792.
Is BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1994.
Are donations to BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Group exemption).
Which annual return does BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION?
The 990 for the year ended December 31, 2024 names AMY FENTON PARKER.
Who are the officers and directors of BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION?
The 990 for the year ended December 31, 2024 lists 14 people; 1 received compensation from the organization, the highest $100,000 (AMY FENTON PARKER, PRESIDENT &).
How much revenue does BATTEN DISEASE SUPPORT AND RESEARCH ASSOCIATION have?
On its 990 for the year ended December 31, 2024 it reported revenue of $601,964, expenses of $967,326 and total assets of $965,863 at year end.

Organizations in its group exemption (2)

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