2024-08-30T12:19:32-04:00 2023-12-31 472461346 WELLS CPA LLC 215 N FRONT ST STE 110 COLUMBUS OH 43215 990 2023-01-01 911397792 BATTEN DISEASE SUPPORT & RESEARCH ASSOCIATION BATT 8004484570 104 MILL STREET SUITE G COLUMBUS OH 43219 AMY FENTON PARKER PRESIDENT & CEO 8004484570 2024-08-30 false DONALD WELLS P01867509 6143968974 2024-08-30 X 2023 2024-08-08 14:25:15Z AMY FENTON PARKER 104 MILL STREET SUITE G GAHANNA OH 43230 746147 false X X 1987 OH OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE. 14 14 4 45 0 1064250 724656 6000 0 19641 21491 9594 0 1099485 746147 40000 82000 0 291497 312694 0 66942 526805 557342 858302 952036 241183 -205889 1291125 1203251 17543 82983 1273582 1120268 OUR LONG-TERM VISION IS A WORLD WITHOUT BATTEN DISEASE. OUR MISSION IS TO SUPPORT BATTEN FAMILIES, FUND AND FACILITATE RESEARCH AND ADVOCATE FOR TREATMENTS AND A CURE. false false 585142 82000 PROGRAMS SUCH AS THE SIBLING PROGRAM, FAMILY HELP FUND, PARENT/MENTORS AND THE GENERAL BEREAVEMENT PROGRAM ALL WILL HELP TO ALLEVIATE STRESS AND HARDSHIP ON FAMILIES WHOSE LOVED ONES ARE VICTIMS OF BATTEN DISEASE. GRANTS WERE GIVEN FOR RESEARCH FOR A CURE FOR BATTEN DISEASE. CONFERENCES AND CONVENTIONS HELD FOR RESEARCH, DISCUSSIONS AND SUPPORT FOR A CURE FOR BATTEN DISEASE. 585142 true true false false false false false false false false true false false false false false false false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 4 true false false false false false false false false false false false false false false X 14 14 false false false false false false false true true false true true true true true true true true false false false X AMY FENTON PARKER 8004484570 104 MILL STREET SUITE G GAHANNA OH 43230 AMY FENTON PARKER PRESIDENT & 40.00 X 98500 0 0 DARLENE ROYALTY BOARD CHAIR 1.00 X X 0 0 0 BARBARA WUEBBELS BOARD VICE C 1.00 X X 0 0 0 BARBARA MCDONOUGH SECRETARY 1.00 X X 0 0 0 FRED SURREY TREASURER 1.00 X X 0 0 0 JOHN IRELAND SIBLING REP. 1.00 X 0 0 0 DONNA FOGLE DIRECTOR 1.00 X 0 0 0 TONY FERRANDINO DIRECTOR 1.00 X 0 0 0 WAYNE KIEFER DIRECTOR 1.00 X 0 0 0 KATE HALLER DIRECTOR 1.00 X 0 0 0 DAVID PEARCE DIRECTOR 1.00 X 0 0 0 KYLEEN DOUGLAS DIRECTOR 1.00 X 0 0 0 SUZETTE JAMES DIRECTOR 1.00 X 0 0 0 FERNANDA LEAL-PARDINAS DIRECTOR 1.00 X 0 0 0 JOHN PATTERSON DIRECTOR 1.00 X 0 0 0 98500 false false false 724656 6192 724656 21491 21491 746147 21491 52000 52000 30000 30000 98500 45201 35946 17353 184332 84617 73927 25788 9732 9732 20130 9159 7455 3516 22350 22350 2778 2778 32985 2949 27932 2104 65702 12578 44742 8382 70850 49857 16195 4798 25336 25336 108751 101946 6265 540 117008 116708 300 11623 11623 7071 25 7046 PROGRAM EXPENSES 77095 77095 BANK FEES 7026 57 6947 22 FUNDRAISING EXPENSES 4357 85 4272 MEALS 2903 1802 934 167 1507 1063 444 952036 585142 299952 66942 810980 445787 26000 43630 4282 4282 100514 66152 45985 34362 397068 668380 6810 6810 1291125 1203251 17543 26983 56000 17543 82983 X 416780 997221 856802 123047 1273582 1120268 1291125 1203251 -205889 32835 19740 X false false false X 883058 968030 811390 1064250 724656 4451384 236958 18200 35235 290393 883058 1204988 829590 1099485 724656 4741777 3370 5920 13346 21337 43973 3370 5920 13346 21337 43973 4697804 47608 23619 33129 19641 21491 145488 47608 23619 33129 19641 21491 145488 22945 12355 9564 44864 953611 1228607 875074 1128690 746147 4932129 0.95250 0.96610 0.03000 0.02000 X PART III, LINE 12 SALES 44,864 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 100514 66152 34362 34362 RESEARCH 30000 CASH false false false false false false false UNIVERSITY OF ROCHESTER MEDICAL CENTER 601 ELMWOOD AVENUE ROCHESTER NY 14642 160743209 501C3 52000 CASH RESEARCH SCHEDULE I, PAGE 1, PART I, LINE 2 A MID-TERM AND FINAL REPORT ARE REQUESTED TO DEMONSTRATE THAT THE GRANT FUNDS ARE SPENT PROPERLY. FORM 990, PAGE 6, PART VI, LINE 11B THE GOVERNING BODY WILL RECEIVE AND REVIEW THE RETURN PRIOR TO FILING. FORM 990, PAGE 6, PART VI, LINE 12C OFFICERS, DIRECTORS AND KEY EMPLOYEES ARE REQUIRED TO ANNUALLY SIGN A LETTER OF AGREEMENT WITH CONFLICT OF INTEREST POLICIES AND GUIDELINES AND DISCLOSE ALL RELATIONSHIPS WITH OTHER ENTITIES. FORM 990, PAGE 6, PART VI, LINE 19 RECORD REQUESTS ARE INDIVIDUALLY REVIEWED AND APPROVED BY THE BOARD. FORM 990'S ARE MADE AVAILABLE UPON REQUEST AND ALSO ON ORGANIZATION WEBSITE, BDSRAFOUNDATION.ORG