Nonprofit · EIN 87-2303319
SICKLE CELL MEDICAL ADVOCACY
Tax-exempt · ORLANDO, FL 32803
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $491,059 | $475,370 | $15,689 | $49,426 | $1,594 | $47,832 |
| December 31, 2024 | 990 (amended) | $406,077 | $400,753 | $5,324 | $32,143 | $0 | $32,143 |
| December 31, 2023 | 990 (amended) | $318,852 | $326,233 | -$7,381 | $16,623 | $0 | $16,623 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $458,499
- of which government grants
- $45,000
- Program service revenue
- $31,985
- Investment income
- $0
- Other revenue
- $575
Expenses
- Grants and similar amounts paid
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $412
- Legal fees
- $150
- Occupancy
- $4,035
- Travel
- $2,249
- Program services (functional)
- $243,631
- Management and general (functional)
- $231,327
- Fundraising (functional)
- $412
Balance sheet and other
- Total assets, start of year
- $32,143
- Total assets, end of year
- $49,426
- Total liabilities, end of year
- $1,594
- Net assets, end of year
- $47,832
- Gross receipts
- $491,059
- Employees
- 0
- State of legal domicile
- FL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Tamara Weston | President Trustee or director, Officer | 4 | $0 |
| Sara Webb | Vice President Trustee or director, Officer | 4 | $0 |
| Jennifer Valentin | Secretary Trustee or director, Officer | 2 | $0 |
| Debi Sabotin | Treasurer Trustee or director, Officer | 3 | $0 |
| Simone Uwan | Executive Director Trustee or director, Key employee | 4 | $0 |
| Aniekan Uwan | CFO Trustee or director, Key employee | 2 | $0 |
| Kara O'Connor | Board Member Trustee or director | 1 | $0 |
| Chandelic Melton | Board Member Trustee or director | 2 | $0 |
| Rita Hoyt | Board Member Trustee or director | 1 | $0 |
| Dale Hardaway | Board Member Trustee or director | 2 | $0 |
| Harry Williams | Board Member Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 13 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Annette Gantt | Outgoing President Trustee or director, Officer, Former | 4 | – |
| Tamara Weston | Incoming President Trustee or director, Officer | 4 | $0 |
| Sarah Webb | Board Member Trustee or director | 3 | $0 |
| Jennifer Valentin | Board Member Trustee or director | 3 | $0 |
| Debi Sabotin | Board Member Trustee or director | 3 | $0 |
| Garth Oliver MD | Board Member Trustee or director | 1 | $0 |
| Kara O'Connor | Board Member Trustee or director | 1 | $0 |
| Chandelic Melton ESQ | Board Member Trustee or director | 2 | $0 |
| Rita Hoyt | Board Member Trustee or director | 1 | $0 |
| Dale Hardaway | Board Member Trustee or director | 1 | $0 |
| Harry Wiliams | Board Member Trustee or director | 1 | $0 |
| Simone Uwan | Executive Director Key employee | 4 | $0 |
| Aniekan Uwan | CFO Key employee | 2 | $0 |
990 for the year ended December 31, 2023: 11 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Annette Gant | President Trustee or director, Officer | 2 | $0 |
| Debi Sabotin | Treasurer Trustee or director, Officer | 2 | $0 |
| Jennifer Valentin RN | Secretary Trustee or director, Officer | 2 | $0 |
| Ade Adeyokunnu | Board Member Trustee or director | 2 | $0 |
| Kara OConnor | Board Member Trustee or director | 2 | $0 |
| Dale Hardaway | Board Member Trustee or director | 2 | $0 |
| Rita Hoyte | Board Member Trustee or director | 2 | $0 |
| Chandelic Melton Esq | Board Member Trustee or director | 2 | $0 |
| Garth Oliver MD | Board Member Trustee or director | 2 | $0 |
| Dr Simone Uwan | CEO Key employee | – | $0 |
| Aniekan Uwan | CFO Key employee | – | $0 |
Address and contacts
- Address (IRS master file)
- 2021 E ROBINSON ST, ORLANDO, FL 32803-6044
- In care of
- % SIMONE UWAN MD
- Mailing address (990-N for 2021)
- 1317 Edgewater Drive Suite 5035, Orlando FL 32804
- Principal officer (990 for 2025)
- Simone Uwan MD, 1317 Edgewater Drive Suite 5035, Orlando, FL 32804
- Principal officer (990-N for 2021)
- Simone Uwan MD, 10102 Brownwood Ave, Orlando FL 32825
- Signed the 990
- Simone Uwan MD, Co-Founder and Director
- Return prepared by
- FierceCG LLC
Mission
Our mission is to advocate for transformative and quality health care for sickle cell disease (SCD) patients. SCMA trains volunteers nationwide and pairs them with SCD patients. Advocates virtually accompany patients to the emergency department/hospital to respectfully advocate for them, to improve patient health care outcomes. They also serve as a resource to health care providers who are not familiar with the updated treatments or management of the disease.
Program accomplishments
- Sickle Cell Healthcare Navigation Certification - An online program where we rigorously train motivated volunteers over ten weeks to become certified Sickle Cell Healthcare Navigators. Following our intensive curriculum based on NIH and ASH guidelines and expert sickle cell management practices, these students become HIPAA-certified and adept in virtual communication with ER/hospital providers.Expenses $118,236 · revenue $123,634
- Expenses $108,081 · revenue $98,188
- Expenses $17,314 · revenue $12,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 87-2303319
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2021
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Education (B99)
- Assets (IRS master file)
- $49,426
- Income (IRS master file)
- $491,059
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $491,059 | $475,370 | $49,426 | XML |
| 990 | December 2024 | $406,077 | $400,753 | $32,143 | IRS |
| 990 | December 2023 | $318,852 | $326,233 | $16,623 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-N for 2021 Officer: Simone Uwan MD | December 31, 2021 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 87-2303319).
Questions about SICKLE CELL MEDICAL ADVOCACY
- What is the EIN of SICKLE CELL MEDICAL ADVOCACY?
- The employer identification number (EIN) of SICKLE CELL MEDICAL ADVOCACY is 87-2303319.
- Is SICKLE CELL MEDICAL ADVOCACY tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2021.
- Are donations to SICKLE CELL MEDICAL ADVOCACY tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SICKLE CELL MEDICAL ADVOCACY file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SICKLE CELL MEDICAL ADVOCACY due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SICKLE CELL MEDICAL ADVOCACY last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of SICKLE CELL MEDICAL ADVOCACY?
- The 990 for the year ended December 31, 2025 names Simone Uwan MD.
- Who are the officers and directors of SICKLE CELL MEDICAL ADVOCACY?
- The 990 for the year ended December 31, 2025 lists 11 people; 0 received compensation from the organization.
- How much revenue does SICKLE CELL MEDICAL ADVOCACY have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $491,059, expenses of $475,370 and total assets of $49,426 at year end.
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