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Nonprofit · EIN 87-2172854

LICHEN SCLEROSUS SUPPORT NETWORK

Tax-exempt · SPRINGFIELD, IL 62704

Financials

$116K$88K2024$131K$155K2025
Revenue Expenses · by fiscal year end
Financials of LICHEN SCLEROSUS SUPPORT NETWORK by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990-EZ$130,571$154,854-$24,283$16,486$0$16,486
December 31, 2024990-EZ$116,289$87,896$28,393$40,769$0$40,769
Financial details: 990-EZ for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$72,499
Program service revenue
$56,258
Investment income
$0
Net income from fundraising events
$1,432
Net income from sales of inventory
$382
Other revenue
$0

Expenses

Grants and similar amounts paid
$0
Compensation of officers, directors and key employees
$50,000
Salaries, compensation and benefits (total)
$50,000
Professional fees and payments to contractors
$85,784
Printing, publications and postage
$1,376
Other expenses
$17,694
Program services (functional)
$132,637

Balance sheet and other

Total assets, start of year
$40,769
Total assets, end of year
$16,486
Total liabilities, end of year
$0
Net assets, end of year
$16,486
Cash, savings and investments
$16,486
Gross receipts
$131,211

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
Kathy Ruiz-CarterExecutive Director/ Unpaid President40$50,000
Jaclyn LanthierSecretary1.25$0
Christine MyersVice President1.25$0
Danielle DeMiccoBoard Officer0.25$0
Susan HoellerBoard Officer0.25$0
Monica CasperBoard Officer0.25$0
Meredith McClureBoard Officer0.25$0
990-EZ for the year ended December 31, 2024: 7 people
NameTitleHours / weekCompensation
Kathy Ruiz-CarterExecutive Director/ Unpaid Vice President40$32,000
Pam CobbChairman2$0
Jaclyn LanthierSecretary2$0
Christine MyersBoard Officer1$0
Lauren ConnellyBoard Officer1$0
Suzanne WeberBoard Officer2$0
Mamawah BourqueBoard Officer1$0

Address and contacts

Address (IRS master file)
2501 CHATHAM RD PMB 8055, SPRINGFIELD, IL 62704-4188
In care of
% LAUREN CONNELLY
Mailing address (990-N for 2023)
5540 N Mason Ave, Chicago IL 60630
Principal officer (990-N for 2023)
Lauren Connelly, 5540 N Mason Ave, Chicago IL 60630
Signed the 990-EZ
KATHY RUIZ-CARTER, PRESIDENT
Phone
(217) 207-3291

Mission

To transform the journey of people affected by Lichen Sclerosus from isolating to empowering, by providing easy-to-understand, evidence-based education and compassionate support that gives people their lives back and allows them to thrive.

990-EZ for the year ended December 31, 2025

Program accomplishments

  • Global Educational Leadership & Patient/Provider Empowerment: Advanced evidence-based medical education and countered clinical misinformation surrounding vulvar lichen sclerosus via large-scale digital platforms and specialized provider curriculum development (See Schedule O).
    Expenses $76,960 · grants $930
  • Compassionate Community, Support Systems, and Specialist Access: Mitigated disease-related isolation and mental health trauma by delivering secure private peer-membership spaces, moderated virtual support meetups, and a verified specialist directory (See Schedule O).
    Expenses $55,677

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990-EZ on file
2024December 31, 2024May 15, 2025990-EZ on file
2023December 31, 2023May 15, 2024990-N on file

IRS record

EIN
87-2172854
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (509(a)(2))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2022
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Health care (E70)
Assets (IRS master file)
$16,486
Income (IRS master file)
$131,211

Filing history

FormYear endedRevenueExpensesAssetsReturn
990-EZDecember 2025$130,571$154,854$16,486XML
990-EZDecember 2024$116,289$87,896$40,769IRS
990-N for 2023
Officer: Lauren Connelly
December 31, 2023≤ $50,000 receipts––e-Postcard
990-N for 2022
Officer: Lauren Connelly
December 31, 2022≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 87-2172854).

Questions about LICHEN SCLEROSUS SUPPORT NETWORK

What is the EIN of LICHEN SCLEROSUS SUPPORT NETWORK?
The employer identification number (EIN) of LICHEN SCLEROSUS SUPPORT NETWORK is 87-2172854.
Is LICHEN SCLEROSUS SUPPORT NETWORK tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2022.
Are donations to LICHEN SCLEROSUS SUPPORT NETWORK tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does LICHEN SCLEROSUS SUPPORT NETWORK file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of LICHEN SCLEROSUS SUPPORT NETWORK due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did LICHEN SCLEROSUS SUPPORT NETWORK last file with the IRS?
The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
Who is the principal officer of LICHEN SCLEROSUS SUPPORT NETWORK?
The 990-N for 2023 names Lauren Connelly.
Who are the officers and directors of LICHEN SCLEROSUS SUPPORT NETWORK?
The 990-EZ for the year ended December 31, 2025 lists 7 people; 1 received compensation from the organization, the highest $50,000 (Kathy Ruiz-Carter, Executive Director/ Unpaid President).
How much revenue does LICHEN SCLEROSUS SUPPORT NETWORK have?
On its 990-EZ for the year ended December 31, 2025 it reported revenue of $130,571, expenses of $154,854 and total assets of $16,486 at year end.

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