2026-06-05T17:19:55-07:00 2025-12-31 990EZ 2025-01-01 872172854 LICHEN SCLEROSUS SUPPORT NETWORK aka LichenS Support Network aka LSSN LICH 2172073291 2501 Chatham Rd 8055 Springfield IL 62704 KATHY RUIZ-CARTER PRESIDENT 7178294318 2026-06-05 2025 2025-03-06 01:10:19Z X https://lssupportnetwork.org X X 131211 X 72499 56258 0 0 0 0 0 0 1884 452 1432 570 188 382 0 130571 0 0 50000 85784 0 1376 17694 154854 -24283 40769 0 16486 40769 16486 0 0 0 0 40769 16486 0 0 40769 16486 X To transform the journey of people affected by Lichen Sclerosus from isolating to empowering, by providing easy-to-understand, evidence-based education and compassionate support that gives people their lives back and allows them to thrive. Global Educational Leadership & Patient/Provider Empowerment: Advanced evidence-based medical education and countered clinical misinformation surrounding vulvar lichen sclerosus via large-scale digital platforms and specialized provider curriculum development (See Schedule O). 930 76960 Compassionate Community, Support Systems, and Specialist Access: Mitigated disease-related isolation and mental health trauma by delivering secure private peer-membership spaces, moderated virtual support meetups, and a verified specialist directory (See Schedule O). 0 55677 132637 Kathy Ruiz-Carter Executive Director/ Unpaid President 40 50000 0 0 Jaclyn Lanthier Secretary 1.25 0 0 0 Christine Myers Vice President 1.25 0 0 0 Danielle DeMicco Board Officer 0.25 0 0 0 Susan Hoeller Board Officer 0.25 0 0 0 Monica Casper Board Officer 0.25 0 0 0 Meredith McClure Board Officer 0.25 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 Kathy Ruiz-Carter 707 S Market St Mechanicsburg PA 17055 7178294318 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 31908 79112 115145 132393 358558 0 0 0 0 572 572 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 31908 79112 115145 132965 359130 359130 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 31908 79112 115145 132965 359130 1 1 0 0 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 16 Description;Amount^Bank and processing fees;3736|Website Hosting and Content Delivery;8648|Membership Dues and Licensing Fees;804|Virtual Office Mail Service;444|Program Materials and Giveaways;188|Travel;3874^Total;17694^ Form 990-EZ, Part I, Line 18 The net deficit of $24,283 reflects a deliberate, board-approved deployment of cash reserves accumulated in prior fiscal years. We strategically reinvested this capital directly into program infrastructure, including launch metrics for the Provider Continuing Education Program ($10,500). It expanded digital infrastructure to support a 56% surge in active private community membership, to meet unprecedented community demand without interrupting core patient services. Form 990-EZ, Part III, Line (28-31) Form 990-EZ, Part III, Line 28 - Global Educational Leadership & Patient/Provider Empowerment: Provided evidence-based medical education and expert guidance to challenge clinical misinformation surrounding vulvar lichen sclerosus (VLS). Captured 831,000 digital views and over 1.7 million active educational event engagements across our online platforms, driving 240,582 unique visitors to our resource library. Hosted virtual educational events, including our signature week-long Wholistic Healing Summit, drawing 1,573 combined attendees (96% rated content excellent, 94% reported increased self-advocacy confidence). Deployed $10,500 in strategic development capital to build out a specialized Provider Continuing Education Program, successfully completing initial creation milestones to prepare clinical professionals for improved downstream patient care and accelerated time-to-diagnosis. Form 990-EZ, Part III, Line 29 - Compassionate Community, Support Systems, and Specialist Access: Mitigated profound disease isolation by delivering structured, peer support models to reduce patient anxiety and psychological trauma. Welcomed 384 active participants across our virtual support meetups and served 1,573 individuals through high-impact educational webinars, while investing $22,908 to maintain a highly secure, private digital membership community providing an essential peer-to-peer lifeline for 234 core individuals. Cultivated a digital support network of 10,000+ social subscribers and 6,142 YouTube followers and maintained a verified, searchable Provider Directory that drove 20,596 clinical clicks, accelerating time-to-diagnosis and connecting patients directly to specialized medical care. The Organization respectfully requests a waiver of any late-filing penalties under Internal Revenue Code Section 6652 due to a severe personal family emergency and unavoidable operational constraints that constitute reasonable cause. The Organization is managed entirely by a single full-time individual who serves as the Executive Director and handles all administrative, operational, and financial compliance duties. In late April 2025, the Executive Director suffered the loss of her grandfather, followed immediately by the sudden passing of her father in early May 2025. As the sole person with access to the Organization's accounting records and the authority to file tax documents, the Executive Director was incapacitated due to immediate bereavement, handling family estate matters, and managing severe personal distress during the exact window surrounding the original tax deadline. Despite these extreme personal hardships, the Executive Director immediately fulfilled critical, pre-scheduled public benefit obligations, including executing the Organization's signature global educational summit and traveling to Washington D.C. to advocate before lawmakers for Lichen Sclerosus patient care. Upon stabilizing operations, the Executive Director prioritized compiling the financial data to file this Form 990-EZ as quickly as possible. Because the delay was due to consecutive deaths in the immediate family of the sole administrator and not willful neglect, the Organization respectfully requests that any late-filing fees or penalties be abated.