Nonprofit · EIN 86-2990471
RARE BY DESIGN INC
Tax-exempt · SIOUX FALLS, SD 57103
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $111,998 | $72,970 | $39,028 | $142,305 | $0 | $142,305 |
| December 31, 2024 | 990-EZ | $97,308 | $70,301 | $27,007 | $103,277 | $0 | $103,277 |
| December 31, 2023 | 990-EZ | $74,409 | $61,039 | $13,370 | $76,270 | $0 | $76,270 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $97,666
- Program service revenue
- $13,315
- Investment income
- $754
- Net income from sales of inventory
- $263
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fees and payments to contractors
- $72,122
- Printing, publications and postage
- $388
- Other expenses
- $460
- Program services (functional)
- $72,641
Balance sheet and other
- Total assets, start of year
- $103,277
- Total assets, end of year
- $142,305
- Total liabilities, end of year
- $0
- Net assets, end of year
- $142,305
- Cash, savings and investments
- $142,305
- Gross receipts
- $114,165
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kendra Gottsleben | CEO & President | 10 | $0 |
| Colette Manning | Secretary & Treasurer | 0.5 | $0 |
990-EZ for the year ended December 31, 2024: 2 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kendra Gottsleben | CEO & President | 10 | $0 |
| Colette Manning | Secretary & Treasurer | 0.5 | $0 |
990-EZ for the year ended December 31, 2023: 2 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Kendra Gottsleben | CEO & President | 10 | $0 |
| Colette Manning | Secretary & Treasurer | 0.5 | $0 |
Address and contacts
- Address (IRS master file)
- 4701 S SHIELDS AVE, SIOUX FALLS, SD 57103-5816
- Mailing address (990-N for 2021)
- 4701 S Shields Ave, Sioux Falls SD 57103
- Principal officer (990-N for 2021)
- Kendra Gottsleben, 4701 S Shields Ave, Sioux Falls SD 57103
- Signed the 990-EZ
- Kendra Gottsleben, CEO & President
- Phone
- (605) 670-9000
- Website
- www.rarebydesign.org/
Mission
Rare by Design's primary purpose is creating awareness, inclusion and representation for individuals with rare diseases and disabilities. We work to positively support this community and their families.
Program accomplishments
- The Style Show: A Runway to Empower supports the efforts of Rare by Design by demonstrating what true diversity looks like in our community and giving voice to all through representation. 252 people attended this event, where we featured models of various abilities, ages, genders (LGBTQIA), races and diverse body types. The Style Show: A Runway to Empower is an evening to raise awareness and financial support for Rare by Design.Expenses $61,974
- Refocus was an art exhibit featuring photography of individuals with visible disabilities. The core mission of Refocus was to bridge the gap between initial perceptions and the rich human experiences that lie beneath visible disabilities. People with visible disabilities often face immediate assumptions and judgments due to their conditions, a reality they cannot conceal. We challenged these preconceived notions through the powerful medium of photography, with the aim of telling unique stories, dismantling stigmas and challenging misconceptions. 150 people attended this exhibit over the course of a month.
- Disability Awareness Month Billboard Campaign - Rare by Design aimed to break the stigma and create exposure through our 2025 "Inclusion Is Always In" billboard campaign, utilizing visual representation. We used the billboard campaign to shine a light on the progress we have made since the signing of the American's with Disabilities Act, and normalize a future where all individuals with disabilities and rare diseases are seen, heard and valued. This billboard campaign had an estimated 186,000 impressions.Expenses $5,263
- The Film Festival was a local film festival ran by people with disabilities for people with disabilities. We sought films from all over the world to showcase the talents of people with physical and developmental disabilities and tell their stories. For films to have a chance at being screened, a person with a disability/rare disease had to have a major role in the production process either in front of or behind the camera. We accepted both short films (between 1 and 10 minutes) and feature-length films (between 10 - 30 minutes) to be screened at The Film Festival. Films could cover any subject matter and be any genre: Drama, Comedy, Documentary, etc. Anything, as long as people with disabilities/rare diseases were expressing themselves! 80 people attended this event.Expenses $5,404
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 86-2990471
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2021
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Health care (E70)
- Assets (IRS master file)
- $142,305
- Income (IRS master file)
- $114,165
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $111,998 | $72,970 | $142,305 | XML |
| 990-EZ | December 2024 | $97,308 | $70,301 | $103,277 | XML |
| 990-EZ | December 2023 | $74,409 | $61,039 | $76,270 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990-N for 2021 Officer: Kendra Gottsleben | December 31, 2021 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 86-2990471).
Questions about RARE BY DESIGN INC
- What is the EIN of RARE BY DESIGN INC?
- The employer identification number (EIN) of RARE BY DESIGN INC is 86-2990471.
- Is RARE BY DESIGN INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2021.
- Are donations to RARE BY DESIGN INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does RARE BY DESIGN INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of RARE BY DESIGN INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did RARE BY DESIGN INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of RARE BY DESIGN INC?
- The 990-N for 2021 names Kendra Gottsleben.
- Who are the officers and directors of RARE BY DESIGN INC?
- The 990-EZ for the year ended December 31, 2025 lists 2 people; 0 received compensation from the organization.
- How much revenue does RARE BY DESIGN INC have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $111,998, expenses of $72,970 and total assets of $142,305 at year end.
Other nonprofits in SIOUX FALLS
- AVERA MCKENNAN EIN 46-0224743 · last filed 990 for 2025
- AVERA HEALTH EIN 46-0422673 · last filed 990 for 2025
- AVERA HEALTH PLANS INC EIN 46-0451539 · last filed 990 for 2024
- AVERA AT HOME EIN 46-0399291 · last filed 990 for 2025
- SANFORD EIN 27-1218956 · last filed 990 for 2024
- HEGG MEMORIAL HOSPITAL EIN 42-0932564 · last filed 990 for 2025
- LIFESCAPE FOUNDATION EIN 46-0353254 · last filed 990 for 2025
- BETHANY LUTHERAN HOME EIN 46-0233029 · last filed 990 for 2025