2024-03-10T17:53:41-07:00 2023-12-31 990EZ 2023-01-01 862990471 RARE BY DESIGN INC RARE 6056709000 4701 S Shields Ave Sioux Falls SD 57103 Kendra Gottsleben CEO & President 6056709000 2024-03-10 Kendra Gottsleben 999009999 1 1 11 1 AAL2 2023 2023-04-26 12:10:37Z X www.rarebydesign.org X X Non-Profit Corporation 75479 X 63932 9280 0 597 0 0 0 0 0 0 0 1670 1070 600 0 74409 0 0 0 58233 0 2422 384 61039 13370 62900 0 76270 62900 76270 0 0 0 0 62900 76270 0 0 62900 76270 Rare by Design's primary purpose is creating awareness, inclusion and representation for individuals with rare diseases and disabilities. We work to positively support this community and their families. The Style Show: A Runway to Empower supports the efforts of Rare by Design by demonstrating what true diversity looks like in our community and giving voice to all through representation. 200 people attend this event where we featured models of various abilities, ages, genders (LGBTQIA), races and diverse body types. The Style Show: A Runway to Empower is an evening to raise awareness and financial support for Rare by Design. 0 51431 Refocus was an art exhibit featuring photography of individuals with visible disabilities. The core mission of Refocus was to bridge the gap between initial perceptions and the rich human experiences that lie beneath visible disabilities. People with visible disabilities often face immediate assumptions and judgments due to their conditions, a reality they cannot conceal. We challenged these preconceived notions through the powerful medium of photography, with the aim of telling unique stories, dismantling stigmas and challenging misconceptions. 120 people attended this event. 7000 8024 Disability Awareness Month Billboard Campaign - Rare by Design aimed to break the stigma and create exposure through our 2023 "Inclusion Is Always In" billboard campaign, utilizing visual representation. We used the billboard campaign to shine a light on the progress we have made since the signing of the American's with Disabilities Act, and normalize a future where all individuals with disabilities and rare diseases are seen, heard and valued. This billboard campaign had an estimated 186,000 impressions. 0 1177 60632 Kendra Gottsleben CEO & President 10 0 0 0 Colette Manning Secretary & Treasurer 0.5 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 SD Kendra Gottsleben 4701 S Shields Ave Sioux Falls SD 57103 6056709000 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 42060 73031 63932 179023 0 0 0 0 0 0 0 0 0 0 42060 73031 63932 179023 179023 0 151 597 748 0 0 0 0 0 7930 9280 17210 196981 600 X Schedule A, Part II, Line 10 Ticket Sales for The Style Show = $9280 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 16 Special Event Insurance Cost = $384