Nonprofit · EIN 86-1926609
ZTTK SON-SHINE FOUNDATION INC
Tax-exempt · NEW YORK, NY 10018
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $523,854 | $46,993 | $476,861 | $488,512 | $0 | $488,512 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $523,854
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Travel
- $600
- Program services (functional)
- $43,275
- Management and general (functional)
- $3,718
Balance sheet and other
- Total assets, start of year
- $11,651
- Total assets, end of year
- $488,512
- Total liabilities, end of year
- $0
- Net assets, end of year
- $488,512
- Net assets without donor restrictions
- $398,537
- Net assets with donor restrictions
- $89,975
- Gross receipts
- $523,854
- Employees
- 0
- Volunteers
- 8
- Year formed
- 2021
- State of legal domicile
- DE
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| SHANNON BOYLE | PRESIDENT AND CHAIR OF THE BOARD OF DIRECTORS Trustee or director, Officer | 30 | $0 |
| KERRY TIRRELL | VICE PRESIDENT AND VICE CHAIR OF THE BOARD OF DIRE Trustee or director, Officer | 30 | $0 |
| CASEY GANER | FOUNDATION TREASURER FINANCE AND AUDIT COMMITTEE C Trustee or director, Officer | 30 | $0 |
| DR ERIN EUN-YOUNG AHN PHD | CO-CHAIR OF THE SCIENTIFIC AND CLINICAL ADVISORY B Trustee or director | 30 | $0 |
| ADA LIO | SECRETARY AND FUNDRAISING COMMITTEE CHAIR Trustee or director, Officer | 30 | $0 |
| NATHAN GUO | SCIENTIFIC COMMITTEE CHAIR Trustee or director | 30 | $0 |
| FRANCISCO RODRIGUEZ | MARKETING COMMITTEE Trustee or director | 30 | $0 |
| ANDREA MACHADO | AMBASSADOR COMMITTEE CHAIR Trustee or director | 30 | $0 |
Address and contacts
- Address (IRS master file)
- 1040 6TH AVE FL 3, NEW YORK, NY 10018-3709
- Mailing address (990-N for 2023)
- 1040 6TH AVE 3RD FL, NEW YORK NY 10018
- Principal officer (990 for 2024)
- CASEY GANER, 1040 6TH AVE FL 3, NEW YORK, NY 10018
- Principal officer (990-N for 2023)
- CASEY GANER, 1040 6TH AVE 3RD FL, NEW YORK NY 10018
- Signed the 990
- CASEY GANER, TREASURER
- Phone
- (212) 873-1472
- Return prepared by
- BONADIO & CO LLP
Mission
THE ZTTK SON-SHINE FOUNDATION IS COMMITTED TO IMPROVING THE LIVES OF INDIVIDUALS WITH ZTTK BY ACCELERATING RESEARCH TO DEVELOP ACCESSIBLE AND EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE FOCUS ON FUNDING CUTTING-EDGE SCIENCE, BUILDING STRONG SUPPORT SYSTEMS FOR THE GLOBAL ZTTK COMMUNITY, AND RAISING AWARENESS ABOUT ZTTK SYNDROME.
Program accomplishments
- ADMITTED TO THE CHAN ZUCKERBERG INITIATIVE RARE AS ONE NETWORK TO BENEFIT FOUNDATIONS FOCUSED ON IMPROVING THE LIVES OF THOSE INFLICTED WITH RARE DISEASES.Expenses $25
- COLLECTING PATIENT SAMPLES FROM THE ZTTK COMMUNITY TO RESEARCH DRUG REPURPOSING WITH UNRAVEL BIOSCIENCES.Expenses $33,250
- ANNUAL FAMILY AND RESEARCH CONFERENCEExpenses $10,000
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-N on file |
IRS record
- EIN
- 86-1926609
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2021
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $488,512
- Income (IRS master file)
- $523,854
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $523,854 | $46,993 | $488,512 | XML |
| 990-N for 2023 Officer: CASEY GANER | December 31, 2023 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2022 Officer: CASEY GANER | December 31, 2022 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 86-1926609).
Questions about ZTTK SON-SHINE FOUNDATION INC
- What is the EIN of ZTTK SON-SHINE FOUNDATION INC?
- The employer identification number (EIN) of ZTTK SON-SHINE FOUNDATION INC is 86-1926609.
- Is ZTTK SON-SHINE FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2021.
- Are donations to ZTTK SON-SHINE FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does ZTTK SON-SHINE FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of ZTTK SON-SHINE FOUNDATION INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did ZTTK SON-SHINE FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of ZTTK SON-SHINE FOUNDATION INC?
- The 990 for the year ended December 31, 2024 names CASEY GANER.
- Who are the officers and directors of ZTTK SON-SHINE FOUNDATION INC?
- The 990 for the year ended December 31, 2024 lists 8 people; 0 received compensation from the organization.
- How much revenue does ZTTK SON-SHINE FOUNDATION INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $523,854, expenses of $46,993 and total assets of $488,512 at year end.
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