2025-11-05T09:37:49-06:00 2024-12-31 161131146 BONADIO & CO LLP 171 SULLYS TRAIL PITTSFORD NY 14534 990 2024-01-01 861926609 ZTTK SON-SHINE FOUNDATION ZTTK 2128731472 1040 6TH AVE FL 3 NEW YORK NY 10018 CASEY GANER TREASURER 2128731472 2025-10-29 1 1 RICHARD LEICHT P01378913 5853811000 2025-10-29 2024 2025-03-06 01:10:19Z CASEY GANER 1040 6TH AVE FL 3 NEW YORK NY 10018 523854 0 X WWW.ZTTK.ORG X 2021 DE FOUNDATION IS COMMITTED TO IMPROVING THE LIVES OF INDIVIDUALS WITH ZTTK. 8 8 0 8 0 0 2702 523854 0 0 0 0 0 0 2702 523854 0 0 0 0 0 0 0 0 0 1260 46993 1260 46993 1442 476861 11651 488512 0 0 11651 488512 X THE ZTTK SON-SHINE FOUNDATION IS COMMITTED TO IMPROVING THE LIVES OF INDIVIDUALS WITH ZTTK BY ACCELERATING RESEARCH TO DEVELOP ACCESSIBLE AND EFFECTIVE TREATMENTS AND, ULTIMATELY, A CURE. WE FOCUS ON FUNDING CUTTING-EDGE SCIENCE, BUILDING STRONG SUPPORT SYSTEMS FOR THE GLOBAL ZTTK COMMUNITY, AND RAISING AWARENESS ABOUT ZTTK SYNDROME. 0 0 25 ADMITTED TO THE CHAN ZUCKERBERG INITIATIVE RARE AS ONE NETWORK TO BENEFIT FOUNDATIONS FOCUSED ON IMPROVING THE LIVES OF THOSE INFLICTED WITH RARE DISEASES. 33250 COLLECTING PATIENT SAMPLES FROM THE ZTTK COMMUNITY TO RESEARCH DRUG REPURPOSING WITH UNRAVEL BIOSCIENCES. 10000 ANNUAL FAMILY AND RESEARCH CONFERENCE 43275 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 8 8 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 X BONADIO & CO LLP 2128731472 1040 6TH AVE FL 3 NEW YORK NY 10018 X SHANNON BOYLE PRESIDENT AND CHAIR OF THE BOARD OF DIRECTORS 30.00 X X 0 0 0 KERRY TIRRELL VICE PRESIDENT AND VICE CHAIR OF THE BOARD OF DIRE 30.00 X X 0 0 0 CASEY GANER FOUNDATION TREASURER FINANCE AND AUDIT COMMITTEE C 30.00 X X 0 0 0 DR ERIN EUN-YOUNG AHN PHD CO-CHAIR OF THE SCIENTIFIC AND CLINICAL ADVISORY B 30.00 X 0 0 0 ADA LIO SECRETARY AND FUNDRAISING COMMITTEE CHAIR 30.00 X X 0 0 0 NATHAN GUO SCIENTIFIC COMMITTEE CHAIR 30.00 X 0 0 0 FRANCISCO RODRIGUEZ MARKETING COMMITTEE 30.00 X 0 0 0 ANDREA MACHADO AMBASSADOR COMMITTEE CHAIR 30.00 X 0 0 0 0 0 0 0 0 0 0 0 523854 523854 523854 0 0 0 816 816 600 600 10000 10000 708 708 RESEARCH 33250 33250 BUSINESS REGISTRATION F 808 808 PAYPAL FEES 648 648 STRIPE PROCESSING FEES 88 88 75 25 50 46993 43275 3718 0 9201 486062 2450 2450 11651 488512 0 0 X 11651 398537 89975 11651 488512 11651 488512 476861 0 X 0 0 0 X 0 4395 9783 2702 523854 540734 4395 9783 2702 523854 540734 0 0 0 540734 4395 9783 2702 523854 540734 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990, PART VI, SECTION A, LINE 2 ADA LIO, SECRETARY AND FUNDRAISING COMMITTEE CHAIR IS MARRIED TO NATHAN GUO, SCIENTIFIC COMMITTEE CHAIR. FORM 990, PART VI, SECTION B, LINE 11B COPY OF TAX FILINGS ARE PROVIDED TO THE BOARD PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C EACH DIRECTOR, OFFICER, AND MEMBER OF A COMMITTEE WITH BOARD-DELEGATED POWERS SHALL EXECUTE AND DELIVER TO THE CHAIR AN ANNUAL STATEMENT DISCLOSING THE FACTS RELATING TO ANY ACTUAL OR POTENTIAL FINANCIAL INTEREST OR STATING THAT HE OR SHE HAS NO REPORTABLE FINANCIAL INTEREST. THE CHAIR SHALL REPORT THE RESULTS OF THE ANNUAL DISCLOSURE TO THE BOARD AT ITS ANNUAL MEETING. IF ANY DIRECTOR OR OFFICER OF THE CORPORATION HAS A FINANCIAL INTEREST IN ANY PROPOSED CONTRACT OR OTHER TRANSACTION INVOLVING THE CORPORATION, THE DIRECTOR OR OFFICER MUST DISCLOSE THE FINANCIAL INTEREST TO THE BOARD OR COMMITTEE AUTHORIZING THE CONTRACT OR TRANSACTION. THE BOARD OR COMMITTEE SHALL DETERMINE WHETHER THE FINANCIAL INTEREST CONSTITUTES A CONFLICT OF INTEREST. A DIRECTOR OR OFFICER WHO HAS A CONFLICT OF INTEREST MAY ANSWER QUESTIONS OF THE BOARD OR COMMITTEE CONSIDERING THE CONTRACT OR TRANSACTION THAT INVOLVES THE CONFLICT. HOWEVER, AFTER ANSWERING QUESTIONS, THE DIRECTOR OR OFFICER SHALL LEAVE THE MEETING DURING THE DISCUSSION OF THE MERITS OF THE CONTRACT OR TRANSACTION AND SHALL NOT VOTE ON THE CONTRACT OR OTHER TRANSACTION. FORM 990, PART VI, SECTION C, LINE 19 DOCUMENTS ARE AVAILABLE TO THE COMMUNITY BASED ON SPECIFIC REQUESTS.