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Nonprofit · EIN 85-0767017

MOG PROJECT INC

Tax-exempt · GAITHERSBURG, MD 20879

Financials

$242K$224K2023$223K$223K2024$595K$481K2025
Revenue Expenses · by fiscal year end
Financials of MOG PROJECT INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2025990$595,048$480,745$114,303$335,915$75,790$260,125
December 31, 2024990$223,260$223,436-$176$196,262$53,625$142,637
December 31, 2023990$242,019$223,939$18,080$162,470$0$162,470
Financial details: 990 for the year ended December 31, 2025

Revenue

Contributions, gifts and grants
$588,110
Program service revenue
$0
Investment income
$5,903
Net income from sales of inventory
$1,035
Other revenue
$1,035

Expenses

Grants and similar amounts paid
$78,402
Salaries, compensation and benefits (total)
$0
Professional fundraising fees
$0
Accounting fees
$12,850
Travel
$113,075
Program services (functional)
$334,091
Management and general (functional)
$146,654

Balance sheet and other

Total assets, start of year
$196,262
Total assets, end of year
$335,915
Total liabilities, end of year
$75,790
Net assets, end of year
$260,125
Net assets without donor restrictions
$259,847
Net assets with donor restrictions
$278
Gross receipts
$595,810
Employees
0
Volunteers
40
Year formed
2020
State of legal domicile
MD

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2025, highest compensation first.

NameTitleHours / weekCompensation
AMY EDNIEPRES. & CO-F
Trustee or director, Officer
1$0
JULIA LEFELARE.D & CO-FOU
Trustee or director, Officer
40$0
ANDREA MITCHELLDIRECTOR
Trustee or director
4$0
STEVEN SALKYEXEC. BOARD
Trustee or director
1$0
JAMES BROUTMANCHIEF MEDIA
Officer
40$0
990 for the year ended December 31, 2024: 5 people
NameTitleHours / weekCompensation
Julia LefelarExecutive Director
Trustee or director, Officer
30$0
Amy EdniePresident
Trustee or director, Officer
2$0
Andrea MitchellDirector of Blind Resources
Trustee or director
5$0
Jim BroutmanChief Media Officer
Trustee or director
30$0
Steven SalkyLegal Council
Trustee or director
1$0
990 for the year ended December 31, 2023: 5 people
NameTitleHours / weekCompensation
Amy EdniePresident
Trustee or director, Officer
2$0
Julia LefelarExecutive Director
Trustee or director, Officer
8$0
Peter FontanezDirector/Treasurer
Trustee or director, Officer
2$0
Andrea MitchellDirector
Trustee or director, Officer
2$0
Jen GouldDirector
Trustee or director, Officer
2$0

Address and contacts

Address (IRS master file)
19414 HAVEN WHITE CT, GAITHERSBURG, MD 20879-4982
Mailing address (990-N for 2020)
19414 Haven White Ct, Gaithersburg MD 20879
Principal officer (990 for 2025)
JULIA LEFELAR, 19414 HAVEN WHITE COURT, GAITHERSBURG, MD 20879
Principal officer (990-N for 2020)
Amy Ednie, 18102 Eaglesham Ct, Leesburg VA 20175
Signed the 990
JULIA LEFELAR, E.D & CO-FOUNDER
Phone
(301) 928-5491
Return prepared by
FOUNDATION GROUP INC

Mission

TO RAISE AWARENESS, EDUCATE DOCTORS, PATIENTS AND CAREGIVERS, ADVANCE RESEARCH THROUGH EXPERT COLLABORATION AND FUNDRAISING, AND PROVIDE SUPPORT AND ADVOCACY FOR OUR COMMUNITY IN HOPES OF FINDING A CURE.

990 for the year ended December 31, 2025

Program accomplishments

  • EDUCATIONAL EVENTS & PROGRAMS: WE HAVE AN INTERNATIONAL MOGAD PATIENT SUMMIT AND A US MOGAD PATIENT SUMMIT PROGRAM THAT PROVIDES EDUCATION FOR MOGAD PATIENTS WORLDWIDE AND IN THE US. PATIENTS CAN ATTEND IN PERSON OR SEE THE EVENT LIVESTREAMED. THEY CAN ALSO PARTICIPATE IN THE EVENT BY ASKING QUESTIONS TO THE PRESENTERS. PRESENTERS INCLUDE TOP EXPERTS IN THE DISEASE WORLDWIDE. THESE PROGRAMS ARE CURRENTLY BASED IN THE US AND STREAMED LIVE GLOBALLY. WE ALSO PROVIDE A WEBSITE AND YOUTUBE CHANNEL FILLED WITH WRITTEN MATERIALS, INFOGRAPHICS AND VIDEOS AIMED AT EDUCATING PATIENTS, CAREGIVERS AND MEDICAL PROFESSIONALS. IN ADDITION, WE HOLD A BLOG SPACE FOR ARTICLES WRITTEN TO EDUCATE PATIENTS ON RESEARCH ARTICLES AND PATIENT EXPERIENCE SO THAT THEY CAN KNOW WHAT OTHERS HAVE GONE THROUGH, INFORMING THEM BETTER ON WHAT TO EXPECT WITH DISEASE MANAGEMENT. WE ALSO PROVIDE A GREAT DEAL OF PRINTED MATERIALS FOR PATIENTS THAT WE DISTRIBUTE AT EVENTS AND SEND TO CLINICS TREATING MOGAD ALL OVER THE WORLD.
    Expenses $231,261
  • RESEARCH PROGRAMS: WE WORK TO AFFECT RESEARCH IN MOGAD THROUGH PATIENT PARTICIPATION IN SURVEYS IN COLLABORATION WITH REPUTABLE RESEARCHERS/INDUSTRY PARTNERS TO HELP GUIDE RESEARCH TO BETTER UNDERSTAND THE PATIENT EXPERIENCE GIVEN THAT THIS IS A NEWLY DISCOVERED DISEASE THAT REQUIRES BETTER UNDERSTANDING OF WHAT SYMPTOMS PATIENTS EXPERIENCE AND HOW THEIR DISEASE MANIFESTS OVER TIME. WE ALSO USE THESE SURVEYS TO UNDERSTAND WHAT THE PATIENT POPULATION NEEDS IN VARIOUS WORLD AREAS, INCLUDING UNDERSERVED COMMUNITIES. WE ALSO PROVIDE, WHEN AVAILABLE, FUNDS WE RAISED AS GRANTS FOR ADJUDICATED RESEARCH AS PART OF OUR RESEARCH FOR RARE PROGRAM, WHICH COVERS TWO TYPES OF GRANTS: ONE THAT FUNDS RESEARCH IN IMPACTFUL AREAS THAT WILL PROVIDE SEED DATA FOR LARGER GRANTS AVAILABLE AT INSTITUTIONS LIKE NIH, AND ANOTHER THAT FUNDS INFRASTUCTURE, SUCH AS REGISTRIES FOR DATA COLLECTION AND MANAGEMENT.
    Expenses $81,975 · grants $78,402
  • SUPPORT: WE PROVIDE SUPPORT GROUPS THROUGH SOCIAL MEDIA CHANNELS AS WELL AS SUPPORT FOR SMALL GROUPS VIA ZOOM. WE USE THESE GROUPS TO CONNECT PATIENTS TO OTHERS GOING THROUGH THE SAME THING THEY ARE SINCE THEY WILL HAVE DIFFICULTY FORMING LOCAL GROUPS TO DO THIS AS MOGAD IS A RARE DISEASE. WE ALSO PROVIDE SUPPORT EVENTS WHERE MEDICAL EXPERTS GATHER TO DO A Q&A FOR PATIENTS REGULARLY THROUGHOUT THE YEAR, GIVING PATIENTS AN OPPORTUNITY TO GET SUPPORT BACKED BY EXPERT MEDICAL ADVICE IN A GENERAL MANNER. IN ADDITION, WE HAVE A CHILDREN'S AMBASSADOR PROGRAM FOR KIDS LED BY PARENTS TO PROVIDE A SUPPORT NETWORK FOR KIDS UNDER 18. WE ALSO HAVE A PEER-TO-PEER PROGRAM CALLED MOGMENTORS THAT CONNECTS NEW PATIENTS WITH VOLUNTEERS WHO HAVE GONE THROUGH A GOOD AMOUNT OF TIME LIVING WITH THE DISEASE AND CAN HELP OTHERS UNFAMILIAR.
    Expenses $20,855
  • PROGRAM SERVICE EXPENSES: 0, GRANTS AND ALLOCATIONS: 0, REVENUE: 0 POLICY PROGRAMS: OUR POLICY PROGRAMS ARE AIMED AT AFFECTING POLICY AND BRINGING AWARENESS TO MOGAD WORLDWIDE. EXAMPLES OF THIS INCLUDE OUR WORK TO ADVOCATE FOR INCREASED FUNDING AT NINDS/NIH AND THE CREATION OF A ICD-10 CODE WITH THE CDC AND AND ICD-11 CODE WITH THE WHO. OTHER EFFORTS INCLUDE WORK TO ENCOURAGE LAWMAKERS TO RECOGNIZE MOGAD AS A DISEASE SO THAT PATIENTS WITH THE INVISIBLE DISABILITY CAUSED BY THE DISEASE WHO CANNOT WORK CAN GET THEIR DISABILITY APPROVED THOUGH FEDERAL/STATE SOCIAL SECURITY MECHANISMS.

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026990 on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
85-0767017
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (509(a)(2))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2020
Accounting year ends
December
Files
Form 990 or 990-EZ
Assets (IRS master file)
$335,915
Income (IRS master file)
$595,810

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2025$595,048$480,745$335,915XML
990December 2024$223,260$223,436$196,262XML
990December 2023$242,019$223,939$162,470XML
990-EZDecember 2022–––IRS
990-EZDecember 2021–––IRS
990-N for 2020
Officer: Amy Ednie
December 31, 2020≤ $50,000 receipts––e-Postcard

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 85-0767017).

Questions about MOG PROJECT INC

What is the EIN of MOG PROJECT INC?
The employer identification number (EIN) of MOG PROJECT INC is 85-0767017.
Is MOG PROJECT INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2020.
Are donations to MOG PROJECT INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does MOG PROJECT INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of MOG PROJECT INC due?
The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
When did MOG PROJECT INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2025.
Who is the principal officer of MOG PROJECT INC?
The 990 for the year ended December 31, 2025 names JULIA LEFELAR.
Who are the officers and directors of MOG PROJECT INC?
The 990 for the year ended December 31, 2025 lists 5 people; 0 received compensation from the organization.
How much revenue does MOG PROJECT INC have?
On its 990 for the year ended December 31, 2025 it reported revenue of $595,048, expenses of $480,745 and total assets of $335,915 at year end.

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