2026-08-10T10:15:59-04:00 2025-12-31 843085028 FOUNDATION GROUP INC 7021 UNIVERSITY BLVD WINTER PARK FL 327926719 990 2025-01-01 850767017 THE MOG PROJECT INC MOGP 3019285491 19414 HAVEN WHITE CT GAITHERSBURG MD 20879 JULIA LEFELAR E.D & CO-FOUNDER 3019285491 2026-08-07 true ANDREW D PAYNE EA P02188892 8778579002 2026-08-10 2025 2025-03-06 01:10:19Z JULIA LEFELAR 19414 HAVEN WHITE COURT GAITHERSBURG MD 20879 595810 false X HTTPS://MOGPROJECT.ORG X 2020 MD TO RAISE AWARENESS, EDUCATE DOCTORS, PATIENTS AND CAREGIVERS, ADVANCE RESEARCH THROUGH EXPERT COLLABORATION AND FUNDRAISING, AND PROVIDE SUPPORT AND ADVOCACY FOR OUR COMMUNITY IN HOPES OF FINDING A CURE. 5 5 0 40 0 217401 588110 0 5586 5903 273 1035 223260 595048 70000 78402 0 0 0 0 153436 402343 223436 480745 -176 114303 196262 335915 53625 75790 142637 260125 X TO RAISE AWARENESS, EDUCATE DOCTORS, PATIENTS AND CAREGIVERS, ADVANCE RESEARCH THROUGH EXPERT COLLABORATION AND FUNDRAISING, AND PROVIDE SUPPORT AND ADVOCACY FOR OUR COMMUNITY IN HOPES OF FINDING A CURE. false false 231261 EDUCATIONAL EVENTS & PROGRAMS: WE HAVE AN INTERNATIONAL MOGAD PATIENT SUMMIT AND A US MOGAD PATIENT SUMMIT PROGRAM THAT PROVIDES EDUCATION FOR MOGAD PATIENTS WORLDWIDE AND IN THE US. PATIENTS CAN ATTEND IN PERSON OR SEE THE EVENT LIVESTREAMED. THEY CAN ALSO PARTICIPATE IN THE EVENT BY ASKING QUESTIONS TO THE PRESENTERS. PRESENTERS INCLUDE TOP EXPERTS IN THE DISEASE WORLDWIDE. THESE PROGRAMS ARE CURRENTLY BASED IN THE US AND STREAMED LIVE GLOBALLY. WE ALSO PROVIDE A WEBSITE AND YOUTUBE CHANNEL FILLED WITH WRITTEN MATERIALS, INFOGRAPHICS AND VIDEOS AIMED AT EDUCATING PATIENTS, CAREGIVERS AND MEDICAL PROFESSIONALS. IN ADDITION, WE HOLD A BLOG SPACE FOR ARTICLES WRITTEN TO EDUCATE PATIENTS ON RESEARCH ARTICLES AND PATIENT EXPERIENCE SO THAT THEY CAN KNOW WHAT OTHERS HAVE GONE THROUGH, INFORMING THEM BETTER ON WHAT TO EXPECT WITH DISEASE MANAGEMENT. WE ALSO PROVIDE A GREAT DEAL OF PRINTED MATERIALS FOR PATIENTS THAT WE DISTRIBUTE AT EVENTS AND SEND TO CLINICS TREATING MOGAD ALL OVER THE WORLD. 81975 78402 RESEARCH PROGRAMS: WE WORK TO AFFECT RESEARCH IN MOGAD THROUGH PATIENT PARTICIPATION IN SURVEYS IN COLLABORATION WITH REPUTABLE RESEARCHERS/INDUSTRY PARTNERS TO HELP GUIDE RESEARCH TO BETTER UNDERSTAND THE PATIENT EXPERIENCE GIVEN THAT THIS IS A NEWLY DISCOVERED DISEASE THAT REQUIRES BETTER UNDERSTANDING OF WHAT SYMPTOMS PATIENTS EXPERIENCE AND HOW THEIR DISEASE MANIFESTS OVER TIME. WE ALSO USE THESE SURVEYS TO UNDERSTAND WHAT THE PATIENT POPULATION NEEDS IN VARIOUS WORLD AREAS, INCLUDING UNDERSERVED COMMUNITIES. WE ALSO PROVIDE, WHEN AVAILABLE, FUNDS WE RAISED AS GRANTS FOR ADJUDICATED RESEARCH AS PART OF OUR RESEARCH FOR RARE PROGRAM, WHICH COVERS TWO TYPES OF GRANTS: ONE THAT FUNDS RESEARCH IN IMPACTFUL AREAS THAT WILL PROVIDE SEED DATA FOR LARGER GRANTS AVAILABLE AT INSTITUTIONS LIKE NIH, AND ANOTHER THAT FUNDS INFRASTUCTURE, SUCH AS REGISTRIES FOR DATA COLLECTION AND MANAGEMENT. 20855 SUPPORT: WE PROVIDE SUPPORT GROUPS THROUGH SOCIAL MEDIA CHANNELS AS WELL AS SUPPORT FOR SMALL GROUPS VIA ZOOM. WE USE THESE GROUPS TO CONNECT PATIENTS TO OTHERS GOING THROUGH THE SAME THING THEY ARE SINCE THEY WILL HAVE DIFFICULTY FORMING LOCAL GROUPS TO DO THIS AS MOGAD IS A RARE DISEASE. WE ALSO PROVIDE SUPPORT EVENTS WHERE MEDICAL EXPERTS GATHER TO DO A Q&A FOR PATIENTS REGULARLY THROUGHOUT THE YEAR, GIVING PATIENTS AN OPPORTUNITY TO GET SUPPORT BACKED BY EXPERT MEDICAL ADVICE IN A GENERAL MANNER. IN ADDITION, WE HAVE A CHILDREN'S AMBASSADOR PROGRAM FOR KIDS LED BY PARENTS TO PROVIDE A SUPPORT NETWORK FOR KIDS UNDER 18. WE ALSO HAVE A PEER-TO-PEER PROGRAM CALLED MOGMENTORS THAT CONNECTS NEW PATIENTS WITH VOLUNTEERS WHO HAVE GONE THROUGH A GOOD AMOUNT OF TIME LIVING WITH THE DISEASE AND CAN HELP OTHERS UNFAMILIAR. PROGRAM SERVICE EXPENSES: 0, GRANTS AND ALLOCATIONS: 0, REVENUE: 0 POLICY PROGRAMS: OUR POLICY PROGRAMS ARE AIMED AT AFFECTING POLICY AND BRINGING AWARENESS TO MOGAD WORLDWIDE. EXAMPLES OF THIS INCLUDE OUR WORK TO ADVOCATE FOR INCREASED FUNDING AT NINDS/NIH AND THE CREATION OF A ICD-10 CODE WITH THE CDC AND AND ICD-11 CODE WITH THE WHO. OTHER EFFORTS INCLUDE WORK TO ENCOURAGE LAWMAKERS TO RECOGNIZE MOGAD AS A DISEASE SO THAT PATIENTS WITH THE INVISIBLE DISABILITY CAUSED BY THE DISEASE WHO CANNOT WORK CAN GET THEIR DISABILITY APPROVED THOUGH FEDERAL/STATE SOCIAL SECURITY MECHANISMS. 334091 true true false false false false false false false false false false false false false false false false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 false 0 false false false false false false false false X 5 5 true false false false false false false true true false false true true true true false false false false false MD X X FOUNDATION GROUP 6153619445 2451 ATRIUM WAY STE 300 NASHVILLE TN 37214 X AMY EDNIE PRES. & CO-F 1.00 X X 0 0 0 JULIA LEFELAR E.D & CO-FOU 40.00 X X 0 0 0 ANDREA MITCHELL DIRECTOR 4.00 X 0 0 0 STEVEN SALKY EXEC. BOARD 1.00 X 0 0 0 JAMES BROUTMAN CHIEF MEDIA 40.00 X 0 0 0 false false false 588110 588110 5903 5903 1797 762 1035 1035 595048 1035 5903 X 42372 42372 36030 36030 12850 12850 113080 8960 104120 3265 2887 378 14556 12687 1869 288 212 76 113075 86955 26120 7960 7311 649 1545 1545 EDUCATION & RESEARCH 134365 134365 VOLUNTEER APPRECIATION 1359 767 592 480745 334091 146654 0 13066 85450 182367 246630 98 829 3737 196262 335915 53625 75790 53625 75790 X 35412 259847 107225 278 142637 260125 196262 335915 114303 3185 X false false false X 72709 83306 237314 217401 588110 1198840 72709 83306 237314 217401 588110 1198840 859828 339012 4257 5586 5903 15746 848 1094 541 1797 4280 1218866 50000 0.27810 0.97850 X PART II, LINE 10 4,280 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED GERMANY RESEARCH 36030 WIRE false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 THE BOARD OF DIRECTORS REVIEWS PROPOSED RECIPIENTS TO DETERMINE NEEDS AND PROPOSED USES OF ASSISTANCE. THE RECIPIENTS ARE THEN ROUTINELY MONITORED TO ENSURE THE ASSISTANCE IS BEING USED ACCORDINGLY TO ACCOMPLISH THE PROPOSED PURPOSE. true MASSACHUSETTS GENERAL BUSINESS OFFICE 125 NASHUA STREET SUITE 540 BOSTON MA 02114 24605 RESEARCH STUDY YALE UNIVERSITY PO BOX 1873 NEW HAVEN CT 06508 17767 RESEARCH STUDY SCHEDULE I, PAGE 1, PART I, LINE 2 THE BOARD OF DIRECTORS REVIEWS PROPOSED RECIPIENTS TO DETERMINE NEEDS AND PROPOSED USES OF ASSISTANCE. THE RECIPIENTS ARE THEN ROUTINELY MONITORED TO ENSURE THE ASSISTANCE IS BEING USED ACCORDINGLY TO ACCOMPLISH THE PROPOSED PURPOSE. FORM 990, PAGE 2, PART III, LINE 4A EDUCATIONAL EVENTS & PROGRAMS: WE HAVE AN INTERNATIONAL MOGAD PATIENT SUMMIT AND A US MOGAD PATIENT SUMMIT PROGRAM THAT PROVIDES EDUCATION FOR MOGAD PATIENTS WORLDWIDE AND IN THE US. PATIENTS CAN ATTEND IN PERSON OR SEE THE EVENT LIVESTREAMED. THEY CAN ALSO PARTICIPATE IN THE EVENT BY ASKING QUESTIONS TO THE PRESENTERS. PRESENTERS INCLUDE TOP EXPERTS IN THE DISEASE WORLDWIDE. THESE PROGRAMS ARE CURRENTLY BASED IN THE US AND STREAMED LIVE GLOBALLY. WE ALSO PROVIDE A WEBSITE AND YOUTUBE CHANNEL FILLED WITH WRITTEN MATERIALS, INFOGRAPHICS AND VIDEOS AIMED AT EDUCATING PATIENTS, CAREGIVERS AND MEDICAL PROFESSIONALS. IN ADDITION, WE HOLD A BLOG SPACE FOR ARTICLES WRITTEN TO EDUCATE PATIENTS ON RESEARCH ARTICLES AND PATIENT EXPERIENCE SO THAT THEY CAN KNOW WHAT OTHERS HAVE GONE THROUGH, INFORMING THEM BETTER ON WHAT TO EXPECT WITH DISEASE MANAGEMENT. WE ALSO PROVIDE A GREAT DEAL OF PRINTED MATERIALS FOR PATIENTS THAT WE DISTRIBUTE AT EVENTS AND SEND TO CLINICS TREATING MOGAD ALL OVER THE WORLD. FORM 990, PAGE 2, PART III, LINE 4B RESEARCH PROGRAMS: WE WORK TO AFFECT RESEARCH IN MOGAD THROUGH PATIENT PARTICIPATION IN SURVEYS IN COLLABORATION WITH REPUTABLE RESEARCHERS/INDUSTRY PARTNERS TO HELP GUIDE RESEARCH TO BETTER UNDERSTAND THE PATIENT EXPERIENCE GIVEN THAT THIS IS A NEWLY DISCOVERED DISEASE THAT REQUIRES BETTER UNDERSTANDING OF WHAT SYMPTOMS PATIENTS EXPERIENCE AND HOW THEIR DISEASE MANIFESTS OVER TIME. WE ALSO USE THESE SURVEYS TO UNDERSTAND WHAT THE PATIENT POPULATION NEEDS IN VARIOUS WORLD AREAS, INCLUDING UNDERSERVED COMMUNITIES. WE ALSO PROVIDE, WHEN AVAILABLE, FUNDS WE RAISED AS GRANTS FOR ADJUDICATED RESEARCH AS PART OF OUR RESEARCH FOR RARE PROGRAM, WHICH COVERS TWO TYPES OF GRANTS: ONE THAT FUNDS RESEARCH IN IMPACTFUL AREAS THAT WILL PROVIDE SEED DATA FOR LARGER GRANTS AVAILABLE AT INSTITUTIONS LIKE NIH, AND ANOTHER THAT FUNDS INFRASTUCTURE, SUCH AS REGISTRIES FOR DATA COLLECTION AND MANAGEMENT. FORM 990, PAGE 2, PART III, LINE 4C SUPPORT: WE PROVIDE SUPPORT GROUPS THROUGH SOCIAL MEDIA CHANNELS AS WELL AS SUPPORT FOR SMALL GROUPS VIA ZOOM. WE USE THESE GROUPS TO CONNECT PATIENTS TO OTHERS GOING THROUGH THE SAME THING THEY ARE SINCE THEY WILL HAVE DIFFICULTY FORMING LOCAL GROUPS TO DO THIS AS MOGAD IS A RARE DISEASE. WE ALSO PROVIDE SUPPORT EVENTS WHERE MEDICAL EXPERTS GATHER TO DO A Q&A FOR PATIENTS REGULARLY THROUGHOUT THE YEAR, GIVING PATIENTS AN OPPORTUNITY TO GET SUPPORT BACKED BY EXPERT MEDICAL ADVICE IN A GENERAL MANNER. IN ADDITION, WE HAVE A CHILDREN'S AMBASSADOR PROGRAM FOR KIDS LED BY PARENTS TO PROVIDE A SUPPORT NETWORK FOR KIDS UNDER 18. WE ALSO HAVE A PEER-TO-PEER PROGRAM CALLED MOGMENTORS THAT CONNECTS NEW PATIENTS WITH VOLUNTEERS WHO HAVE GONE THROUGH A GOOD AMOUNT OF TIME LIVING WITH THE DISEASE AND CAN HELP OTHERS UNFAMILIAR. FORM 990, PAGE 2, PART III, LINE 4D PROGRAM SERVICE EXPENSES: 0, GRANTS AND ALLOCATIONS: 0, REVENUE: 0 POLICY PROGRAMS: OUR POLICY PROGRAMS ARE AIMED AT AFFECTING POLICY AND BRINGING AWARENESS TO MOGAD WORLDWIDE. EXAMPLES OF THIS INCLUDE OUR WORK TO ADVOCATE FOR INCREASED FUNDING AT NINDS/NIH AND THE CREATION OF A ICD-10 CODE WITH THE CDC AND AND ICD-11 CODE WITH THE WHO. OTHER EFFORTS INCLUDE WORK TO ENCOURAGE LAWMAKERS TO RECOGNIZE MOGAD AS A DISEASE SO THAT PATIENTS WITH THE INVISIBLE DISABILITY CAUSED BY THE DISEASE WHO CANNOT WORK CAN GET THEIR DISABILITY APPROVED THOUGH FEDERAL/STATE SOCIAL SECURITY MECHANISMS. FORM 990, PAGE 6, PART VI, LINE 2 JULIA LEFELAR AMY EDNIE EXEC. DIR PRESIDENT SIBLINGS FORM 990, PAGE 6, PART VI, LINE 11B THE ORGANIZATION REVIEWS THE 990 FORM AT A BOARD MEETING PRIOR TO SUBMITTING TO THE IRS. FORM 990, PAGE 6, PART VI, LINE 12C THE ORGANIZATION ENFORCED COMPLIANCE WITH ITS CONFLICT OF INTEREST POLICY BY REVIEWING IT PERIODICALLY AT BOARD MEETINGS. FORM 990, PAGE 6, PART VI, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART IX, LINE 11G PROFESSIONAL FEES 8,960 104,120 0