Nonprofit · EIN 84-5014314
SOPHIES HOPE FOUNDATION INC
Tax-exempt · HOPKINTON, MA 01748
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $346,140 | $337,548 | $8,592 | $844,068 | $0 | $844,068 |
| December 31, 2024 | 990 | $424,774 | $242,400 | $182,374 | $835,476 | $0 | $835,476 |
| December 31, 2023 | 990 | $329,408 | $195,191 | $134,217 | $653,102 | $0 | $653,102 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $229,441
- Program service revenue
- $0
- Investment income
- $9,846
- Net income from fundraising events
- $106,853
- Other revenue
- $106,853
Expenses
- Grants and similar amounts paid
- $190,404
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $2,673
- Travel
- $1,845
- Program services (functional)
- $322,804
- Management and general (functional)
- $9,108
- Fundraising (functional)
- $5,636
Balance sheet and other
- Total assets, start of year
- $835,476
- Total assets, end of year
- $844,068
- Total liabilities, end of year
- $0
- Net assets, end of year
- $844,068
- Net assets without donor restrictions
- $844,068
- Gross receipts
- $434,288
- Employees
- 0
- Volunteers
- 20
- Year formed
- 2020
- State of legal domicile
- MA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JAMAS LAFRENIERE | PRESIDENT Trustee or director, Officer | 15 | $0 |
| JOSEPH BARBERIO | CLERK Trustee or director, Officer | 5 | $0 |
| BRETT ADAMCZYK | TREASURER Trustee or director, Officer | 5 | $0 |
990 for the year ended December 31, 2024: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JAMAS LAFRENIERE | PRESIDENT Trustee or director, Officer | 15 | $0 |
| JOSEPH BARBERIO | CLERK Trustee or director, Officer | 5 | $0 |
| BRETT ADAMCZYK | TREASURER Trustee or director, Officer | 5 | $0 |
990 for the year ended December 31, 2023: 3 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| JAMAS LAFRENIERE | PRESIDENT Trustee or director, Officer | 15 | $0 |
| JOSEPH BARBERIO | CLERK Trustee or director, Officer | 5 | $0 |
| BRETT ADAMCZYK | TREASURER Trustee or director, Officer | 5 | $0 |
Address and contacts
- Address (IRS master file)
- 23 BRIARCLIFF DR, HOPKINTON, MA 01748-2517
- Principal officer (990 for 2025)
- JAMAS LAFRENIERE, 23 BRIARCLIFF DRIVE, HOPKINTON, MA 01748
- Signed the 990
- JAMAS LAFRENIERE, PRESIDENT
- Phone
- (508) 341-4027
- Return prepared by
- POZERSKI HATCH & COMPANY
Mission
SOPHIE'S HOPE FOUNDATION'S MISSION IS TO HELP FIND A CURE FOR GSD 1B. WE BELIEVE WE CAN ACCOMPLISH THIS BY FUNDING RESEARCH AND BY COORDINATING THE COLLABORATION OF PATIENTS, CAREGIVERS, DOCTORS, RESEARCHERS, AND DRUG COMPANIES.
Program accomplishments
- THE ORGANIZATION WORKED TO SPREAD AWARENESS ABOUT GLYCOGEN STORAGE DISEASE 1B (GSD 1B) AND RAISE CRITICAL FUNDS WHICH ARE USED FOR PATIENT ADVOCACY INITIATIVES, DISTRIBUTED TO ORGANIZATIONS WORKING TO FIND A CURE, OR TO SUPPORT THE COLLABORATION OF PATIENTS, CAREGIVES, DOCTORS, RESEARCHERS AND DRUG COMPANIES.Expenses $322,429 · grants $190,404
- THE ORGANIZATION COLLABORATED WITH THE GLOBAL CENTER FOR GSD ON THE GSDVALUE PROJECT, WITH A DESIRED OUTCOME OF ESTABLISHING A GLOBAL STANDARD OF CARE FOR HEPATIC GSD. THE PROJECT WAS COMPLETED IN 2025 PUBLISHED IN A SCIENTIFIC JOURNAL.Expenses $375
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 84-5014314
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2020
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H12)
- Assets (IRS master file)
- $844,068
- Income (IRS master file)
- $434,288
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $346,140 | $337,548 | $844,068 | XML |
| 990 | December 2024 | $424,774 | $242,400 | $835,476 | XML |
| 990 | December 2023 | $329,408 | $195,191 | $653,102 | XML |
| 990 | December 2022 | $252,400 | $58,651 | $518,885 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-EZ | December 2020 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 84-5014314).
Questions about SOPHIES HOPE FOUNDATION INC
- What is the EIN of SOPHIES HOPE FOUNDATION INC?
- The employer identification number (EIN) of SOPHIES HOPE FOUNDATION INC is 84-5014314.
- Is SOPHIES HOPE FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2020.
- Are donations to SOPHIES HOPE FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does SOPHIES HOPE FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of SOPHIES HOPE FOUNDATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did SOPHIES HOPE FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of SOPHIES HOPE FOUNDATION INC?
- The 990 for the year ended December 31, 2025 names JAMAS LAFRENIERE.
- Who are the officers and directors of SOPHIES HOPE FOUNDATION INC?
- The 990 for the year ended December 31, 2025 lists 3 people; 0 received compensation from the organization.
- How much revenue does SOPHIES HOPE FOUNDATION INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $346,140, expenses of $337,548 and total assets of $844,068 at year end.
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