2025-02-22T11:07:09-06:00 2024-12-31 823736106 POZERSKI HATCH & COMPANY 100 LEDGEWOOD PLACE SUITE 304 ROCKLAND MA 02370 990 2024-01-01 845014314 SOPHIE'S HOPE FOUNDATION INC SOPH 5083414027 23 BRIARCLIFF DRIVE HOPKINTON MA 01748 JAMAS LAFRENIERE PRESIDENT 5083414027 2025-02-10 1 0 CHRISTOPHER ERNEST P01220660 7814801430 2025-02-10 2024 2025-03-06 01:10:19Z JAMAS LAFRENIERE 23 BRIARCLIFF DRIVE HOPKINTON MA 01748 499893 0 X HTTPS://SOPHIESHOPEFOUNDATION.ORG X 2020 MA SOPHIE'S HOPE FOUNDATION'S MISSION IS TO HELP FIND A CURE FOR GSD 1B. WE BELIEVE WE CAN ACCOMPLISH THIS BY FUNDING RESEARCH AND BY COORDINATING THE COLLABORATION OF PATIENTS, CAREGIVERS, DOCTORS, RESEARCHERS, AND DRUG COMPANIES. 3 3 0 17 0 0 274858 348174 0 0 6939 8822 47611 67778 329408 424774 0 57763 0 0 0 0 0 0 3138 195191 184637 195191 242400 134217 182374 653102 835476 0 0 653102 835476 SOPHIE'S HOPE FOUNDATION'S MISSION IS TO HELP FIND A CURE FOR GSD 1B. WE BELIEVE WE CAN ACCOMPLISH THIS BY FUNDING RESEARCH AND BY COORDINATING THE COLLABORATION OF PATIENTS, CAREGIVERS, DOCTORS, RESEARCHERS, AND DRUG COMPANIES. 0 0 147535 57763 THE ORGANIZATION WORKED TO SPREAD AWARENESS ABOUT GLYCOGEN STORAGE DISEASE 1B (GSD 1B) AND RAISE CRITICAL FUNDS WHICH ARE USED FOR PATIENT ADVOCACY INITIATIVES, DISTRIBUTED TO ORGANIZATIONS WORKING TO FIND A CURE, OR TO SUPPORT THE COLLABORATION OF PATIENTS, CAREGIVES, DOCTORS, RESEARCHERS AND DRUG COMPANIES. 79420 THE ORGANIZATION COLLABORATED WITH THE GLOBAL CENTER FOR GSD ON THE GSDVALUE PROJECT, WHICH HAS A DESIRED OUTCOME OF ESTABLISHING A GLOBAL STANDARD OF CARE FOR HEPATIC GSD. 226955 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 3 0 1 0 0 0 0 0 0 1 1 0 0 0 0 0 0 X 3 3 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 MA X JAMAS LEFRENIERE 5083414027 23 BRIARCLIFF DRIVE HOPKINTON MA 01748 X JAMAS LAFRENIERE PRESIDENT 15.00 X X 0 0 0 JOSEPH BARBERIO CLERK 5.00 X X 0 0 0 BRETT ADAMCZYK TREASURER 5.00 X X 0 0 0 0 0 0 0 0 0 0 0 128741 219433 348174 8822 8822 142897 128741 75119 67778 67778 424774 0 0 76600 57763 57763 7350 7350 2867 2867 6275 3137 3138 1747 1747 1300 1300 CONSULTING - PATIENT AD 80721 80721 GSDVALUE PROJECT MANAGE 79420 79420 SUPPLIES AND MATERIALS 4331 4331 BANK FEES 498 498 128 128 242400 226955 12307 3138 653102 835476 653102 835476 0 0 X 653102 835476 653102 835476 653102 835476 182374 0 X 0 0 0 X 62658 121218 100715 274858 348174 907623 62658 121218 100715 274858 348174 907623 12746 894877 93 1951 6939 8822 17805 45255 126913 149734 47611 67778 437291 1362719 0.65670 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 0 0 0 0 0 0 0 0 0 EUROPE RESEARCH 20185 WIRE TRANSFER 0 1 0 0 0 0 0 0 0 PART I, LINE 2: BEFORE A REQUEST IS APPROVED, MEMBERS OF THE SCIENTIFIC ADVISORY BOARD WILL REVIEW THE REQUEST AND PROVIDE FEEDBACK TO ASSIST IN THE DECISION TO FUND THE REQUEST. THE ORGANIZATION RECEIVES UPDATES EVERY 3 MONTHS, OR MORE OFTEN IF ANYTHING OF SIGNIFICANCE IS DISCOVERED DURING THE RESEARCH. THE GRANT MONEY IS NOT SENT ALL AT ONCE, BUT RATHER AFTER UPDATES ARE RECEIVED, TO ENSURE PROGRESS IS BEING MADE. PART II, LINE 1 THE ORGANIZATION USES THE CASH METHOD OF ACCOUNTING. GOLF TOURNAMENT 222400 116824 105576 36690 15601 8445 BOSTON MARATHON FUNDRAISER 49238 11917 37321 13783 600 271638 128741 142897 36690 29384 9045 75119 67778 1 DUKE UNIVERSITY 324 BLACKWELL ST WASHINGTON BLDG DURHAM NC 27708 560532129 501(C)(3) 37578 0 DUKE RETROSPECTIVE NATURAL HISTORY STUDY 1 0 PART I, LINE 2: THE ORGANIZATION IS IN COMMUNICATION WITH RECEIPIENTS OF GRANT FUNDS TO LEARN ABOUT HOW THE FUNDS ARE BEING UTILIZED TO ADVANCE THE RESEACH FOR, AND WORK TOWARDS, A CURE FROM GSD 1B, OR ASSIST WTIH THE COLLABORATION OF PATIENTS, CAREGIVERS, DOCTORS, RESEARCHERS, AND DRUG COMPANIES. FORM 990, PART VI, SECTION B, LINE 11B THE ORGANIZATION'S VOTING BOARD MEMBERS REVIEW THE FORM 990 AND ITS ATTACHMENTS PRIOR TO ITS FILING. FORM 990, PART VI, SECTION B, LINE 12C ANY INTERESTED PERSON MUST DISCLOSE ANY ACTUAL OR POSSIBLE CONFLICT OF INTEREST. THE CONFLICT WILL BE BROUGHT TO THE BOARD AND THE NON INTERESTED MEMBERS OF THE BOARD WILL VOTE IF A CONFLICT EXISTS. IF THE GOVERNING BOARD OR COMMITTEE HAS REASONABLE CAUSE TO BELIEVE A MEMBER HAS FAILED TO DISCLOSE A POSSIBLE CONFLICT OF INTEREST, AND UPON FUTHER INVESTIGATION FINDS A POSSIBLE CONFLICT IT SHALL TAKE APPROPRIATE DISCIPLINARY AND CORRECTIVE ACTION. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS, POLICIES, 990'S AND FINANCIAL STATEMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST. GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS ARE ALSO MADE AVAILABLE ON THE MASSACHUSETTS ATTORNEY GENERAL'S WEBSITE WITHIN A REASONBLE TIMEFRAME OF THE FILING DEADLINES EACH YEAR.