Nonprofit · EIN 84-4857909
THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC
Tax-exempt · BETHESDA, MD 20814
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $2,305,739 | $296,390 | $2,009,349 | $2,242,070 | $0 | $2,242,070 |
| December 31, 2023 | 990-EZ | $83,574 | $77,436 | $6,138 | $232,721 | – | $232,721 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $2,267,400
- Membership dues
- $5,100
- Program service revenue
- $0
- Investment income
- $38,339
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $275,000
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Legal fees
- $12,876
- Program services (functional)
- $275,000
- Management and general (functional)
- $21,390
Balance sheet and other
- Total assets, start of year
- $232,721
- Total assets, end of year
- $2,242,070
- Total liabilities, end of year
- $0
- Net assets, end of year
- $2,242,070
- Gross receipts
- $2,305,739
- Employees
- 0
- Year formed
- 2020
- State of legal domicile
- MD
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ROBERT DESNICK | PRESIDENT Trustee or director, Officer | 3 | $0 |
| JOHN PHILLIPS | VICE PRESIDENT Trustee or director, Officer | 1 | $0 |
| KRISTEN WHEEDEN | SECRETARY-TREAS Trustee or director, Officer | 5 | $0 |
| MANISHA BALDWANI | DIRECTOR Trustee or director | 1 | $0 |
| RICHARD BISSELL | DIRECTOR Trustee or director | 1 | $0 |
| HERBERT BONKOVSKY | DIRECTOR Trustee or director | 1 | $0 |
| BRENDAN MCGUIRE | DIRECTOR Trustee or director | 1 | $0 |
| KARL ANDERSON | DIRECTOR Trustee or director | 1 | $0 |
| BRUCE WANG MD | Director Trustee or director | 1 | $0 |
990-EZ for the year ended December 31, 2023: 9 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ROBERT DESNICK | PRESIDENT | 3 | $0 |
| JOHN PHILLIPS | VICE PRESIDENT | 1 | $0 |
| KRISTEN WHEEDEN | SECRETARY-TREAS | 5 | $0 |
| MANISHA BALDWANI | DIRECTOR | 1 | $0 |
| RICHARD BISSELL | DIRECTOR | 1 | $0 |
| HERBERT BONKOVSKY | DIRECTOR | 1 | $0 |
| BRENDAN MCGUIRE | DIRECTOR | 1 | $0 |
| KARL ANDERSON | DIRECTOR | 1 | $0 |
| BRUCE WANG MD | Director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 4800 HAMPDEN LN STE 200, BETHESDA, MD 20814-2934
- In care of
- % KRISTEN WHEEDEN
- Mailing address (990-N for 2020)
- 4915 St Elmo Avenue, Bethesda MD 20814
- Principal officer (990-N for 2020)
- Robert Desnick, 50 Bradley Place, Palm Beach FL 33480
- Signed the 990
- KRISTEN WHEEDEN, SECRETARY-TREASURER
- Phone
- (240) 488-6616
- Website
- www.apexcollaborative.com
- Return prepared by
- WestRock Tax & Consulting
Mission
TO PROMOTE AND CARRY OUT RESEARCH, AND PROMOTE EDUCATIONAL ACTIVITIES, REGARDING PORPHYRIAS AND HEME BIOSYNTHESIS THROUGH DEVELOPMENT OF BEST PRACTICES, RESEARCH SUPPORT, AND EDUCATION.
Program accomplishments
- THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE (APEX) ADVANCED THE AREA OF RESEARCH SUPPORT BY PROVIDING GRANTS THROUGH THE NEXT GENERATION (NEXTGEN) INITIATIVE, WHICH SEEKS TO EDUCATE AND TRAIN THE NEXT GENERATION OF PORPHYRIA EXPERTS.Expenses $275,000 · grants $275,000
- APEX ADVANCED THE AREA OF EDUCATION BY CONTINUING A FISCAL SPONSORSHIP AGREEMENT WITH THE UNITED PORPHYRIAS ASSOCIATION (UPA) TO SUPPORT THE ESTABLISHMENT OF UPA AS A PATIENT ADVOCACY ORGANIZATION TO ADVANCE PATIENT INVOLVEMENT IN RESEARCH, TREATMENT, AND DIAGNOSIS OF THE PORPHYRIAS.
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 84-4857909
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2020
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H90)
- Assets (IRS master file)
- $2,242,070
- Income (IRS master file)
- $2,305,739
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $2,305,739 | $296,390 | $2,242,070 | IRS |
| 990-EZ | December 2023 | $83,574 | $77,436 | $232,721 | XML |
| 990 | December 2022 | $304,432 | $228,393 | $226,583 | IRS |
| 990-EZ | December 2021 | – | – | – | IRS |
| 990-N for 2020 Officer: Robert Desnick | December 31, 2020 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 84-4857909).
Questions about THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC
- What is the EIN of THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC?
- The employer identification number (EIN) of THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC is 84-4857909.
- Is THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2020.
- Are donations to THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC?
- The 990-N for 2020 names Robert Desnick.
- Who are the officers and directors of THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC?
- The 990 for the year ended December 31, 2024 lists 9 people; 0 received compensation from the organization.
- How much revenue does THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $2,305,739, expenses of $296,390 and total assets of $2,242,070 at year end.
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