2024-11-14T09:57:24-08:00 2023-12-31 874657192 WestRock Tax & Consulting 100 Dutch Hill Rd Ste 210 Orangeburg NY 10962 990EZ 2023-01-01 844857909 THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE INC AMER 2404886616 4800 Hampden Boulevard Ste 200 BETHESDA MD 20817 KRISTEN WHEEDEN SECRETARY-TREASURER 2024-11-14 true true JOEL E ROSENBERG CPA P00182078 8456248071 2023 2024-10-15 13:58:12Z X www.apexcollaborative.com X X 83574 X 83574 0 0 0 0 83574 66151 3600 7685 77436 6138 226583 232721 226583 232721 226583 232721 226583 232721 TO PROMOTE AND CARRY OUT RESEARCH, AND PROMOTE EDUCATIONAL ACTIVITIES, REGARDING PORPHYRIAS AND HEME BIOSYNTHESIS THROUGH DEVELOPMENT OF BEST PRACTICES, RESEARCH SUPPORT, AND EDUCATION. THE AMERICAN PORPHYRIAS EXPERT COLLABORATIVE (APEX) ADVANCED THE AREA OF RESEARCH SUPPORT BY PROVIDING GRANTS THROUGH THE NEXT GENERATION (NEXTGEN) INITIATIVE, WHICH SEEKS TO EDUCATE AND TRAIN THE NEXT GENERATION OF PORPHYRIA EXPERTS. 25000 25000 APEX ADVANCED THE AREA OF EDUCATION BY CONTINUING A FISCAL SPONSORSHIP AGREEMENT WITH THE UNITED PORPHYRIAS ASSOCIATION (UPA) TO SUPPORT THE ESTABLISHMENT OF UPA AS A PATIENT ADVOCACY ORGANIZATION TO ADVANCE PATIENT INVOLVEMENT IN RESEARCH, TREATMENT, AND DIAGNOSIS OF THE PORPHYRIAS. 25000 ROBERT DESNICK PRESIDENT 3.00 0 JOHN PHILLIPS VICE PRESIDENT 1.00 0 KRISTEN WHEEDEN SECRETARY-TREAS 5.00 0 MANISHA BALDWANI DIRECTOR 1.00 0 RICHARD BISSELL DIRECTOR 1.00 0 HERBERT BONKOVSKY DIRECTOR 1.00 0 BRENDAN MCGUIRE DIRECTOR 1.00 0 KARL ANDERSON DIRECTOR 1.00 0 BRUCE WANG MD Director 1.00 0 false false false false false false false 0 0 0 false 0 0 false MD KRISTEN WHEEDEN 6701 DEMOCRACY BLVD STE 300 BETHESDA MD 20817 2404806616 false false false false false false false false false false false NONE NONE true X 53924 158723 304432 33574 550653 0 0 53924 158723 304432 33574 550653 0 550653 0 0 13568 13568 564221 X 0.00000 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Grants and Similar Amounts Paid In Excess of $5,000.1 | Donee's Name: UCSF | Cash Amount Given: $25000 Other Expenses.1001 Advertising and Promotion $961 Other Expenses.1002 Office Expenses $846 Other Expenses.1012 Insurance $1940 Other Expenses.1 CONTRACTED SERVICES $3766 Other Expenses.2 DUES & SUBSCRIPTIONS $111 Other Expenses.3 BANK CHARGES $61