Nonprofit · EIN 84-0960471
NATIONAL FRAGILE X FOUNDATION
Also known as CHILDRENS INHERITED BRAIN DISORDERS
Tax-exempt · WASHINGTON, DC 20005
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $2,291,142 | $2,187,406 | $103,736 | $4,034,589 | $1,440,559 | $2,594,030 |
| December 31, 2024 | 990 | $2,134,157 | $2,124,722 | $9,435 | $3,843,116 | $1,351,946 | $2,491,170 |
| December 31, 2023 | 990 | $1,802,073 | $1,800,882 | $1,191 | $3,572,020 | $1,081,559 | $2,490,461 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $2,128,834
- Program service revenue
- $104,143
- Investment income
- $76,533
- Net gain from sales of assets
- -$241
- Net income from fundraising events
- -$18,368
- Other revenue
- -$18,368
Expenses
- Grants and similar amounts paid
- $200,146
- Compensation of officers, directors and key employees
- $162,160
- Other salaries and wages
- $495,175
- Salaries, compensation and benefits (total)
- $795,017
- Professional fundraising fees
- $0
- Accounting fees
- $43,324
- Travel
- $32,008
- Depreciation
- $26,455
- Program services (functional)
- $1,491,841
- Management and general (functional)
- $517,901
- Fundraising (functional)
- $177,664
Balance sheet and other
- Total assets, start of year
- $3,843,116
- Total assets, end of year
- $4,034,589
- Total liabilities, end of year
- $1,440,559
- Net assets, end of year
- $2,594,030
- Land, buildings and equipment
- $90,124
- Publicly traded securities
- $982,448
- Net assets without donor restrictions
- $2,493,557
- Net assets with donor restrictions
- $100,473
- Gross receipts
- $3,242,451
- Employees
- 8
- Volunteers
- 0
- Year formed
- 2001
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| HILARY ROSSELOT | EXECUTIVE DIRECTOR Trustee or director, Officer | 40 | $158,158 | $2,140 |
| KRISTIN BOGART | SENIOR DIRECTOR, DEVELOPMENT & COMMUNICATION Highest-paid employee | 40 | $109,382 | $14,822 |
| JORDAN CRODY | BOARD TREASURER Trustee or director | 0 | $0 | $0 |
| PEGGY FLANIGAN | BOARD SECRETARY Trustee or director | 0 | $0 | $0 |
| JACQUELYN COLEMNA | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
| JILL DOLAN | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
| DENNY HAUGEN | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
| SUSAN HOWELL | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
| TAMARO HUDSON | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
| MICHELE KAPLAN | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
| REBECCA SHAFFER | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
| KERRY STEDKE | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
| DAVID TILLMAN | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
| VICKI WILKENS | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
| REYMUNDO LAZANO | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
2 more people on this return
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LAURIE BRIDGES | BOARD MEMBER Officer | 0 | $0 |
| KARA FRECH | BOARD VICE-PRESIDENT Officer | 0 | $0 |
990 for the year ended December 31, 2024: 16 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| HILARY ROSSELOT | EXECUTIVE DIRECTOR Trustee or director, Officer | 40 | $143,381 | $0 |
| KRISTIN BOGART | SENIOR DIRECTOR, DEVELOPMENT & COMMUNICATION Highest-paid employee | 40 | $117,823 | $13,424 |
| LAURIE BRIDGES | BOARD PRESIDENT Trustee or director, Officer | 2 | $0 | $0 |
| KARA FRECH | BOARD VICE-PRESIDENT Trustee or director, Officer | 2 | $0 | $0 |
| JORDAN CROTTY | BOARD TREASURER Trustee or director, Officer | 2 | $0 | $0 |
| ABBY GAUNT | BOARD SECRETARY Trustee or director, Officer | 2 | $0 | $0 |
| REYMUNDO LOZANO | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DENNY HAUGEN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| REBECCA SCHAEFFER | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| SHARI SILVER | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| VICTORIA WILKINS | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| TAMARO HUDSON | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DAVID TILLMAN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| JACQUELYN COLEMAN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| SUSAN HOWELL | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| PEGGY FLANAGAN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
990 for the year ended December 31, 2023: 17 people
| Name | Title | Hours / week | Compensation | Other / benefits |
|---|---|---|---|---|
| HILARY ROSSELOT | EXECUTIVE DIRECTOR Officer | 40 | $149,120 | $19,287 |
| LAURIE BRIDGES | BOARD MEMBER Trustee or director, Officer | 2 | $0 | $0 |
| KARA FRECH | BOARD VICE-PRESIDENT Trustee or director, Officer | 2 | $0 | $0 |
| ANTHONY FASCIANO | BOARD TREASURER Trustee or director | 1 | $0 | $0 |
| ABBY GAURNT | BOARD SECRETARY Trustee or director | 2 | $0 | $0 |
| JOE GARERA | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DENNY HAUGEN | BOARD SECRETARY Trustee or director | 2 | $0 | $0 |
| REYMUNDO LOZANO | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| JED SEIFERT | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| REBECCA SCHAEFFER | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| SHARI SILVER | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| VICTORIA WILKIN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| TAMARO HUDSON | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| DAVID TILLMAN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| JACQUELYN COLEMAN | BOARD MEMBER Trustee or director | 1 | $0 | $0 |
| SUSAN HOWELL | BOARD MEMBER Trustee or director | 40 | $0 | $0 |
| PEGGY FLANAGAN | BOARD MEMBER Trustee or director | 0 | $0 | $0 |
Address and contacts
- Address (IRS master file)
- 1012 14TH ST NW STE 500, WASHINGTON, DC 20005-3406
- In care of
- % LINDA SORENSEN
- Principal officer (990 for 2025)
- HILARY ROSSELOT, 1012 14TH ST NW 500, WASHINGTON, DC 20005
- Signed the 990
- HILARY ROSSELOT, EXECUTIVE DIRECTOR
- Phone
- (800) 688-8765
- Website
- WWW.FRAGILEX.ORG
- Return prepared by
- CALIBRE CPA GROUP PLLC
Mission
THE NATIONAL FRAGILE X FOUNDATION SERVES THE ENTIRE FRAGILE X COMMUNITY TO LIVE THEIR BEST LIVES BY PROVIDING THE KNOWLEDGE, RESOURCES, AND TOOLS UNTIL, AND EVEN AFTER, MORE EFFECTIVE TREATMENTS AND A CURE ARE ACHIEVED.
Program accomplishments
- EDUCATION AND SUPPORT - THE NFXF PROVIDES PERSONALIZED SUPPORT, RESOURCES AND REFERRALS TO INDIVIDUALS AND FAMILIES ON THE MULTITUDE OF ISSUES THEY FACE, INCLUDING DIAGNOSIS, GENETICS, BEHAVIOR, TREATMENTS, EDUCATIONAL PLANNING, EMPLOYMENT AND ADULT ISSUES. THE NFXF ORGANIZES EDUCATIONAL CONENT INCLUDING RESOURCES, WEBINARS, VIRUTAL EVENTS, AND EDUCATIONAL CONFERENCES FOR FAMILIES AND PROFESSIONALS ABOUT FRAGILE X SYNDROME AND THE ASSOCIATED CONDITIONS AND DISORDERS TO PROVIDE HOPE AND HELP FAMILIES OVERCOME THE DAILY CHALLENGES OF LIVING WITH FX.Expenses $331,437 · revenue $815
- RESEARCH GRANTS - THE NFXF FACILITATES SEVERAL MAJOR RESEARCH STRATEGIES. THE NFXF DATA REPOSITORY, WHICH LEVERAGES PREVIOUSLY COLLECTED DATA FOR NEW PROOF-OF-CONCEPT DRUG TREAMTENT, OUTCOME MEASURE DEVELOPMENT, AND OTHER MEANINGFUL SCIENTIFIC WORK. THE NFXF ALSO FUNDS SUMMER SCHOLAR RESEARCH AWARDS TO PROMOTE THE DEVELOPMENT OF YOUNGER SCIENTISTS IN THE FIELD. THE NFXF ALSO ENABLES A RESEARCH READINESS PROGRAM, A COLLABORATIVE PIPELINE SUPPORTING THE DEVELOPMENT AND EXECUTION OF SCIENTIFICALLY-SOUND, RELEVANT, PATIENT-CENTRIC RESEARCH FROM INITIAL PROGRAM DEVELOPMENT THROUGH RESULTS DISSEMINATION.Expenses $284,396 · grants $87,085 · revenue $97,738
- ADVOCACY - THE NFXF ORGANIZES AND SUPPORTS A VARIETY OF PERSONAL AND LEGISLATIVE ADVOCACY INITIATIVES. THIS INCLUDES THE VIBRANT AND DEDICATED NETWORK OF VOLUNTEER-LED CHAPTERS ACROSS THE U.S., THE COMMUNITY SUPPORT NETWORK, THESE CHAPTERS DELIVER THE NFXF MISSION ON A LOCAL LEVEL. THE NFXF FACILITATES A YEAR-ROUND LEGISLATIVE ADVOCACY PROGRAM THAT INCLUES AN ANNUAL FLY IN FOR FAMILIES LIVING WITH FRAGILE X TO ADVOCATE FOR RESEARCH FUNDIN-G FOR FRAGILE X AND LEGISLATION THAT POSITIVELY IMPACTS THE COMMUNITY.Expenses $266,535 · revenue $5,590
- Expenses $609,473 · grants $113,061
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 84-0960471
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1983
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H20)
- Assets (IRS master file)
- $4,034,589
- Income (IRS master file)
- $3,242,451
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $2,291,142 | $2,187,406 | $4,034,589 | XML |
| 990 | December 2024 | $2,134,157 | $2,124,722 | $3,843,116 | XML |
| 990 | December 2023 | $1,802,073 | $1,800,882 | $3,572,020 | XML |
| 990 | December 2022 | $3,240,795 | $2,091,542 | $2,775,189 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 84-0960471).
Questions about NATIONAL FRAGILE X FOUNDATION
- What is the EIN of NATIONAL FRAGILE X FOUNDATION?
- The employer identification number (EIN) of NATIONAL FRAGILE X FOUNDATION is 84-0960471.
- Is NATIONAL FRAGILE X FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1983.
- Are donations to NATIONAL FRAGILE X FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does NATIONAL FRAGILE X FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of NATIONAL FRAGILE X FOUNDATION due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did NATIONAL FRAGILE X FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of NATIONAL FRAGILE X FOUNDATION?
- The 990 for the year ended December 31, 2025 names HILARY ROSSELOT.
- Who are the officers and directors of NATIONAL FRAGILE X FOUNDATION?
- The 990 for the year ended December 31, 2025 lists 17 people; 2 received compensation from the organization, the highest $158,158 (HILARY ROSSELOT, EXECUTIVE DIRECTOR).
- How much revenue does NATIONAL FRAGILE X FOUNDATION have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $2,291,142, expenses of $2,187,406 and total assets of $4,034,589 at year end.
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