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Nonprofit · EIN 83-4086943

MYHRE SYNDROME FOUNDATION

Tax-exempt · KELLER, TX 76248

Financials

$854K$103K2023$1.7M$567K2024
Revenue Expenses · by fiscal year end
Financials of MYHRE SYNDROME FOUNDATION by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
June 30, 2025990$1,722,681$567,231$1,155,450$2,036,989$0$2,036,989
June 30, 2024990$853,869$103,124$750,745$881,539$0$881,539
Financial details: 990 for the year ended June 30, 2025

Revenue

Contributions, gifts and grants
$1,671,904
Program service revenue
$0
Investment income
$50,777
Other revenue
$0

Expenses

Grants and similar amounts paid
$0
Compensation of officers, directors and key employees
$72,753
Other salaries and wages
$125,708
Salaries, compensation and benefits (total)
$215,577
Professional fundraising fees
$0
Legal fees
$4,350
Accounting fees
$4,200
Program services (functional)
$567,231

Balance sheet and other

Total assets, start of year
$881,539
Total assets, end of year
$2,036,989
Total liabilities, end of year
$0
Net assets, end of year
$2,036,989
Net assets without donor restrictions
$2,036,989
Gross receipts
$1,722,681
Employees
3
Year formed
2019
State of legal domicile
TX

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended June 30, 2025, highest compensation first.

NameTitleHours / weekCompensation
Armelle pindonChief Scientific Officer40$120,000
Kate WearsExecutive Dir.
Officer
21$64,921
Justin SmithTreasurer
Trustee or director, Officer
5$0
Ines WhitePresident
Trustee or director, Officer
5$0
Don ClarkVice President
Trustee or director
3$0
Kathy YoungDirector
Trustee or director
3$0
Michelle SmithDirector
Trustee or director
3$0
Betsy CoxDirector
Trustee or director
3$0
Jessica SimkinsDirector
Trustee or director
3$0
Zac BurnsDirector
Trustee or director
10$0
Matthew KantorDirector
Trustee or director
3$0
Susan MurphyDirector
Trustee or director
3$0
Mary YoungDirector
Trustee or director
3$0
990 for the year ended June 30, 2024: 13 people
NameTitleHours / weekCompensation
Kate WearsExecutive Dir.
Trustee or director
21$24,202
Justin SmithTreasurer
Trustee or director, Officer
3$0
Ines WhitePresident
Trustee or director, Officer
5$0
Don ClarkVice President
Trustee or director, Officer
3$0
Sandy TaylorDirector
Trustee or director
2$0
Patti SchultzDirector
Trustee or director
3$0
Stephanie KaratsinidesSecretary
Trustee or director, Officer
3$0
Levi HolderDirector
Trustee or director
2$0
Jessica SimkinsDirector
Trustee or director
3$0
Zac BurnsDirector
Trustee or director
10$0
Matthew KantorDirector
Trustee or director
2$0
Susan MurphyDirector
Trustee or director
2$0
Mary YoungDirector
Trustee or director
3$0

Address and contacts

Address (IRS master file)
1710 KELLER PKWY PMB 8828, KELLER, TX 76248-3749
In care of
% HENRY YOUNG
Principal officer (990 for 2024)
Justin Smith, 25 CREEKWOOD CIR, RICHARDSON, TX 75080
Signed the 990
Justin Smith, Treasurer
Phone
(502) 457-9012
Return prepared by
Fox & Associates

Mission

Myhre Syndrome Foundation is a Funding research and patient advocacy organization dedicated providing hope and improving the lives of those impacted by Myhre syndrome.

990 for the year ended June 30, 2025

Program accomplishments

  • Research Assistant
    Expenses $364,580
  • Patient Advocacy Support
    Expenses $202,651

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in June, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025June 30, 2026November 16, 2026Not due yet
2024June 30, 2025November 17, 2025990 on file
2023June 30, 2024November 15, 2024990 on file

IRS record

EIN
83-4086943
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2019
Accounting year ends
June
Files
Form 990 or 990-EZ
Assets (IRS master file)
$2,036,989
Income (IRS master file)
$1,722,681

Filing history

FormYear endedRevenueExpensesAssetsReturn
990June 2025$1,722,681$567,231$2,036,989IRS
990June 2024$853,869$103,124$881,539XML
990-EZJune 2023–––IRS
990-EZJune 2022–––IRS
990-EZJune 2020–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 83-4086943).

Questions about MYHRE SYNDROME FOUNDATION

What is the EIN of MYHRE SYNDROME FOUNDATION?
The employer identification number (EIN) of MYHRE SYNDROME FOUNDATION is 83-4086943.
Is MYHRE SYNDROME FOUNDATION tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2019.
Are donations to MYHRE SYNDROME FOUNDATION tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does MYHRE SYNDROME FOUNDATION file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of MYHRE SYNDROME FOUNDATION due?
The return for tax year 2025 (the year ending June 30, 2026) is due November 16, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did MYHRE SYNDROME FOUNDATION last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended June 2025.
Who is the principal officer of MYHRE SYNDROME FOUNDATION?
The 990 for the year ended June 30, 2025 names Justin Smith.
Who are the officers and directors of MYHRE SYNDROME FOUNDATION?
The 990 for the year ended June 30, 2025 lists 13 people; 2 received compensation from the organization, the highest $120,000 (Armelle pindon, Chief Scientific Officer).
How much revenue does MYHRE SYNDROME FOUNDATION have?
On its 990 for the year ended June 30, 2025 it reported revenue of $1,722,681, expenses of $567,231 and total assets of $2,036,989 at year end.

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