Nonprofit · EIN 82-5401904
KABUKI SYNDROME FOUNDATION
Tax-exempt · NORTHBROOK, IL 60065
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $1,238,474 | $928,828 | $309,646 | $2,302,196 | $30,090 | $2,272,106 |
| December 31, 2023 | 990 | $2,062,718 | $600,490 | $1,462,228 | $2,051,432 | $30,972 | $2,020,460 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $1,446,792
- Program service revenue
- $0
- Investment income
- $53,858
- Net gain from sales of assets
- -$1,637
- Net income from fundraising events
- -$266,522
- Other revenue
- -$262,176
Expenses
- Grants and similar amounts paid
- $414,393
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $15,962
- Travel
- $7,015
- Depreciation
- $780
- Program services (functional)
- $810,256
- Management and general (functional)
- $64,435
- Fundraising (functional)
- $54,137
Balance sheet and other
- Total assets, start of year
- $2,051,432
- Total assets, end of year
- $2,302,196
- Total liabilities, end of year
- $30,090
- Net assets, end of year
- $2,272,106
- Land, buildings and equipment
- $3,707
- Publicly traded securities
- $1,644,186
- Net assets without donor restrictions
- $1,687,541
- Net assets with donor restrictions
- $584,565
- Gross receipts
- $1,749,321
- Employees
- 0
- Volunteers
- 6
- Year formed
- 2018
- State of legal domicile
- IL
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ANNIE DEAN | CO-PRESIDENT Trustee or director, Officer | 1 | $0 |
| JILL ORUM DUNBAR | CO-PRESIDENT Trustee or director, Officer | 1 | $0 |
| PATRICK DUNBAR | TREASURER Trustee or director, Officer | 1 | $0 |
| THOMAS CINGARI JR | VICE PRESIDENT Trustee or director, Officer | 1 | $0 |
| EDOARDO ZEGNA DI MONTE RUBELLO | VICE PRESIDENT Trustee or director, Officer | 1 | $0 |
| LEILA ZEGNA DI MONTE RUBELLO | VICE PRESIDENT Trustee or director, Officer | 1 | $0 |
| JESSICA MCANDREW | DIRECTOR Trustee or director, Officer | 1 | $0 |
990 for the year ended December 31, 2023: 6 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ANNIE DEAN | CO-PRESIDENT Trustee or director, Officer | 1 | $0 |
| JILL ORUM DUNBAR | CO-PRESIDENT Trustee or director, Officer | 1 | $0 |
| PATRICK DUNBAR | TREASURER Trustee or director, Officer | 1 | $0 |
| THOMAS CINGARI JR | VICE PRESIDENT Trustee or director, Officer | 1 | $0 |
| EDOARDO ZEGNA DI MONTE RUBELLO | VICE PRESIDENT Trustee or director, Officer | 1 | $0 |
| LEILA ZEGNA DI MONTE RUBELLO | VICE PRESIDENT Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 214, NORTHBROOK, IL 60065-0214
- In care of
- % PATRICK DUNBAR
- Principal officer (990 for 2024)
- JILL ORUM DUNBAR, PO BOX 214, NORTHBROOK, IL 60065
- Signed the 990
- JILL ORUM DUNBAR, CO-PRESIDENT
- Phone
- (847) 226-8237
- Return prepared by
- LEGACY PROFESSIONALS LLP
Mission
TO DRIVE RESEARCH EFFORTS THAT SHOW PROMISE TO TREAT OR CURE KABUKI SYNDROME THROUGH FUNDRAISING, KNOWLEDGE-SHARING, AND COLLABORATING WITH RESEARCHERS AROUND THE WORLD.
Program accomplishments
- THE FOUNDATION HOSTS A MEDICAL CONFERENCE THAT BRINGS TOGETHER SEVERAL OF THE LEADING KABUKI SYNDROME RESEARCHERS IN THE WORLD, AS WELL AS MANY INDIVIDUALS WITH KABUKI SYNDROME AND THEIR FAMILIES.Expenses $11,397
- THE FOUNDATION FUNDS VARIOUS RESEARCH PROJECTS THAT FOLLOW THE "LEAP" STRATEGY: LEARN, ENABLE, ACCELERATE, AND PREPARE. THE RESEARCH PROJECTS ARE THE ROADMAP TO POTENTIAL TREATMENTS FOR KABUKI SYNDROME.Expenses $798,859 · grants $414,393
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 82-5401904
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2019
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G80)
- Assets (IRS master file)
- $2,302,196
- Income (IRS master file)
- $1,749,321
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | $1,238,474 | $928,828 | $2,302,196 | IRS |
| 990 | December 2023 | $2,062,718 | $600,490 | $2,051,432 | XML |
| 990 | December 2022 | $362,899 | $236,797 | $482,449 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2019 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-5401904).
Questions about KABUKI SYNDROME FOUNDATION
- What is the EIN of KABUKI SYNDROME FOUNDATION?
- The employer identification number (EIN) of KABUKI SYNDROME FOUNDATION is 82-5401904.
- Is KABUKI SYNDROME FOUNDATION tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2019.
- Are donations to KABUKI SYNDROME FOUNDATION tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does KABUKI SYNDROME FOUNDATION file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of KABUKI SYNDROME FOUNDATION due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did KABUKI SYNDROME FOUNDATION last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of KABUKI SYNDROME FOUNDATION?
- The 990 for the year ended December 31, 2024 names JILL ORUM DUNBAR.
- Who are the officers and directors of KABUKI SYNDROME FOUNDATION?
- The 990 for the year ended December 31, 2024 lists 7 people; 0 received compensation from the organization.
- How much revenue does KABUKI SYNDROME FOUNDATION have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $1,238,474, expenses of $928,828 and total assets of $2,302,196 at year end.
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All nonprofits in NORTHBROOK · Illinois · Voluntary health associations and medical disciplines