2024-11-07T10:32:37-06:00 2023-12-31 320043599 LEGACY PROFESSIONALS LLP 4 WESTBROOK CORPORATE CTR STE 700 WESTCHESTER IL 60154 990 2023-01-01 825401904 KABUKI SYNDROME FOUNDATION KABU 8472268237 PO BOX 214 NORTHBROOK IL 60065 JILL ORUM DUNBAR CO-PRESIDENT 8472268237 2024-11-07 1 1 CHRISTINE V ERNST P01725863 3123680500 2024-11-07 2023 2024-10-15 13:58:12Z JILL ORUM DUNBAR PO BOX 214 NORTHBROOK IL 60065 2509651 0 X HTTPS://WWW.KABUKISYNDROMEFOUNDATION.ORG/ X 2018 IL DRIVE RESEARCH EFFORTS THAT SHOW PROMISE TO TREAT OR CURE KABUKI SYNDROME. 6 6 0 6 0 0 357929 2176028 4970 0 0 5250 0 -118560 362899 2062718 127500 280163 0 0 0 0 0 0 43285 109297 320327 236797 600490 126102 1462228 482449 2051432 0 30972 482449 2020460 TO DRIVE RESEARCH EFFORTS THAT SHOW PROMISE TO TREAT OR CURE KABUKI SYNDROME THROUGH FUNDRAISING, KNOWLEDGE-SHARING, AND COLLABORATING WITH RESEARCHERS AROUND THE WORLD. 0 0 18434 THE FOUNDATION HOSTS A MEDICAL CONFERENCE THAT BRINGS TOGETHER SEVERAL OF THE LEADING KABUKI SYNDROME RESEARCHERS IN THE WORLD, AS WELL AS MANY INDIVIDUALS WITH KABUKI SYNDROME AND THEIR FAMILIES. 493732 280163 THE FOUNDATION FUNDS KABUKI SYNDROME OUTCOME MEASURES AND BIOMARKERS CONSORTIUM (KSOC) AIMED AT DEVELOPING KABUKI SYNDROME-SPECIFIC TOOLS THAT CAN MEASURE THE EFFECTS OF POTENTIAL TREATMENTS IN FUTURE CLINICAL TRIALS. 512166 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 0 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 10 0 1 0 0 0 0 0 0 1 1 0 0 0 0 X 6 6 1 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 IL X THE ORGANIZATION 8472268237 PO BOX 214 NORTHBROOK IL 60065 X ANNIE DEAN CO-PRESIDENT 1.00 X X 0 0 0 JILL ORUM DUNBAR CO-PRESIDENT 1.00 X X 0 0 0 PATRICK DUNBAR TREASURER 1.00 X X 0 0 0 THOMAS CINGARI JR VICE PRESIDENT 1.00 X X 0 0 0 EDOARDO ZEGNA DI MONTE RUBELLO VICE PRESIDENT 1.00 X X 0 0 0 LEILA ZEGNA DI MONTE RUBELLO VICE PRESIDENT 1.00 X 0 0 0 0 0 0 0 0 0 0 0 646569 1529459 307948 2176028 6470 6470 271956 273176 -1220 -1220 -1220 52920 646569 173757 -120837 -120837 OTHER INCOME 900099 2277 2277 2277 2062718 0 0 -113310 233663 233663 46500 46500 274452 211627 19662 43163 16000 16000 5890 5890 3431 3431 18434 18434 780 602 56 122 KABUKI COUNTS PROGRAM 1040 1040 JOINT RESEARCH EXPENDIT 300 300 600490 512166 45039 43285 477182 321925 339493 100653 5462 975 5267 4487 1284874 482449 2051432 30972 0 30972 X 482449 1416858 603602 482449 2020460 482449 2051432 1462228 75783 0 X X 0 1 X 1 0 X 4346 8961 401230 362899 2176028 2953464 4346 8961 401230 362899 2176028 2953464 1383059 1570405 6470 6470 2959934 71122 0.53060 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 5462 975 4487 4487 X 2120698 29656 28324 57980 2062718 0 2062718 658470 29656 28324 57980 600490 0 600490 PART X, LINE 2: ACCOUNTING PRINCIPLES GENERALLY ACCEPTED IN THE UNITED STATES OF AMERICA REQUIRE THE ORGANIZATION TO EVALUATE TAX POSITIONS TAKEN BY THE ORGANIZATION AND RECOGNIZE A TAX LIABILITY IF THE ORGANIZATION HAS TAKEN AN UNCERTAIN POSITION THAT MORE LIKELY THAN NOT WOULD NOT BE SUSTAINED UPON EXAMINATION BY TAX AUTHORITIES. THE ORGANIZATION IS SUBJECT TO ROUTINE AUDITS BY TAXING JURISDICTIONS; HOWEVER, THERE ARE CURRENTLY NO AUDITS FOR ANY TAX PERIODS IN PROGRESS. THE FOUNDATION IS AN ORGANIZATION DESCRIBED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND THUS IS NOT SUBJECT TO TAX EXCEPT ON ANY UNRELATED BUSINESS INCOME. THE INTERNAL REVENUE SERVICE HAS DETERMINED THAT THE FOUNDATION IS NOT A PRIVATE FOUNDATION WITHIN THE MEANING OF SECTION 509(A) OF THE INTERNAL REVENUE CODE. THE FOUNDATION QUALIFIES UNDER SECTION 170(B)(1)(A) TO RECEIVE DEDUCTIBLE CHARITABLE CONTRIBUTIONS. THE FOUNDATION'S RETURNS ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE UNTIL THE APPLICABLE STATUTE OF LIMITATIONS EXPIRES. PART XI, LINE 2D - OTHER ADJUSTMENTS: IN-KIND CONTRIBUTIONS 28,324. PART XII, LINE 2D - OTHER ADJUSTMENTS: IN-KIND CONTRIBUTIONS 28,324. 0 0 0 0 0 0 0 0 0 0 NORTH AMERICA KABUKI SYNDROME RESEARCH GRANT 46500 WIRE TRANSFER 0 0 1 0 0 0 0 0 0 GALA 699489 646569 52920 28324 7660 92831 9750 35192 699489 646569 52920 28324 7660 92831 9750 35192 173757 -120837 1 BOSTON CHILDRENS HOSPITAL 300 LONGWOOD AVE BOSTON MA 02115 042774441 501(C)3 84938 0 KABUKI SYNDROME RESEARCH KENNEDY KRIEGER INSTITUTE 707 N BROADWAY BALTIMORE MD 212051832 521524965 501(C)3 148725 0 KABUKI SYNDROME RESEARCH 2 0 PART I, LINE 2: THE BOARD OF DIRECTORS CAREFULLY REVIEWS ALL REQUESTS FOR DONATIONS AND GRANTS PRIOR TO THEIR APPROVAL AND DISBURSEMENT. APPROVAL IS GRANTED ONLY TO REPUTABLE ORGANIZATIONS AND INDIVIDUALS WHO HAVE SATISFIED THE BOARD'S DUE DILIGENCE. THE BOARD PERFORMS NO SUBSEQUENT MONITORING OF THE USE OF DONATIONS AND GRANTS. ALL RECORDS REGARDING DISBURSEMENT OF FUNDS ARE MAINTAINED BY THE ORGANIZATION. X 272 279624 FMV X AUCTION ITEMS 18 28324 FMV 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 JILL ORUM DUNBAR AND PATRICK DUNBAR ARE MARRIED. EDOARDO ZEGNA DI MONTE RUBELLO AND LEILA ZEGNA DI MONTE RUBELLO ARE MARRIED. FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE 990 WAS DISTRIBUTED TO THE BOARD OF DIRECTORS TO REVIEW AND APPROVE BEFORE FILING. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST. PART XII, LINE 1 THE FOUNDATION CHANGED ITS BASIS OF ACCOUNTING FROM MODIFIED CASH BASIS OF ACCOUNTING TO THE ACCRUAL BASIS OF ACCOUNTING.