Nonprofit · EIN 82-0714729
KIF1AORG INC
Tax-exempt · NEW YORK, NY 10001
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $1,862,921 | $453,559 | $1,409,362 | $1,629,866 | $0 | $1,629,866 |
| December 31, 2024 | 990 | $294,585 | $149,137 | $145,448 | $218,316 | $0 | $218,316 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $1,815,649
- Program service revenue
- $7,990
- Investment income
- $7,135
- Net income from fundraising events
- $28,394
- Other revenue
- $32,147
Expenses
- Grants and similar amounts paid
- $6,698
- Compensation of officers, directors and key employees
- $82,235
- Other salaries and wages
- $99,620
- Salaries, compensation and benefits (total)
- $208,455
- Professional fundraising fees
- $0
- Legal fees
- $6,426
- Accounting fees
- $10,930
- Travel
- $14,769
- Program services (functional)
- $359,104
- Management and general (functional)
- $76,963
- Fundraising (functional)
- $17,492
Balance sheet and other
- Total assets, start of year
- $218,316
- Total assets, end of year
- $1,629,866
- Total liabilities, end of year
- $0
- Net assets, end of year
- $1,629,866
- Publicly traded securities
- $1,156,018
- Net assets without donor restrictions
- $1,559,866
- Net assets with donor restrictions
- $70,000
- Gross receipts
- $1,862,921
- Employees
- 2
- Volunteers
- 20
- Year formed
- 2017
- State of legal domicile
- NY
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| DOMINIQUE LESSARD | EXECUTIVE DIRECTOR Officer | 40 | $82,319 |
| ANGIE FULLER | CHAIRPERSON, TREASURER Trustee or director, Officer | 40 | $0 |
| MICHELLE TAO | VICE CHAIRPERSON, SECRETARY Trustee or director, Officer | 5 | $0 |
| PATRICK SARMIERE | BOARD MEMBER Trustee or director | 1 | $0 |
| TAMARA AGAJANOV | BOARD MEMBER Trustee or director | 1 | $0 |
| SARAH GOLDBERG | BOARD MEMBER Trustee or director | 1 | $0 |
| MARIA BARROS | BOARD MEMBER Trustee or director | 1 | $0 |
| LUKE ROSEN | BOARD MEMBER Trustee or director | 1 | $0 |
| SALLY JACKSON | BOARD MEMBER Trustee or director | 1 | $0 |
990 for the year ended December 31, 2024: 7 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| ANGIE FULLER | CHAIRPERSON, TREASURER Trustee or director, Officer | 40 | $0 |
| MICHELLE TAO | VICE CHAIRPERSON, SECRETARY Trustee or director, Officer | 5 | $0 |
| PATRICK SARMIERE | BOARD MEMBER Trustee or director | 1 | $0 |
| TAMARA AGAJANOV | BOARD MEMBER Trustee or director | 1 | $0 |
| MARIA BARROS | BOARD MEMBER Trustee or director | 1 | $0 |
| LUKE ROSEN | BOARD MEMBER Trustee or director | 1 | $0 |
| SALLY JACKSON | BOARD MEMBER Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 1178 BROADWAY 3RD FLOOR 3535, NEW YORK, NY 10001-5666
- In care of
- % LUKE ROSEN
- Principal officer (990 for 2025)
- DOMINIQUE LESSARD, 1178 BROADWAY 3RD FLOOR 3535, NEW YORK, NY 10001
- Signed the 990
- DOMINIQUE LESSARD, EXECUTIVE DIRECTOR
- Phone
- (929) 630-5232
- Website
- www.kif1a.org
- Return prepared by
- EASY OFFICE DBA JITASA
Mission
KIF1A.ORG IS A GLOBAL COMMUNITY DEDICATED TO IMPROVING THE LIVES OF THOSE AFFECTED BY KIF1A-ASSOCIATED NEUROLOGICAL DISORDERS AND ACCELERATING RESEARCH TO FIND A CURE.
Program accomplishments
- MEDICAL RESEARCH AND DEVELOPMENT - KIF1A.ORG'S MEDICAL RESEARCH AND DEVELOPMENT PROGRAM ACCELERATES DISCOVERY AND THERAPEUTIC DEVELOPMENT FOR KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) BY DRIVING SCIENTIFIC COLLABORATION AND PATIENT-CENTERED RESEARCH. LED BY OUR CHIEF SCIENCE OFFICER, THIS PROGRAM FACILITATES COORDINATION AMONG RESEARCHERS, CLINICIANS, AND INSTITUTIONS AROUND THE WORLD TO ALIGN EFFORTS, SHARE DATA AND RESOURCES, AND ADVANCE UNDERSTANDING OF KIF1A-RELATED SYMPTOMS. THROUGH STRATEGIC PARTNERSHIPS, RESEARCH GRANTS, AND CONVENING GLOBAL EXPERTS, THE PROGRAM HELPS IDENTIFY AND PRIORITIZE HIGH-IMPACT RESEARCH PROJECTS. IMPORTANTLY, KIF1A.ORG ENSURES THAT THE PATIENT AND CAREGIVER PERSPECTIVE REMAINS CENTRAL IN ALL SCIENTIFIC DISCUSSIONS, FROM BASIC RESEARCH TO CLINICAL TRIAL DESIGN. BY BRIDGING THE GAP BETWEEN FAMILIES AND THE SCIENTIFIC COMMUNITY, THE MEDICAL RESEARCH AND DEVELOPMENT PROGRAM FOSTERS A COLLABORATIVE ECOSYSTEM DEDICATED TO DELIVERING MEANINGFUL OUTCOMES FOR THOSE AFFECTED BY KAND.Expenses $141,985
- FAMILY & SCIENTIFIC ENGAGEMENT CONFERENCE - KIF1A.ORG HOSTS A BIENNIAL FAMILY AND SCIENTIFIC ENGAGEMENT CONFERENCE TO UNITE THE GLOBAL KAND COMMUNITY-INCLUDING PATIENTS, FAMILIES, RESEARCHERS, CLINICIANS, AND INDUSTRY PARTNERS-FOR A COLLABORATIVE EXCHANGE OF KNOWLEDGE, RESEARCH UPDATES, AND LIVED EXPERIENCES. THIS FLAGSHIP EVENT FOSTERS MEANINGFUL CONNECTIONS, DRIVES CROSS-DISCIPLINARY COLLABORATION, AND AMPLIFIES THE PATIENT VOICE IN THE SEARCH FOR TREATMENTS AND A CURE. OUR MOST RECENT 2023 EVENT AND LAID CRITICAL GROUNDWORK FOR THE 2025 GATHERING. WE HELD OUR 2025 CONFERENCE IN JULY WITH 345 TOTAL ATTENDANCE (222 IN PERSON AND 123 VIRTUAL) REFLECTING 136% INCREASE SINCE OUR LAST CONVENING. ONGOING ACTIVITIES INCLUDED FOLLOW-UP SESSIONS, PLANNING MEETINGS, COMMUNITY FEEDBACK INITIATIVES, AND SPEAKER COORDINATION. THESE EFFORTS ENSURE THE CONFERENCE REMAINS A POWERFUL CATALYST FOR RESEARCH PROGRESS AND A VITAL SOURCE OF SUPPORT AND EMPOWERMENT FOR FAMILIES AFFECTED BY KAND.Expenses $124,606 · grants $808 · revenue $7,990
- COMMUNITY & FAMILY SUPPORT - KIF1A.ORG'S COMMUNITY AND FAMILY SUPPORT PROGRAM EMPOWERS INDIVIDUALS AFFECTED BY KIF1A ASSOCIATED NEUROLOGICAL DISORDER (KAND) THROUGH DIRECT SUPPORT, RESOURCE DEVELOPMENT, AND FAMILY-CENTERED INITIATIVES. THIS PROGRAM PROVIDES A VITAL SUPPORT NETWORK FOR PATIENTS, CAREGIVERS, AND ADVOCATES NAVIGATING THE CHALLENGES OF A RARE NEURODEGENERATIVE DISEASE. THROUGH VIRTUAL MEETUPS, EDUCATIONAL WEBINARS, PERSONALIZED FAMILY OUTREACH, AND AN ONLINE COMMUNITY PLATFORM, KIF1A.ORG FOSTERS MEANINGFUL CONNECTIONS AMONG FAMILIES AROUND THE WORLD. THE PROGRAM ALSO PROVIDES GUIDANCE ON CLINICAL CARE, ACCESS TO RESEARCH OPPORTUNITIES, AND EMOTIONAL SUPPORT RESOURCES. BY AMPLIFYING THE VOICES OF PATIENTS AND CAREGIVERS, THE COMMUNITY AND FAMILY SUPPORT PROGRAM HELPS BUILD RESILIENCE, REDUCE ISOLATION, AND ENSURE THAT EVERY KAND FAMILY IS EQUIPPED WITH THE TOOLS AND INFORMATION NEEDED TO FACE THE COMPLEX REALITIES OF THIS ULTRA-RARE DISORDER.Expenses $56,131 · grants $5,500
- REIMBURSEMENT OTHER PROGRAMS - GENERAL AND CONFERENCE ATTENDANCE.Expenses $36,382 · grants $391
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 82-0714729
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2017
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Mental health and crisis intervention (F01)
- Assets (IRS master file)
- $1,629,866
- Income (IRS master file)
- $1,862,921
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $1,862,921 | $453,559 | $1,629,866 | XML |
| 990 | December 2024 | $294,585 | $149,137 | $218,316 | IRS |
| 990 | December 2023 | $229,470 | $423,665 | $72,868 | IRS |
| 990 | December 2022 | $557,417 | $1,054,287 | $267,063 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 82-0714729).
Questions about KIF1AORG INC
- What is the EIN of KIF1AORG INC?
- The employer identification number (EIN) of KIF1AORG INC is 82-0714729.
- Is KIF1AORG INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2017.
- Are donations to KIF1AORG INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does KIF1AORG INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of KIF1AORG INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did KIF1AORG INC last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of KIF1AORG INC?
- The 990 for the year ended December 31, 2025 names DOMINIQUE LESSARD.
- Who are the officers and directors of KIF1AORG INC?
- The 990 for the year ended December 31, 2025 lists 9 people; 1 received compensation from the organization, the highest $82,319 (DOMINIQUE LESSARD, EXECUTIVE DIRECTOR).
- How much revenue does KIF1AORG INC have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $1,862,921, expenses of $453,559 and total assets of $1,629,866 at year end.
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