Nonprofit · EIN 81-2058803
VWM FAMILIES FOUNDATION INC
Tax-exempt · GREENWICH, CT 06831
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990-EZ | $89,400 | $64,986 | $24,414 | $68,173 | $0 | $68,173 |
| December 31, 2024 | 990-EZ | $55,074 | $185,742 | -$130,668 | $43,366 | $0 | $43,366 |
| December 31, 2023 | 990-EZ | $66,964 | $6,153 | $60,811 | $174,034 | $113,223 | $60,811 |
Financial details: 990-EZ for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $89,785
- Program service revenue
- $0
- Investment income
- $0
- Net gain from sales of assets
- -$385
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $63,019
- Compensation of officers, directors and key employees
- $0
- Salaries, compensation and benefits (total)
- $0
- Other expenses
- $1,967
Balance sheet and other
- Total assets, start of year
- $42,989
- Total assets, end of year
- $68,173
- Total liabilities, end of year
- $0
- Net assets, end of year
- $68,173
- Cash, savings and investments
- $68,173
- Gross receipts
- $89,785
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990-EZ for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Allyson Buck | Co-founder and President | 3 | $0 |
| Nicholas Buck | Co-founder and Operations | 1 | $0 |
| Brett Hollberg | Board Member Patient Advocacy | 3 | $0 |
| Donna Skwirut | Board Member Alliance Relations | 2 | $0 |
| Stefanie Rohring | Board Member | 0 | $0 |
990-EZ for the year ended December 31, 2024: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Allyson Buck | Co-founder President | 6 | $0 |
| Nicholas Buck | Co-founder Operations | 1 | $0 |
| Brett Hollberg | Board Member Patient Advocacy | 3 | $0 |
| Danuta Skwirut | Board Member | 2 | $0 |
| Stefanie Rohring | Board Member | 0 | $0 |
990-EZ for the year ended December 31, 2023: 5 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Allyson Buck | Co-founder President | 6 | $0 |
| Nicholas Buck | Co-founder Operations | 1 | $0 |
| Brett Hollberg | Board Member Patient Advocacy | 2 | $0 |
| Danuta Skwirut | Board Member | 1 | $0 |
| Stefanie Rohring | Board Member | 0 | $0 |
Address and contacts
- Address (IRS master file)
- 7 LANTERN LN, GREENWICH, CT 06831-4124
- Mailing address (990-N for 2022)
- 7 LANTERN LN, GREENWICH CT 068314124
- Principal officer (990-N for 2022)
- Nicholas Buck, 7 Lantern Ln, Greenwich CT 06831
- Signed the 990-EZ
- Nicholas J Buck, 0
- Phone
- (203) 343-7596
- Website
- www.vwmff.org
Mission
Vanishing White Matter disease VWM is a very rare neurological condition that destroys myelin the brains white matter In doing so it permanently affects transmission of brain signals to the rest of the body VWM primarily affects children and is untreatable incurable and terminal In 2016 the VWM Families Foundation was formed to raise awareness of VWM to raise money for research and to support families living with VWM within the United States and worldwide
Program accomplishments
- 0
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990-EZ on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990-EZ on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990-EZ on file |
IRS record
- EIN
- 81-2058803
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2016
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Voluntary health associations and medical disciplines (G01)
- Assets (IRS master file)
- $68,173
- Income (IRS master file)
- $89,785
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990-EZ | December 2025 | $89,400 | $64,986 | $68,173 | XML |
| 990-EZ | December 2024 | $55,074 | $185,742 | $43,366 | XML |
| 990-EZ | December 2023 | $66,964 | $6,153 | $174,034 | XML |
| 990-N for 2022 Officer: Nicholas Buck | December 31, 2022 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-EZ | December 2020 | – | – | – | IRS |
| 990-EZ | December 2018 | – | – | – | IRS |
| 990-N for 2016 Officer: Allyson Buck | December 31, 2016 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 81-2058803).
Questions about VWM FAMILIES FOUNDATION INC
- What is the EIN of VWM FAMILIES FOUNDATION INC?
- The employer identification number (EIN) of VWM FAMILIES FOUNDATION INC is 81-2058803.
- Is VWM FAMILIES FOUNDATION INC tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2016.
- Are donations to VWM FAMILIES FOUNDATION INC tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does VWM FAMILIES FOUNDATION INC file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of VWM FAMILIES FOUNDATION INC due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did VWM FAMILIES FOUNDATION INC last file with the IRS?
- The latest return in the IRS public files is the 990-EZ for the year ended December 2025.
- Who is the principal officer of VWM FAMILIES FOUNDATION INC?
- The 990-N for 2022 names Nicholas Buck.
- Who are the officers and directors of VWM FAMILIES FOUNDATION INC?
- The 990-EZ for the year ended December 31, 2025 lists 5 people; 0 received compensation from the organization.
- How much revenue does VWM FAMILIES FOUNDATION INC have?
- On its 990-EZ for the year ended December 31, 2025 it reported revenue of $89,400, expenses of $64,986 and total assets of $68,173 at year end.
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