2024-05-16T02:00:10Z 2023-12-31 990EZ 2023-01-01 812058803 VWM FAMILIES FOUNDATION INC VWMF 2033437596 7 Lantern Ln Greenwich CT 06831 Nicholas Buck Co-founder Operations 2033437596 2024-05-16 Nicholas Buck XXX-XX-XXXX true 2023 2023-04-26 12:10:37Z X www.vwmff.org X X 66964 66964 0 0 0 0 0 0 0 0 0 0 0 0 0 0 66964 800 0 0 0 0 0 5353 6153 60811 0 0 60811 X 113223 174034 0 0 0 0 113223 174034 0 113223 113223 60811 X Vanishing White Matter disease VWM is a very rare neurological condition that destroys myelin the brains white matter In doing so it permanently affects transmission of brain signals to the rest of the body VWM primarily affects children and is untreatable incurable and terminal In 2016 the VWM Families Foundation was formed to raise awareness of VWM to raise money for research and to support families living with VWM within the United States and worldwide 0 0 X Allyson Buck Co-founder President 6.00 0 0 0 Nicholas Buck Co-founder Operations 1.00 0 0 0 Brett Hollberg Board Member Patient Advocacy 2.00 0 0 0 Danuta Skwirut Board Member 1.00 0 0 0 Stefanie Rohring Board Member 0.00 0 0 0 false false false false false false false false false CT Nicholas Buck 7 Lantern Ln Greenwich CT 06831 2033437596 false false false false false false false false false false false NONE NONE true X 306448 306448 0 0 59401 89319 56801 33963 66964 306448 59401 89319 56801 33963 66964 306448 306448 59401 89319 56801 33963 66964 306448 1 1 0 0 X Part IV-A, line 1 The foundation provides financial support to a small number of medical research initiatives based on requests it receives Part IV-A, line 2 The foundation provides financial support to a small number of medical research initiatives based on requests it receives Part IV-D, line 2 Regular cadence of communications between our foundation and initiatives supported included written updates RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Schedule O: Part of our mission is to provide assistance to VWM sufferers and their families who are facing financial difficulty as a result of their disease. On January 12 2023, we paid $800 to an automotive company (Seekins Automotive in Maine), to perform important maintenance to the wheelchair van of one of our VWM families.