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Nonprofit · EIN 81-1688265

AUTOIMMUNE REGISTRY INC

Tax-exempt · GUILFORD, CT 06437

Financials

$70K$53K2023$59K$64K2024
Revenue Expenses · by fiscal year end
Financials of AUTOIMMUNE REGISTRY INC by year, from its e-filed returns
Year endedFormRevenueExpensesNet incomeTotal assetsLiabilitiesNet assets
December 31, 2024990$58,563$64,036-$5,473$18,687$8,746$9,941
December 31, 2023990$70,136$52,728$17,408$18,357$2,944$15,413
Financial details: 990 for the year ended December 31, 2024

Revenue

Contributions, gifts and grants
$23,563
Program service revenue
$35,000
Investment income
$0
Other revenue
$0

Expenses

Grants and similar amounts paid
$0
Compensation of officers, directors and key employees
$0
Other salaries and wages
$855
Salaries, compensation and benefits (total)
$1,679
Professional fundraising fees
$0
Travel
$441
Program services (functional)
$56,401
Management and general (functional)
$7,635

Balance sheet and other

Total assets, start of year
$18,357
Total assets, end of year
$18,687
Total liabilities, end of year
$8,746
Net assets, end of year
$9,941
Gross receipts
$58,563
Employees
0
Volunteers
5
Year formed
2016
State of legal domicile
CT

From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.

Officers, directors and key employees

As listed on the 990 for the year ended December 31, 2024, highest compensation first.

NameTitleHours / weekCompensation
Ingrid HeDirector of Research
Trustee or director, Officer
40$38,000
Amber GilbertBoard Member
Trustee or director
1$0
Michael CraigBoard Member
Trustee or director
1$0
Reginald BarnesDirector of Patient Partnerships
Trustee or director
8$0
Aaron AbendExecutive Director
Key employee
20$0
990 for the year ended December 31, 2023: 5 people
NameTitleHours / weekCompensation
Ingrid HeDirector of Research
Trustee or director, Officer
40$22,000
Amber GilbertBoard Member
Trustee or director
1$0
Michael CraigBoard Member
Trustee or director
1$0
Reginald BarnesDirector of Patient Partnerships
Trustee or director
8$0
Aaron AbendExecutive Director
Key employee
20$0

Address and contacts

Address (IRS master file)
125 WEST LN, GUILFORD, CT 06437-3230
Principal officer (990 for 2024)
Aaron Abend, 125 West Lane, Guilford, CT 06437
Signed the 990
Aaron Abend, President
Phone
(860) 470-6414

Mission

Autoimmune Registry, Inc. (ARI) is a 501(c)(3) non-profit umbrella organization that provides a hub for research, statistics, and patient data on all autoimmune diseases. ARI operates a database where patients who suffer from any autoimmune disease can enroll to participate in medical research and clinical trials. Our goals are: 1. To reduce the time of diagnosis, 2. To support research, 3. To research, compute, and publish statistics on all autoimmune diseases, 4. To serve as a trusted source of credible, scientifically supported information about every autoimmune disease, including diseases currently suspected of being autoimmune, and 5. To increase awareness of autoimmune diseases to ensure they receives the attention and funding they deserve.

990 for the year ended December 31, 2024

Program accomplishments

  • Outreach and advocacy efforts to introduce the website and registry to patients and other stakeholders
    Expenses $16,113 · revenue $23,563
  • Assisting subjects to enroll in relevant medical studies.
    Expenses $40,288 · revenue $35,000

What it must file and when

IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.

Tax yearYear endedDueIRS public records
2025December 31, 2025May 15, 2026Not on file
2024December 31, 2024May 15, 2025990 on file
2023December 31, 2023May 15, 2024990 on file

IRS record

EIN
81-1688265
Tax-exempt status
501(c)(3): Charitable, religious, educational or scientific organization
Foundation status
Publicly supported organization (170(b)(1)(A)(vi))
Donations deductible (Pub 78)
Public charity, 50% deduction limit
Exempt since
2016
Accounting year ends
December
Files
Form 990 or 990-EZ
Category (NTEE)
Health care (E01)
Assets (IRS master file)
$18,687
Income (IRS master file)
$58,563

Filing history

FormYear endedRevenueExpensesAssetsReturn
990December 2024$58,563$64,036$18,687XML
990December 2023$70,136$52,728$18,357XML
990December 2022$13,379$22,226$4,540IRS
990December 2021–––IRS
990December 2020–––IRS

990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 81-1688265).

Questions about AUTOIMMUNE REGISTRY INC

What is the EIN of AUTOIMMUNE REGISTRY INC?
The employer identification number (EIN) of AUTOIMMUNE REGISTRY INC is 81-1688265.
Is AUTOIMMUNE REGISTRY INC tax-exempt?
Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2016.
Are donations to AUTOIMMUNE REGISTRY INC tax-deductible?
Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
Which annual return does AUTOIMMUNE REGISTRY INC file?
Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
When is the next return of AUTOIMMUNE REGISTRY INC due?
The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
When did AUTOIMMUNE REGISTRY INC last file with the IRS?
The latest return in the IRS public files is the 990 for the year ended December 2024.
Who is the principal officer of AUTOIMMUNE REGISTRY INC?
The 990 for the year ended December 31, 2024 names Aaron Abend.
Who are the officers and directors of AUTOIMMUNE REGISTRY INC?
The 990 for the year ended December 31, 2024 lists 5 people; 1 received compensation from the organization, the highest $38,000 (Ingrid He, Director of Research).
How much revenue does AUTOIMMUNE REGISTRY INC have?
On its 990 for the year ended December 31, 2024 it reported revenue of $58,563, expenses of $64,036 and total assets of $18,687 at year end.

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