2025-10-08T12:50:20-07:00 2024-12-31 990 2024-01-01 811688265 AUTOIMMUNE REGISTRY INC AUTO 8604706414 125 West Lane Guilford CT 06437 Aaron Abend President 9786217745 2025-09-30 1 2024 2025-03-06 01:10:19Z Aaron Abend 125 West Lane Guilford CT 06437 58563 0 X www.autoimmuneregistry.org X 2016 CT Autoimmune Registry, Inc. (ARI) is a 501(c)(3) non-profit umbrella organization that provides a hub for research, statistics, and patient data on all autoimmune diseases. ARI operates a database where patients who suffer from any autoimmune disease can enroll to participate in medical research and clinical trials. Our goals are: 1. To reduce the time of diagnosis, 2. To support research, 3. To research, compute, and publish statistics on all autoimmune diseases, 4. To serve as a trusted source of credible, scientifically supported information about every autoimmune disease, including diseases currently suspected of being autoimmune, and 5. To increase awareness of autoimmune diseases to ensure they receives the attention and funding they deserve. 5 4 0 5 0 0 20066 23563 50070 35000 0 0 0 0 70136 58563 0 0 0 0 0 1679 476 0 0 52252 62357 52728 64036 17408 -5473 18357 18687 2944 8746 15413 9941 Autoimmune Registry, Inc. (ARI) is a 501(c)(3) non-profit umbrella organization that provides a hub for research, statistics, and patient data on all autoimmune diseases. ARI operates a database where patients who suffer from any autoimmune disease can enroll to participate in medical research and clinical trials. Our goals are: 1. To reduce the time of diagnosis, 2. To support research, 3. To research, compute, and publish statistics on all autoimmune diseases, 4. To serve as a trusted source of credible, scientifically supported information about every autoimmune disease, including diseases currently suspected of being autoimmune, and 5. To increase awareness of autoimmune diseases to ensure they receives the attention and funding they deserve. 0 0 16113 23563 Outreach and advocacy efforts to introduce the website and registry to patients and other stakeholders 40288 35000 Assisting subjects to enroll in relevant medical studies. 0 0 0 56401 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 2 0 1 0 0 0 0 0 0 0 0 0 X 5 4 0 0 0 0 0 0 0 1 1 0 0 1 1 1 0 1 1 0 1 0 CT X X X Aaron Abend 9786217745 125 West Lane Guilford CT 06437 Ingrid He Director of Research 40 X X 38000 0 0 Amber Gilbert Board Member 1 X 0 0 0 Michael Craig Board Member 1 X 0 0 0 Reginald Barnes Director of Patient Partnerships 8 X 0 0 0 Aaron Abend Executive Director 20 X 0 0 0 38000 0 0 0 0 0 0 0 4027 0 0 0 0 19536 0 23563 Participant Enrollment Fees 541715 23000 23000 0 0 Participant Recruitment Advertising 541715 12000 12000 0 0 0 0 0 0 35000 0 0 0 0 0 0 58563 35000 0 0 0 855 855 824 824 52625 52625 287 287 1369 1369 1560 1560 2485 2485 441 441 0 3091 3091 499 499 64036 56401 7635 0 10357 18687 8000 0 18357 18687 2944 8746 2944 8746 X 0 0 0 0 15413 9941 15413 9941 18357 18687 X -5473 0 0 0 0 1 X 0 0 0 X 5942 18769 8379 20066 19563 72719 5000 50070 39000 94070 5942 18769 13379 70136 58563 166789 10076 0 10076 0 0 0 10076 0 10076 156713 5942 18769 13379 70136 58563 166789 0.93959 0.90939 0 0 X Form 990, Part VI, Section B, Line 11b The Form 990 is submitted to all board members by email and they have 7 days to review. Form 990, Part VI, Section B, Line 15 The process for establishing compensation for all key employees was based negotiation with the Executive Director and approved by independent members of the Board. Form 990, Part VI, Section C, Line 19 Governing documents, as well as policies (including Conflict of Interest, Record Retention, and Whistleblower policies) are available on the organization website. Reasonable requests for financial statements or other documents are furnished upon request by mail and/or encrypted email. Form 990, Part XI, Line 9 This is due to a rounding error. Outside demands on the time of the personnel preparing the tax form delayed our ability to file on time.