Nonprofit · EIN 68-0214101
LYMEDISEASE ORG
Tax-exempt · SAN DIEGO, CA 92176
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2024 | 990 | $569,401 | $682,298 | -$112,897 | $1,582,758 | $11,523 | $1,571,235 |
Financial details: 990 for the year ended December 31, 2024
Revenue
- Contributions, gifts and grants
- $412,590
- Membership dues
- $140,766
- Program service revenue
- $0
- Investment income
- $156,811
- Net gain from sales of assets
- $109,541
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $0
- Compensation of officers, directors and key employees
- $112,857
- Other salaries and wages
- $285,944
- Salaries, compensation and benefits (total)
- $456,332
- Professional fundraising fees
- $0
- Accounting fees
- $35,908
- Travel
- $8,447
- Program services (functional)
- $569,962
- Management and general (functional)
- $94,445
- Fundraising (functional)
- $17,891
Balance sheet and other
- Total assets, start of year
- $1,637,678
- Total assets, end of year
- $1,582,758
- Total liabilities, end of year
- $11,523
- Net assets, end of year
- $1,571,235
- Publicly traded securities
- $1,399,291
- Gross receipts
- $947,643
- Employees
- 2
- Volunteers
- 15
- Year formed
- 1990
- State of legal domicile
- CA
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2024, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| LORRAINE JOHNSON | CEO Trustee or director, Officer | 60 | $112,857 |
| BARBARA BARSOCCHINI | BOARD MEMBER Trustee or director | 18 | $0 |
| CAROLYN DEGNAN | SECRETARY, C Trustee or director, Officer | 50 | $0 |
| CHRISTINE GREEN | DIRECTOR Trustee or director | 3 | $0 |
| MITCHELL HOGGARD | TREASURER Trustee or director, Officer | 3 | $0 |
| ERICA LEHMAN | DIRECTOR Trustee or director | 3 | $0 |
| DOROTHY KUPCHA LELAND | PRESIDENT Trustee or director, Officer | 20 | $0 |
| RON LINDORF | CHAIRMAN Trustee or director, Officer | 1 | $0 |
| CALEB MANSCILL | CTO Trustee or director, Officer | 3 | $0 |
| RAPHAEL STRICKER MD | MEDICAL DIRE Trustee or director | 5 | $0 |
Address and contacts
- Address (IRS master file)
- PO BOX 16009, SAN DIEGO, CA 92176-6009
- Principal officer (990 for 2024)
- MITCHELL HOGGARD, PO BOX 16009, SAN DIEGO, CA 92176
- Signed the 990
- MITCHELL HOGGARD, TREASURER
- Phone
- (510) 807-0133
- Return prepared by
- TEUSCHER WALPOLE LLC
Mission
LYMEDISEASE.ORG (FORMERLY CALDA) ADVOCATES NATIONWIDE TO MAKE THE PATIENT VOICE STRONER, TO SUPPORT PATIENT-CENTERED RESEARCH, TO CREATE LEGISLATIVE CHANGE, AND TO CREATE A FUTURE WHERE LYME PATIENTS CAN RECEIVE THE TREATMENTS THEY NEED TO GET WELL.
Program accomplishments
- EDUCATION - WE ARE THE LARGEST AND MOST TRUSTED COMMUNICATIONS NETWORK FOR LYME DISEASE IN THE NATION. THE ORGANIZATION RAISES THE LEVEL OF PUBLIC AWARENESS OF LYME DISEASE THROUGH OUR PUBLISHED BLOGS AND THE DIGITAL LYME TIMES AS WELL AS THE INTERNET, AND SOCIAL MEDIA.Expenses $216,586
- RESEARCH - WE CONDUCT AND PUBLISH RESEARCH THROUGH ONE OF THE LARGEST STUDIES OF LYME DISEASE THROUGH OUR PATIENT REGISTRY AND RESEARCH PLATFORM,MYLYMEDATA, WITH OVER 13,000 PATIENTS ENROLLED TO DATE. WE COLOLABORATE WITH RESEARCHERS FROM THE UNIVERSITY OF WASHINGTON AND FROM UCLA, AS WELL AS BAY AREALYME FOUNDATIONBIOBANK ON A TISSUE SPECIMENT BIOREPOSITORY.Expenses $205,187
- ADVOCACY - WE STRIVE FOR PATIENT INVOLVEMENT AT ALL LEVELS OF DECISION MAKING. WE REPRESENT HUNDREDS OF THOUSANDS OF PATIENTSAND PROVIDE THEM WITH THE TOOLS ESSENTIAL TO EMPOWERMENT. FOR OVER 10 YEARS, WE HAVE BEEN INVOLVEDIN PATIENT-LED BIG DATA RESEARCH EFFORTS, CONDUCTING LARGE SCALE PATIENT SURVEYS THAT ENGAGE THOUSANDS OF PATIENTS AND ARE PUBLISHED IN PEER REVIEWED JOURNALS.Expenses $96,893
- ADMIN SERVICESExpenses $51,296
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | Not on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 68-0214101
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (170(b)(1)(A)(vi))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 1996
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Assets (IRS master file)
- $1,582,758
- Income (IRS master file)
- $947,643
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2024 | – | – | – | IRS |
| 990 | December 2023 | $501,947 | $653,905 | $1,637,678 | IRS |
| 990 | December 2022 | $697,297 | $619,251 | $1,650,988 | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990 | December 2020 | – | – | – | IRS |
| 990 | December 2018 | – | – | – | IRS |
| 990 | December 2017 | – | – | – | IRS |
990-N: the IRS publishes only the latest e-Postcard per organization; earlier years appear here as 990.tax collects the monthly files. 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS.
Questions about LYMEDISEASE ORG
- What is the EIN of LYMEDISEASE ORG?
- The employer identification number (EIN) of LYMEDISEASE ORG is 68-0214101.
- Is LYMEDISEASE ORG tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 1996.
- Are donations to LYMEDISEASE ORG tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does LYMEDISEASE ORG file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of LYMEDISEASE ORG due?
- The return for tax year 2025 (the year ending December 31, 2025) is due May 15, 2026. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did LYMEDISEASE ORG last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2024.
- Who is the principal officer of LYMEDISEASE ORG?
- The 990 for the year ended December 31, 2024 names MITCHELL HOGGARD.
- Who are the officers and directors of LYMEDISEASE ORG?
- The 990 for the year ended December 31, 2024 lists 10 people; 1 received compensation from the organization, the highest $112,857 (LORRAINE JOHNSON, CEO).
- How much revenue does LYMEDISEASE ORG have?
- On its 990 for the year ended December 31, 2024 it reported revenue of $569,401, expenses of $682,298 and total assets of $1,582,758 at year end.
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