2025-09-15T19:08:53-04:00 2024-12-31 274029610 TEUSCHER WALPOLE LLC 11910 S STATE ST STE 200 DRAPER UT 840207738 990 2024-01-01 680214101 LYMEDISEASEORG LYME 5108070133 PO BOX 16009 SAN DIEGO CA 92176 MITCHELL HOGGARD TREASURER 5108070133 2025-09-07 true true RYAN J THOMPSON CPA P00439462 8016191400 2025-09-07 2024 2025-03-06 01:10:19Z MITCHELL HOGGARD PO BOX 16009 SAN DIEGO CA 92176 947643 false X WWW.LYMEDISEASE.ORG X 1990 CA LYMEDISEASE.ORG (FORMERLY CALDA) ADVOCATES NATIONWIDE TO MAKE THE PATIENT VOICE STRONER, TO SUPPORT PATIENT-CENTERED RESEARCH, TO CREATE LEGISLATIVE CHANGE, AND TO CREATE A FUTURE WHERE LYME PATIENTS CAN RECEIVE THE TREATMENTS THEY NEED TO GET WELL. 8 8 2 15 0 432483 412590 0 69464 156811 0 501947 569401 0 0 433540 456332 0 17891 220365 225966 653905 682298 -151958 -112897 1637678 1582758 6805 11523 1630873 1571235 X LYMEDISEASE.ORG (FORMERLY CALDA) ADVOCATES NATIONWIDE TO MAKE THE PATIENT VOICE STRONER, TO SUPPORT PATIENT-CENTERED RESEARCH, TO CREATE LEGISLATIVE CHANGE, AND TO CREATE A FUTURE WHERE LYME PATIENTS CAN RECEIVE THE TREATMENTS THEY NEED TO GET WELL. false false 216586 EDUCATION - WE ARE THE LARGEST AND MOST TRUSTED COMMUNICATIONS NETWORK FOR LYME DISEASE IN THE NATION. THE ORGANIZATION RAISES THE LEVEL OF PUBLIC AWARENESS OF LYME DISEASE THROUGH OUR PUBLISHED BLOGS AND THE DIGITAL LYME TIMES AS WELL AS THE INTERNET, AND SOCIAL MEDIA. 205187 RESEARCH - WE CONDUCT AND PUBLISH RESEARCH THROUGH ONE OF THE LARGEST STUDIES OF LYME DISEASE THROUGH OUR PATIENT REGISTRY AND RESEARCH PLATFORM,MYLYMEDATA, WITH OVER 13,000 PATIENTS ENROLLED TO DATE. WE COLOLABORATE WITH RESEARCHERS FROM THE UNIVERSITY OF WASHINGTON AND FROM UCLA, AS WELL AS BAY AREALYME FOUNDATIONBIOBANK ON A TISSUE SPECIMENT BIOREPOSITORY. 96893 ADVOCACY - WE STRIVE FOR PATIENT INVOLVEMENT AT ALL LEVELS OF DECISION MAKING. WE REPRESENT HUNDREDS OF THOUSANDS OF PATIENTSAND PROVIDE THEM WITH THE TOOLS ESSENTIAL TO EMPOWERMENT. FOR OVER 10 YEARS, WE HAVE BEEN INVOLVEDIN PATIENT-LED BIG DATA RESEARCH EFFORTS, CONDUCTING LARGE SCALE PATIENT SURVEYS THAT ENGAGE THOUSANDS OF PATIENTS AND ARE PUBLISHED IN PEER REVIEWED JOURNALS. 51296 ADMIN SERVICES 51296 569962 true true false false false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 7 0 2 true false false false false false false false false X 8 8 false false false false false false false true true false false true true true false false true true false false CA X BRAD JONES 8015921740 624 S 100 W OREM UT 84058 LORRAINE JOHNSON CEO 60.00 X X 112857 0 0 BARBARA BARSOCCHINI BOARD MEMBER 18.00 X 0 0 0 CAROLYN DEGNAN SECRETARY, C 50.00 X X 0 0 0 CHRISTINE GREEN DIRECTOR 3.00 X 0 0 0 MITCHELL HOGGARD TREASURER 3.00 X X 0 0 0 ERICA LEHMAN DIRECTOR 3.00 X 0 0 0 DOROTHY KUPCHA LELAND PRESIDENT 20.00 X X 0 0 0 RON LINDORF CHAIRMAN 1.00 X X 0 0 0 CALEB MANSCILL CTO 3.00 X X 0 0 0 RAPHAEL STRICKER MD MEDICAL DIRE 5.00 X 0 0 0 112857 1 false false false 140766 271824 412590 47270 47270 486480 1303 378242 108238 1303 109541 109541 569401 156811 112857 100443 12414 285944 254490 31454 57531 51203 6328 35908 28726 7182 9408 9408 3576 3183 393 3861 3436 425 21587 2772 924 17891 74675 74675 8447 8447 4820 1625 3195 LYME TIME 54526 38168 16358 BANK CHARGES 6244 6244 DUES & SUBSCRIPTIONS 2164 2164 MISC 630 630 120 120 682298 569962 94445 17891 172507 171299 11249 12168 99382 99382 1453922 1399291 1637678 1582758 6805 11523 6805 11523 X 1630873 1571235 1630873 1571235 1637678 1582758 -112897 53259 X false false false X 1132194 554832 586115 432483 412590 3118214 1132194 554832 586115 432483 412590 3118214 1237829 1880385 111608 64985 50916 50447 47271 325227 3443441 0.54610 0.58030 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 99382 99382 FORM 990 - ORGANIZATION'S MISSION LYMEDISEASE.ORG (FORMERLY CALDA) ADVOCATES NATIONWIDE TO MAKE THE PATIENT VOICE STRONER, TO SUPPORT PATIENT-CENTERED RESEARCH, TO CREATE LEGISLATIVE CHANGE, AND TO CREATE A FUTURE WHERE LYME PATIENTS CAN RECEIVE THE TREATMENTS THEY NEED TO GET WELL. FORM 990, PAGE 2, PART III, LINE 4D ADMIN SERVICES FORM 990, PAGE 6, PART VI, LINE 11B THE CEO AND TREASURER REVIEW THE FORM 990 AND SUBMIT IT TO THE DIRECTORS FOR COMMENT. FORM 990, PAGE 6, PART VI, LINE 15A THE BOARD DISCUSSES COMPENSATION WHEN IT IS TO BE CHANGED. AT THE TIME OF IMPLEMENTATION THE BOARD CONSIDERED COMPARABLE COMPENSATIONS AT OTHER NON- PROFITS. FORM 990, PAGE 6, PART VI, LINE 19 AVAILABLE UPON REQUEST.