Nonprofit · EIN 54-2153449
INTERNATIONAL SOCIETY OF AMYLIODOSIS
Tax-exempt · BURNSVILLE, MN 55306
Financials
| Year ended | Form | Revenue | Expenses | Net income | Total assets | Liabilities | Net assets |
|---|---|---|---|---|---|---|---|
| December 31, 2025 | 990 | $946,221 | $616,862 | $329,359 | $2,923,349 | $252,803 | $2,670,546 |
| December 31, 2024 | 990 | $2,301,926 | $641,451 | $1,660,475 | $2,489,452 | $148,265 | $2,341,187 |
| December 31, 2023 | 990 | $697,376 | $300,698 | $396,678 | $727,899 | $47,187 | $680,712 |
Financial details: 990 for the year ended December 31, 2025
Revenue
- Contributions, gifts and grants
- $802,232
- Program service revenue
- $71,866
- Investment income
- $72,123
- Other revenue
- $0
Expenses
- Grants and similar amounts paid
- $80,227
- Salaries, compensation and benefits (total)
- $0
- Professional fundraising fees
- $0
- Accounting fees
- $16,700
- Travel
- $47,269
- Program services (functional)
- $366,199
- Management and general (functional)
- $250,663
Balance sheet and other
- Total assets, start of year
- $2,489,452
- Total assets, end of year
- $2,923,349
- Total liabilities, end of year
- $252,803
- Net assets, end of year
- $2,670,546
- Net assets without donor restrictions
- $2,401,718
- Net assets with donor restrictions
- $268,828
- Gross receipts
- $946,221
- Employees
- 0
- Volunteers
- 127
- Year formed
- 2002
- State of legal domicile
- MN
From the e-filed returns the IRS publishes as XML (latest three processing years; amended returns replace the original). PDF copies at the IRS.
Officers, directors and key employees
As listed on the 990 for the year ended December 31, 2025, highest compensation first.
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Mona Johnson | Executive Director Officer | 20 | $75,000 |
| Shaji Kumar | President Trustee or director, Officer | 2 | $0 |
| Stefan Schonland | Past President Trustee or director, Officer | 2 | $0 |
| Yoshiki Sekijima | Vice President Trustee or director, Officer | 2 | $0 |
| Mathew Maurer | Secretary Trustee or director, Officer | 1 | $0 |
| Anita D'Souza | Treasurer Trustee or director, Officer | 1 | $0 |
| Efstathios Kastritis | Member at Large Trustee or director | 0.5 | $0 |
| Lisa Mendelson | Member at Large Trustee or director | 0.5 | $0 |
| Maite Cibeira | Member at Large Trustee or director | 0.5 | $0 |
| Eloisa Riva | Member at Large Trustee or director | 0.5 | $0 |
| Giovanni Palladini | Representative of the Italian Society Trustee or director | 0.5 | $0 |
| Alexander Carpintiero | Representative of the German Society Trustee or director | 0.5 | $0 |
990 for the year ended December 31, 2024: 13 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| Shaji Kumar | President Trustee or director, Officer | 2 | $0 |
| Stefan Schoenland | Past President Trustee or director, Officer | 2 | $0 |
| Yoshiki Sekijima | Vice President/President-Elect Trustee or director, Officer | 2 | $0 |
| Mathew Maurer | Secretary Trustee or director, Officer | 1 | $0 |
| Anita D'Souza | Treasurer Trustee or director, Officer | 1 | $0 |
| Efstathios Kastritis | Member at Large Trustee or director | 0.5 | $0 |
| Lisa Mendelson | Member at Large Trustee or director | 0.5 | $0 |
| Hironobu Naike | Representative of the Japanese Society Trustee or director | 0.5 | $0 |
| Maite Teresa Cibeira | Member at Large Trustee or director | 0.5 | $0 |
| Eloisa Riva | Member at Large Trustee or director | 0.5 | $0 |
| Giovanni Palladini | Representative of the German Society Trustee or director | 0.5 | $0 |
| Alexander Carpintiero | Representative of the Italian Society Trustee or director | 0.5 | $0 |
| Mona Johnson | Executive Director Officer | 20 | $0 |
990 for the year ended December 31, 2023: 10 people
| Name | Title | Hours / week | Compensation |
|---|---|---|---|
| STEFAN SCHOENLAND | PRESIDENT Trustee or director, Officer | 5 | $0 |
| SHAJI KUMAR | VICE PRESIDE Trustee or director, Officer | 3 | $0 |
| EFSTATHIOS KASTRITIS | SECRETARY Trustee or director, Officer | 2 | $0 |
| MARINA RAMIREZ-ALVARADO | TREASURER Trustee or director, Officer | 2 | $0 |
| ANITA D'SOUZA | TREASURER Trustee or director, Officer | 1 | $0 |
| GIOVANNI PALADINI | PAST PRESIDE Trustee or director, Officer | 1 | $0 |
| YOSHIKI SEKIJIMA | DIRECTOR Trustee or director | 1 | $0 |
| PER WESTERMARK | DIRECTOR Trustee or director | 1 | $0 |
| ELOISA RIVA | DIRECTOR Trustee or director | 1 | $0 |
| ELI MUCHTAR | DIRECTOR Trustee or director | 1 | $0 |
Address and contacts
- Address (IRS master file)
- 14305 SOUTHCROSS DR W STE 100, BURNSVILLE, MN 55306-7006
- In care of
- % STEVEN ZELDENRUST
- Mailing address (990-N for 2020)
- 2424 American Lane, Madison WI 53704
- Principal officer (990 for 2025)
- Mona Johnson, 14305 Southcross Dr Ste 100, Burnsville, MN 55306
- Principal officer (990-N for 2020)
- Shaji Kumar, 2424 American Lane, Madison WI 53704
- Signed the 990
- Anita D'Souza, Treasurer
- Phone
- (952) 683-1878
- Website
- www.isaamyloidosis.org
- Return prepared by
- Abdo LLP
Mission
ISA is the leading global organization dedicated to engaging with scientists, healthcare providers, patients and other stakeholders to provide education, raise awareness and advance research and multidisciplinary clinical practice for all types of amyloidosis.
Program accomplishments
- Workshop:The Society organized a scientific workshop in 2025 to bring together leading experts, researchers, and clinicians in the field of amyloidosis to discuss cutting-edge advancements in diagnostics, treatment response assessment, screening approaches, and drug development. Manuscripts summarizing workshop results were prepared to submit to the journal Amyloid.Expenses $143,124 · revenue $58,366
- Fellowships: ISA awards year-long clinical fellowships to institutions submitting top proposals. The Fellowship Program focuses on clinical training in all types of amyloidosis. ISA supported three fellowships in 2025.Expenses $147,337 · grants $80,227
- Journal:ISA provides editorial support for Amyloid, the leading journal for basic and clinical research on amyloids and systemic and localized amyloidosis.Expenses $41,498 · revenue $13,500
- Virtual Case Discussions: ISA holds virtual 90-minute case discussions on a periodic basis, with the goals of increasing awareness of amyloidosis around the globe and showcasing how the latest diagnostic methods and treatment options can be applied to real-life cases.Expenses $33,543
- Symposium:The biennial International Symposium on Amyloidosis is the premier meeting to discover the latestadvancements, stay current on research, and network with clinicians in the amyloidosis field. These meetingsbring together physicians and scientists to share ideas and advance the science of amyloidosis and protein-folding diseases. Symposia are held in even-numbered years.Expenses $697
What it must file and when
IRS records say it files Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N. Its accounting year ends in December, so each return is due on the 15th day of the 5th month after that.
| Tax year | Year ended | Due | IRS public records |
|---|---|---|---|
| 2025 | December 31, 2025 | May 15, 2026 | 990 on file |
| 2024 | December 31, 2024 | May 15, 2025 | 990 on file |
| 2023 | December 31, 2023 | May 15, 2024 | 990 on file |
IRS record
- EIN
- 54-2153449
- Tax-exempt status
- 501(c)(3): Charitable, religious, educational or scientific organization
- Foundation status
- Publicly supported organization (509(a)(2))
- Donations deductible (Pub 78)
- Public charity, 50% deduction limit
- Exempt since
- 2022
- Accounting year ends
- December
- Files
- Form 990 or 990-EZ
- Category (NTEE)
- Medical research (H03)
- Assets (IRS master file)
- $2,923,349
- Income (IRS master file)
- $946,221
Filing history
| Form | Year ended | Revenue | Expenses | Assets | Return |
|---|---|---|---|---|---|
| 990 | December 2025 | $946,221 | $616,862 | $2,923,349 | XML |
| 990 | December 2024 | $2,301,926 | $641,451 | $2,489,452 | XML |
| 990 | December 2023 | $697,376 | $300,698 | $727,899 | XML |
| 990-EZ | December 2022 | – | – | – | IRS |
| 990 | December 2021 | – | – | – | IRS |
| 990-N for 2020 Officer: Shaji Kumar | December 31, 2020 | ≤ $50,000 receipts | – | – | e-Postcard |
| 990-N for 2019 | December 31, 2019 | ≤ $50,000 receipts | – | – | e-Postcard |
990-N: the IRS bulk file holds only the latest e-Postcard per organization; earlier years come from archived copies of that file since 2020 and can have gaps (the IRS e-Postcard search lists every one). 990, 990-EZ, 990-PF, 990-T: every e-filed return in the IRS e-file index since 2019; XML for the latest three processing years, amounts from the IRS Statistics of Income extracts before that. PDF copies and determination letters at the IRS (search EIN 54-2153449).
Questions about INTERNATIONAL SOCIETY OF AMYLIODOSIS
- What is the EIN of INTERNATIONAL SOCIETY OF AMYLIODOSIS?
- The employer identification number (EIN) of INTERNATIONAL SOCIETY OF AMYLIODOSIS is 54-2153449.
- Is INTERNATIONAL SOCIETY OF AMYLIODOSIS tax-exempt?
- Yes. The IRS lists it as tax-exempt under section 501(c)(3) since 2022.
- Are donations to INTERNATIONAL SOCIETY OF AMYLIODOSIS tax-deductible?
- Yes. It is listed in IRS Publication 78 (Public charity, 50% deduction limit).
- Which annual return does INTERNATIONAL SOCIETY OF AMYLIODOSIS file?
- Form 990 or 990-EZ. Based on its last return; a smaller organization may file the 990-N.
- When is the next return of INTERNATIONAL SOCIETY OF AMYLIODOSIS due?
- The return for tax year 2026 (the year ending December 31, 2026) is due May 17, 2027. Form 8868 extends it by six months; the 990-N cannot be extended.
- When did INTERNATIONAL SOCIETY OF AMYLIODOSIS last file with the IRS?
- The latest return in the IRS public files is the 990 for the year ended December 2025.
- Who is the principal officer of INTERNATIONAL SOCIETY OF AMYLIODOSIS?
- The 990 for the year ended December 31, 2025 names Mona Johnson.
- Who are the officers and directors of INTERNATIONAL SOCIETY OF AMYLIODOSIS?
- The 990 for the year ended December 31, 2025 lists 12 people; 1 received compensation from the organization, the highest $75,000 (Mona Johnson, Executive Director).
- How much revenue does INTERNATIONAL SOCIETY OF AMYLIODOSIS have?
- On its 990 for the year ended December 31, 2025 it reported revenue of $946,221, expenses of $616,862 and total assets of $2,923,349 at year end.
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