2025-09-16T16:15:29-05:00 2024-12-31 411397419 Abdo LLP 5201 Eden Ave Ste 250 Edina MN 55436 990 2024-01-01 542153449 International Society of Amyloidosis INTE 9526831878 14305 Southcross Dr Ste 100 Burnsville MN 55306 Anita D'Souza Treasurer 9526831878 2025-09-10 1 0 Steven D Anseth CPA P00552219 9528359090 2025-08-29 2024 2025-03-06 01:10:19Z Mona Johnson 14305 Southcross Dr Ste 100 Burnsville MN 55306 2301926 0 X www.isaamyloidosis.org X 2002 MN To promote research, education, clinical studies (including diagnosis and treatment), conferences and symposia on all aspects of amyloidosis worldwide. 12 12 0 85 0 0 163064 554519 529730 1711458 4582 35949 0 0 697376 2301926 14055 377513 0 0 0 0 0 0 0 286643 263938 300698 641451 396678 1660475 727899 2489452 47187 148265 680712 2341187 To promote research, education, clinical studies (including diagnosis and treatment), conferences and symposia on all aspects of amyloidosis worldwide. 0 0 475323 377513 1711458 Held ISA 2024 scientific symposium with approximately 1200 attendees. Sponsored three year-long amyloidosis fellowships. Published an updated version of amyloid nomenclature. Collaborated with another organization to develop a new worldwide external quality assessment (EQA) scheme for ATTRv amyloidosis. Conducted a survey of how amyloidosis typing is conducted around the world and published results. 475323 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 5 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 12 12 0 1 0 0 1 1 0 1 1 0 0 1 1 1 1 0 0 0 0 0 MN X X Status Plus LLC 9526831878 14305 Southcross Dr Ste 100 Burnsville MN 55408 X Shaji Kumar President 2.00 X X 0 0 0 Stefan Schoenland Past President 2.00 X X 0 0 0 Yoshiki Sekijima Vice President/President-Elect 2.00 X X 0 0 0 Mathew Maurer Secretary 1.00 X X 0 0 0 Anita D'Souza Treasurer 1.00 X X 0 0 0 Efstathios Kastritis Member at Large 0.50 X 0 0 0 Lisa Mendelson Member at Large 0.50 X 0 0 0 Hironobu Naike Representative of the Japanese Society 0.50 X 0 0 0 Maite Teresa Cibeira Member at Large 0.50 X 0 0 0 Eloisa Riva Member at Large 0.50 X 0 0 0 Giovanni Palladini Representative of the German Society 0.50 X 0 0 0 Alexander Carpintiero Representative of the Italian Society 0.50 X 0 0 0 Mona Johnson Executive Director 20.00 X 0 0 0 0 0 0 0 0 0 0 The Rees Group Inc 2424 American Lane Madison WI 53704 Management Services 148445 1 554519 554519 Symposiums proceeds 900099 1583400 1583400 Membership dues 900099 80475 80475 Grant administration f 900099 34083 34083 Journals 900099 13500 13500 1711458 35949 35949 2301926 1711458 0 35949 219194 219194 12000 12000 146319 146319 148445 28445 120000 3584 1890 1694 715 715 8610 8610 905 905 29793 2829 26964 4353 4353 Journal Expense 63716 63716 Bank and Credit Card fe 3212 25 3187 Postage & Shipping 605 605 641451 475323 166128 0 573317 249874 154582 2239578 727899 2489452 111415 47187 36850 47187 148265 X 680712 2218217 122970 680712 2341187 727899 2489452 1660475 0 X X 0 1 X 1 0 X 158 4200 163064 554519 721941 46593 248977 126381 529730 1711458 2663139 46751 248977 130581 692794 2265977 3385080 2346 2346 1560381 1560381 1562727 1562727 1822353 4582 35949 40531 4582 35949 40531 46751 248977 130581 697376 2301926 3425611 0.53200 0.99590 0.01180 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 2301926 0 2301926 0 2301926 641451 0 641451 0 641451 0 Europe (Including Iceland & Greenland) 0 0 Program services Fellowship Program 2024-2025 121632 South Asia 0 0 Program services Award 3065 South America - Argentina, Bolivia, Brazil, Chile, Columbia, Ecuador, 0 0 Program services Award 3000 Sub-Saharan Africa 0 0 Program services Award 3000 Europe (Including Iceland & Greenland) 0 0 Program services Award 15331 0 0 0 0 0 0 146028 0 146028 Europe (Including Iceland & Greenland) Fellowship Program 2024-2025 Year 121632 Wire Transfer 0 1 Award South Asia 1 3065 Wire Transfer Award South America 1 3000 wire Transfer Award Sub-Saharan Africa 1 3000 wire Transfer Award Europe (Including Iceland & Greenland) 5 15331 Wire Transfer 0 0 0 0 0 0 Part I, Line 2: Fellowship recipients are required to submit two evaluations: one at the midpoint and one at the conclusion of the fellowship. 1 NYU School of Medicine PO Box 415026 Boston MA 02241 135562309 107779 0 Fellowship Program 2024-2025 Year The Board of Trustees of the Leland Stanford Junior University 485 Broadway Mail Code 8838 Redwood CA 94063 941156365 501(c)(3) 111415 0 Fellowship Program 2024-2025 Year 2 0 ISA Presidential Award 4 12000 Part I, Line 2: Fellowship recipients are required to submit two evaluations: one at the midpoint and one at the conclusion of the fellowship. Form 990, Part VI, Section A, line 3 The Organization utilizes the services of a management firm, Rees Group, LLC. Management fees represent amounts paid to Rees Group, LLC for meeting management services and the performance of duties commonly performed by the Executive Director, management, and staff of a non-profit association. The Organizations's Executive Director are employed through the Rees Group, LLC. Form 990, Part VI, Section A, line 6 ISA has the following types of members: full members, student members, emeritus members, affiliate members, and patient/care partner members. Full members have the ability to attend meetings, to vote during elections and on other matters requiring member votes, to hold office, to nominate candidates for office and to serve on committees and working groups. Student members have the ability to attend meetings and to serve on committees and working groups, but not to vote, nominate candidates for office or hold office. Emeritus members have the ability to attend meetings, to vote during elections and on other matters requiring member votes, to nominate candidates for office and to serve on committees and working groups. Emeritus members may serve on the Board, but not in Officer positions. Affiliate members have the ability to attend meetings but may not vote during elections and on other matters requiring member votes, and may not serve on the Board, committees or working groups. Patient/Care Partner members are not eligible to attend symposia or ISA business meetings (unless otherwise allowed by the Board or its delegate as to the particular symposium or meeting), vote during elections or other matters requiring member votes, or nominate candidates for office. Upon appointment by the President, they may serve on committees and working groups. Form 990, Part VI, Section A, line 7a Full members have the right to vote in elections, nominate candidates, hold office, and serve on committees and working groups. Form 990, Part VI, Section B, line 11b A review of the 990 is conducted either in person or via a conference call before the return is filed. Form 990, Part VI, Section B, line 12c The society's board reviews the directors statement of disclosure for any sets of facts or circumstances that may reflect an actual, potential or apparent conflict of interest. The board will review each circumstance individually, taking into account various factors that might indicate a potential conflict of interest and determine whether an actual conflict of interest exists. The board reserves final authority over the resolution of the conflict of interest and may require the director to recuse themselves from deliberations or, in certain scenarios, resign from their service. Form 990, Part VI, Section C, line 19 The society makes its governing documents and financial statements available to the public upon request. Form 990, Part XII, Line 2c: The process has not changed from the prior year.